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Post by CC on May 14, 2005 20:16:15 GMT -5
I know I have talked bout this some before, but wondering here... Chris get days that are GREAT and then days that Hmmm well lets say "Off" and there is just noooo reason that one can pin point as to why He truly goes days just doing fine then out of no where he is grabbing everything in site, its almost as if he gets in his own way, KWIM?? Those are the days we give him Tylenol and it seems to help some but I do WONDER what the heck is the cause of his off days. Colin had both the kids out tonight at the mall and he came home and said its like Chris has a tooth-ache but in his body somewhere, Hmmmmm sounds like an odd way to put it BUT you know it really is like that I would say yes its puberty BUT this truly has been a pattern for Chris since he was tiny Such a puzzle CC ~
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Post by momofrussell on May 14, 2005 21:30:35 GMT -5
There are days here and there I would talk to Russell's teacher or get a note saying he was crabby all day... like I am suppose to know something is wrong with him. Sometimes he is like this JUST at school and sometimes yes, he is just "off" and I really can't pinpoint it. Russell can wake up in the middle of the night like that too! Since he doesn't point or talk or anything, we THINK he may be in pain sometimes, like a tummy ache or something, but truly, we never really know what it is. It could be anything from the heat, to teeth coming in, to tummy aches to just wants to be home with mommy! You say "off" days. Also reminds me of after I stopped working when Russell was 1 1/2. I started taking care of my best friends kids. Her youngest was 6 months at the time. When she was around 1 yrs old, she was such a good baby.. but some days.... LOL... Man.. girl got into EVERYTHING, was just a terror on two wobbly legs and I couldn't believe this was the same child I was taking care of and was so delightful for DAYS on end...so I have seen the "off" thing in more then just Russell. I think we all have "off" days if you ask me. And coming from a mom who's daughter is 12 and in puberty... YIKES for "off" days.... We too have given Russell Motrin or Tylenol when he is so OFF and SO cry'y or crabby that we don't know what it is so it must be pain... KWIM? A.
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Post by rickismom on May 14, 2005 22:41:57 GMT -5
DEFINATELY! I'll add that some mornings when she's a terror at home, I worry that I'll get a call from the school that she went on the war path, but actually rarely does this happen-- and she can be a monster at school when she was angelic at home. The only thing I see that one might not notice, is lack of sleep being a factor. But isn't it true with all of us that we have "those days" with no reason? And as some of our kids move into puberty, that will factor in as well.
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Post by Valerie on May 15, 2005 5:23:38 GMT -5
YES!! Nicholas had a truly "OFF" day just 3 days ago. He woke up grouchy and stayed that way all day. Horribly grouchy. This child is usually so mellow. He has a bit of an attitude in him, don't get me wrong, but usually easy to get him smiling again. Anyway, this particular day, my FIL was visiting from Nevada. He doesn't see him that often, last time was last June...and he's just not much of a "kid" person. Anyway, in the midst of Nicholas' grouchy day, he says, "It must take a lot of patience to deal with 'kid's like him.'" I'm guessing he's referring to the DS, because he went on to talk about somebody he works with who has a child with Autism, and that would take a lot of patience, too. I told him, actually Nicholas on any other day, was a LOT easier to deal with than my older son was. Now he had "OFF" days more than he had good ones!
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Post by Jessie on May 15, 2005 6:49:51 GMT -5
Oh yes, I know what you mean CC. There are days that Jason "gets" everything - on the first try and the first command/request. Then there are days that it takes us telling him something over and over and over and over again.
Yes, we all have those days and it could very well be related to something physical, whether it's being tired, has a headache or just woke up on the wrong side of the bed. Unfortunately, Jason, Chris, Russell, etc., can't TELL us what's wrong . . . I think that's the frustrating part. Jason has never pointed to his head as if he has a headache, even when we know he is sick, so he gives us no indication when he is not feeling good. He simply cannot articulate his feelings either.
There are days that we get notes home from school that he was crabby all day - yet perfectly fine at home. Why? Don't know, he can't tell us!
I think that is probably the hardest part of all of this is not being able to reach him when he has days like this and understand what's going through his mind.
Jessie
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Post by Kristen on May 16, 2005 13:35:32 GMT -5
Those are the days that I sit in front of the laundry room door with the dogs and kids (they run over there) when we hear the garage go up and Dad is home. He gets the picture.
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Post by CC on May 17, 2005 0:05:58 GMT -5
WELL it appears this "OFF DAY" was due to being sick Chris is running a temp and generally not feeling well and according to the PED has a virus of some kind Although Chis will now tell me "sick, Doctors" he doesn't do it right away BUT he is getting closer, soooooo thats GOOD RIGHT?? CC
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Post by Jessie on May 17, 2005 3:22:45 GMT -5
This is from the book "Understanding How Children with Down Syndrome Learn":
'Realize that unusual behaviors and/or situational responses, i.e., putting head down, crying, and resisting instruction may signal an oncoming illness.
- A significant change in behavior may be the only indication of an oncoming illness.
- Some children with Down syndrome have exceedingly high pain thresholds. For example, strep throat may be well developed in a child who is unable to recognize symptoms.
- Often the child with Down syndrome may be quite ill prior to the onset of recognizable physical signs such as fever of vomiting.
- Children with Down syndrome may not know how to communicate the abstract feelings of a sore throat, nausea, dizziness or the chills.'
It also goes on to say the they require additional recovery time, even if the symptoms have disappeared, for their stamina to be back to normal.
All of this is so true for Jason. He has had an ear infection before and we didn't catch on that he was sick until it was very bad. I don't know if he just has a high pain threshold or simply doesn't know how to tell us. Probably a combination of the two.
Sorry Chris is sick, hope he gets over this soon!!!
Jessie
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Post by CC on May 17, 2005 19:46:54 GMT -5
JESSIE girl THANKS sooo much for shareing that Hmmmm not sure I have ever heard of that book Hmmmm will have to look it up OMG its fits Chris sooo much, OMG I remember once bringing him to the Docs a while back and it turned out he had BOTH ears infected and STREP and I was SHOCKED to find that out I actually only took him cause he was acting "Off" One thing I have learned bout Chris is if he complains of pain or acts as if in pain then OMG he must be really hurting, cause YES he is one of those kids that has "exceedingly high pain thresholds" Now Kodi on the other hand, OMG if she scraps her knee the "Drama Queen" in her comes out and you would think she needed surgery LOLOL Again, THANKS for sharing that, I have to find that book. CC
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