new Clinical Report from AAP

[wrblack]

Health Supervision for Children With Down Syndrome

from

pediatrics.aappublications.org/content/early/2011/07/21/peds.2011-1605.full.pdf+html

Autism 1%. Cataracts 15%. Really? I think they could have used a few more footnotes.
Still some good guidelines and guidance in there.
"Families benefit from hearing a fair and balanced perspective, including the many positive outcomes of children with Down syndrome and their effect on the family." Liked that bit. And report is
dedicated to the memory of Dr. William Cohen. -- Bob

[lespring]

I HATE the part about AAI, and not screening unless a child is symptomatic!!! GOOD GRIEF!!!! Axel had ACTIVE COMPRESSION of his spinal cord, and the CSF (cerebral spinal fluid, which feeds the brain) was blocked..and he didn't have one single symptom. We was walking around just one sneeze or cough away from catastrophic injury.

Oh, and what are the symptoms? Changes in gait, or tingling/numbness of the hands and feet. Hmmm there is no way Axel could have told us his hands and feet were tingling!

[mydsgirl]

Bob, Thank you for the article. It was right on target for Emma, sometimes I feel so alone and that no one understands what all we go through. This gave me some peace of mind and refreshed my memory on what to discuss with her doctor. Again, thank you.