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Post by steffipoo on Jun 12, 2010 12:20:47 GMT -5
Hey Corinne I didn't know until a few hours after Olivia was born at Cedar Sinai the worst possible hospital to have a baby in unless your a celebrity. OOOH blew their cover lol. HATED THEM THERE THEY WERE HORRIBLE TO US!!! But after that experience and a change of peds we have had nothing but amazing experiences with ppl. You will meet people you never thought you would and it will be amazing I guarantee that.
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Post by Googsmom aka Jennifer on Jun 12, 2010 15:28:27 GMT -5
Oh i'm late. WELCOME TO UNO!!!!!! Congratulations on your Blessing!!!
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Post by rlm08 on Jun 14, 2010 17:06:18 GMT -5
Hi Stephanie, nice to meet someone from LA (and yes, GO LAKERS!)
My daughter was born at St. Jo's in Burbank and had her surgery at CHLA. We were happy with our experience (as happy as we could be given the situation) and were comfortable with both hospitals.
I have to say that I am feeling slightly overwhelmed by the number of organizations out there and am not sure what, if anything, I should be doing with all of them. There's the NDSS, DSALA, Regional Center, and some others I've heard of but can't remember off the top of my head.
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Post by Chris too on Jun 14, 2010 21:51:18 GMT -5
Corinne, Welcome to Uno and congrats on your sweet and adorable new daughter! My best advise - don't sweat the small stuff (that includes all those alphabet soup organizations). It's enough just dealing with the extra health issues and therapy that first year. I want to tell you that I had the same concerns when Stevie was little - "How functional will she be?" "How can I tell if she'll be good at talking/learning/socializing?" "Is there any way to test her to see how well she'll do so that we can help her better?" But I'm telling you, none of that matters - it really doesn't. You don't know how well Violet will do either - "Will she be good at math?" "Will she be able to sing on key?" "Will she even want to go to college?" Your daughters have one great thing in common - you. You get to help each of them along the way, encouraging, teaching, providing help as it is needed. There is no real looking-ahead. It is a bit easier with Ds than with typical kids - we do know that they ALL need at least some physical therapy, some speech therapy, and some occupational therapy in the beginning. They will not be doctors or lawyers or astrophysicists - but how many are anyway? Try to set aside these concerns about her academic future and just enjoy her as she is, rolling with the punches, rejoicing in the victories, and ... very important point here ... coming here to tell us all about it along the way Once again, welcome to Uno!
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Post by Jackie on Jun 15, 2010 8:11:19 GMT -5
Really good advice Chris too.
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Post by Googsmom aka Jennifer on Jun 15, 2010 14:16:01 GMT -5
You will be sooooo suprised at what is out there for us and our kids. I absolutly agree w/ Chris though, just enjoy them littles. Everything will fall into place, promise.
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Post by steffipoo on Jun 15, 2010 18:45:58 GMT -5
Hi Corinne... DSALA Regional center who u will be dealing with for ifsp's and also if u live in the valley (which I used to) there is a group out of CSUN called CHIME support group and wonderful parents who will help answer specific questions regarding services and anything. Also there is the family focus resource center where you can borrow every book under the sun (and videos) so u don't hafta buy every SINGLE ONE!!! I know I used them lots when I lived in Chatsworth. There kinda around valencia I believe. Those are the best in my opinion for info and help. Try to start small it can be completely overwhelming. I always thought I was missing something when Liv was a baby. Like she wouldn't be okay if I didn't do this or read that or attend this. Got over that real quick. Gail Williamson will be the best resource for info for you now and other parents. Don't do everything at once. I felt the same way and swear my heart pounded from anxiety for months till I learned to do one thing at a time and realized we had our whole lives together to find out about other organizations. (((HUGS))) Steff
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Post by char on Jun 20, 2010 0:31:27 GMT -5
Welcome to Uno Mas! Your girls are beautiful. One of my granddaughters has Down syndrome, and she just turned five. I was not a part of her day to day progress because I live too far away. She's had a lot of therapy but the most important thing is that she has been loved.
Char
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