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Post by wrblack on Mar 29, 2005 13:42:04 GMT -5
Just to add a bit to what TricaF already posted, from that www.nichcy.org/stateshe/or.htmsite, these might be among the places to start looking for some assistance: Councils on Developmental Disabilities Bill Lynch, Executive Director Oregon Council on Developmental Disabilities 540 24th Place N.E. Salem, OR 97301-4517 (503) 945-9941; (800) 292-4154 (in OR) E-mail: OCDD@ocdd.org Web: www.ocdd.orgClient Assistance Program Danielle Knight, Executive Director Oregon Disabilities Commission 1257 Ferry Street S.E. Salem, OR 97301 (503) 378-3142 (V/TTY); (800) 358-3117 E-mail: danielle.knight@state.or.us Web: www.odc.state.or.usPrograms for Children with Special Health Care Needs Brian Rogers, M.D., Director Child Development and Rehabilitation Center Oregon Health & Science University P.O. Box 574 Portland, OR 97207-0574 (503) 494-8362 Web: cdrc.ohsu.edu/State CHIP Program (health care for low-income uninsured children) Oregon SCHIP Oregon Department of Human Services Health Services: Office of Medical Assistance Programs 500 Summer Street, N.E. E49 Salem, OR 97301 (503) 945-5772; (800) 527-5772 (800) 375-2863 Web: www.dhs.state.or.us/healthplan/app_benefits/schip.htmlHTH -- Bob
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Post by kellyds on Mar 29, 2005 16:45:21 GMT -5
Thanks, everyone. You've given me a lot of places to start looking. I didn't have a clue where to begin.
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Post by laurasnowbird on Mar 29, 2005 20:54:35 GMT -5
Under Title V of Federal Law, each state has a Maternal and Child Health Bureau, but it can be called different things from state to state. One of the features of MCHB programs is the Children with Special Health Care Needs (CSHCN) program. In Oregon, the Maternal Child Health Bureau contact is: MCH Contact Katherine Bradley, PhD, RN Administrator Office of Family Health, 800 NE Oregon Street, Suite 850 Portland, OR 97232 503-731-4398 503-731-4083 fax Email: Katherine.Bradley@state.or.us Internet site: www.ohd.hr.state.or.us/ccfh/The Children with Special Health Care Needs contact is: CSHCN Contact Robert Nickel, MD Director Child Development and Rehabilitation Center P.O. Box 574 Portland, OR 97207 (503) 494-6961 (503) 434-6868 fax Email: nickelr@ohsu.edu Internet site: cdrc.ohsu.edu/In Michigan, the program is called Children's Special Health Care, and it had a few choices for awhile, one of which is the KidsCare that Justinsmom referred to. Because of cuts in funding last year, we don't have those ala carte options anymore, we just have the basic plan for everyone. (Unless you were already in KidsCare like Jackie's Justin) For anyone else who is having difficulty paying for specialists' bills, please look at this website, and strongly advocate to get your child on your state's version of CSHCN. This page will direct you to the contact information for every state: performance.hrsa.gov/mchb/mchreports/link/state_links.aspWe were rejected three times before Ethan was accepted on the fourth try, and the diagnosis that finally qualified him was pretty simple, serous otitis media (fluid in the ears!). Surprisingly, once he had the coverage, they began to pay a number of things I never expected, like speech therapy. We have an excellent private insurance, but they have never paid speech therapy. CSHCN is for specialty care for kids with chronic medical problems, and many of our kids qualify. Ethan eventually also qualified for his reflux, as he sees a gastroenterologist for his treatment. In Michigan, and probably elsewhere, the key is to have the care provided by a specialist. CSHCN does not provide routine care. A heart condition requiring surgery is an automatic "in" for Michigan, and I would imagine it would be the same for you, Kelly. Our income was too high to qualify for Medicaid, and we were above the income to get CSHCN for free, but we only pay a small amount per month to have this insurance. It was time intensive to get him the coverage, but oh so worth it!
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Post by momofrussell on Mar 29, 2005 21:41:25 GMT -5
www.dhs.state.or.us/spd/qa/home.htmI think Tricia posted this link but this link is for the disability waiver program for medicaid. Each state has a Katie Beckett type waiver for disabled kids for medicaid and it is not based on income, it is based on disability. But each state does set it's own criteria... so you'd have to double check the criteria for Oregon. www.cms.hhs.gov/medicaid/waivers/ORwaiver.asp?state=OR Or that link may help. I do know that when we moved to IL, and I asked our local medicaid/SSI office, they did not know WHAT the heck the disabiltiy waiver and Katie Beckett waiver was.. which was sad. I had to go around them and find it... but we didn't qualify through their criteria. I also agree with MB, that there should be someone higher up in the insurance company that could possibly help you. I would think that if the ONLY good doc is out of area, then they should try to help pay for more then 60%. Good luck.... maybe we can all put out heads together and find something for ya! I forgot to mention that anymore, most if not all hospitals have payment programs for those of us that fall in the middle of the road... we don't qualify for extra aide but we can't afford to pay one lump some out of pocket. I know we have done this more then once at STL's children's hosp. They can't deny you services or tell you that you CAN'T make payments like they use to. A.
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Post by paulinemjc on Mar 30, 2005 10:18:26 GMT -5
Thank heavens for the National Health Service here in the UK, our medical and surgical treatment is free for everyone. Nicky is totally tube fed and his feed alone costs around £20 a day, if I didn't get this on prescription from the doctor I don't know how I would be able to pay for it. Pauline UK.
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