Hey CC

[Googsmom aka Jennifer]

Just wondering what was going on w/ Chris. Any word yet?

[CC]

Aw your so sweet for asking girl, thank you

Chris goes in on Monday the 22nd for the Mylegram (sp?) but being its a holiday week not sure when we will get the results I am hoping right then and there but it usually doesn't go that way He has to be perfectly still for the test so they will be putting him out. That's the part I worry about as he doesn't do well with anesthesia (sp?)

I will let you know how it goes.

CC~

[Googsmom aka Jennifer]

Ok. I wrote it on my Praying calendar. {{{{HUGS}}}}

[Myria]

I was wondering about that myself. Glad you will be able to have this done. I really really hope this will be the answer to helping Chris, and I hope it means an answer to(and leading to a solution for) his back pain! You will both be in my prayers.

[CC]

Date has been changed to December 2nd, which kind of sucks as that day is Christopher's 18th Birthday. But we really have no option, as the specialist that will be doing the test needs to do it then. On the bright side, Colin and I are thinking if they can find the problem and know how to correct it may be a good present, KWIM?

If you think of it please send some positive thoughts Christopher's way on 12/2

Thanks

CC~

[Googsmom aka Jennifer]

Changed date on the praying calendar. Continued Prayers CC

[momofrussell]

You got it CC! Glad you are keeping us all in the loop so we can keep prayers going for Chris!

a.

[Debi]

Sorry so sorry to phrase it this way: It does suck to have to have this test on his l8th. That day should be reserved for bliss and only bliss, not medical tests.
Okay Christopher, you've got us cheering for you and for some answers on 12/2/10.
That is not that far away!!

[Emilysmom]

I'll definitely be thinking of Christopher on the 2nd, and praying for good results!!

So, I am thinking...........maybe Christopher's 18th birthday should be changed to the FIRST of December! ! ! Celebrate first...........tests second.

[rlm08]

I think I'm on FB too much...I wanted to click "like" on Susan's comment. Yes, celebrate on the 1st!

[Googsmom aka Jennifer]

Thinking of you and Chris.

[laurasnowbird]

Hoping things went well, and that we'll have a great report from you soon.....

[CC]

THANKS Laura ~ I updated on Facebook but Oops forgot to here.

Chris had the Mylegram (sp?) on Thursday and THANK God he does NOT have a tethered spinal cord. They took a sample of his spinal fluid but I will have to wait for results for that. I am sure all is well with that, not even sure why they did that. Anywho sadly he is getting the bad headache affects from this test and has to lay flat in order to feel better. The Doc was hoping he wouldn't get them as they can last up to a week or so I have no idea why this happens but they tell me its pretty common after this test. BUT OMG so nasty, my heart breaks for Chris seeing him so miserable

I am not sure what is next, well they do want to do a kidney biopsy BUT Colin and I are holding off on that for now. They want to do it due to his Creatinine has been elevated and recently has gone up a bit more and they have no idea why this is happening. They have done all the tests and yet we still have no answers as to why he has so much back pain and why the creatinine is creeping up

I think its time we call Dr. "House" he can fix anybody ~ Man I only wish

CC ~

[Googsmom aka Jennifer]

Just wondering here but do you have any idea what his CRP (C~reactive protiens) levels are?

Yeaaa for the no TSC!! That is a weight lifted.