What a crazy few weeks...

[mg12061]

We've had some strange things going on with Kathleen. She started with Diarhea a few weeks ago, seemed to get better went to school etc. On a Monday a week later she started waking up crying holding her head. Said nothing "hurt". Continued these episodes getting longer each morning. Friday I finally aksed her " if her head hurt" she said no I asked what does it feel like (becuase she kept holding and closing her eyes) she said it was "dizzy". We made an appt. with her PC Dr. and he couldn't find anything obviouse wrong. We called the neurologist, but bythen she was doing better no more episodes. He said call back if she does it again. Satuday morning it started all over again with no let up. We were told to go to the ER. She was admitted. We were concerned that she was having another stroke or TIA. They did blood work CT scan and MRI/MRA. They didn't see any new strokes thank god. We we discharged after 4 days. They sent her scans to the neurosurgeon in Boston for review to be sure there are no changes in the Moyamoya disease. She was good in the hospital for 4 days still dizzy but no crying. We came home Tuesday and she started crying and dizzy spells all over again. Wednesday the neurologist sent us back to the ER, in the morning she was also complaining her tummy hurt and she needed ice on it. They did lots more blood work and all came back good. Each day she seems fine later in the day, spells just in the morning. Since then shes had these spells but they have gotten shorter each day. Today was her best day. We went back to the PC dr and he's not sure what's going on but is reasured by the fact that she seems to be getting better. So at this point we just watch closely wait to hear from the neurosurgeon that all is well with the scans and hope it doesn't start again. It's been so hard with her limited language. I didn't realise how limited it was until now she couldn't explain what she was feeling. she did say that "dizzy" meant spinning around. But they were'nt sure wether it was vertigo, dizzy or light headed. Hopefully it's all behind us!
Mary grace

[Googsmom aka Jennifer]

OMGoodness, {{{{{{HUGS}}}}}}. I hope everything is getting better!!

[laurasnowbird]

How frightening! Hoping and praying that the worst is behind you.....

[CC]

YIKES ~ I can so relate to not knowing what is going on medically and its scary and just plain SUCKS !!

Prayers going out from Jersey that all is on the mend and no more problems

CC ~

[Emilysmom]

Wow..........I hope it is all behind you too! Sounds very frightening.

Hugs to you!

[mg12061]

Thank you for all your thoughts and prayers. I'm praying this is the end of it, we may never know what was going on. I just hope it's all behind us. Yesterday was exactly nine years ago to the day from her first surgery for the moyamoya.
Mary Grace

[Myria]

Prayers that the doctors can figure out what is happening! I hope it is getting better!

[Chris too]

{{{hugs}}}

I'm wondering about the possibility of migraines. I get them in the balance center (rather than the vision center) of my brain. I feel "dizzy" when I get them. When the dizzy spell is really bad, I get the headache afterward. I know that migraines can cause stomach aches in some people too. For me it was the dizziness that was the real problem - I was getting the spells a dozen times a day or more & it was beginning to interfere with my daily living - so the pain meds weren't the answer for me. I wound up with biofeedback training to learn how to get rid of the migraine itself. That training has helped me in so many other ways too.

Praying for Kathleen that you get some answers followed by help very soon.