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Post by laurasnowbird on Jun 2, 2004 21:53:41 GMT -5
OK, I've been meaning to post this for a little while. I got this from another list:
"Hi,
I've just received info from another list that 2 (soon to be 3) videos are available at NO COST to parents anywhere in the US and low cost ($7.50)to professionals in the US. If anyone's child has apraxia, the therapists presenting on the videos are the best in the field (David Hammer, Pam Marshalla and Don
Robin...Don is our SLP and we love him to pieces!)
Parents can email their orders including name, address and phone number to dlc@pattan.k12.pa.us. I've just sent mine in so no idea how long it takes to get the videos. Professionals can get a video request form from the site and place their orders or send checks to PATTAN Pittsburgh/Attn:Distance Learning,
3190 William Pitt Way/Pittsburgh, PA 15238.
The videos that are available are:
1. "Apraxia of Speech in Young Children" with David Hammer, October 18,
1997.
2. "Beyond Oral-Motor Therapy in Developmental Apraxia of Speech" with Pam
Marshalla. April 8, 2000.
3. "Childhood Apraxia of Speech: Clinical Decision Making" with Donald
Robin PhD, April 2, 2004. "
Me again, LOL. I sent an e-mail to the address listed above, and very shortly after received the first two videos for free! Prior to receiving them, I received a very nicely worded e-mail explaining that they had not anticipated the demand and were making more copies. A couple of weeks later I got the first two. It has been over a month since the first two came, and then in today's mail came the third one, and I never had to make a second request! I am so impressed! I have only had the opportunity to watch part of the first one (they're long, the first one is a workshop, but I got good information from it) so I can't tell you how good they are, but I have heard of the people doing the workshops, sooooo, what have you got to lose?
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Post by christie on Jun 2, 2004 22:30:22 GMT -5
THANKS soooo much for sharing, LAURA  I am sending in my request for these videos NOW  You know how speech is what rules around here, but just have to share a funny Character moment with you. Today Chris asked me for something and I said to him "Okey Dokey" (sp?) and without skipping a beat Chris says back to me "Dokey Okey" LOLOL and let me add it was clear as a bell, Hmmmm he never said that before was just too funny CC |
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Post by laurasnowbird on Jun 2, 2004 22:38:13 GMT -5
LOL, Christie, I got a giggle out of that one! That was a creative answer - that little guy of yours is on the ball! ;D
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Post by meghans_mom on Jun 3, 2004 8:27:47 GMT -5
Laura - thanks for the info - i requested my videos this morning. will also be passing the info onto MM's therapists.
Meghan's speech is progressing but she still has a long way to go. we meet w/ Jen Price the end of the month so am looking forward to that!
thanks again. laurie
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Post by PaigesMom on Jun 4, 2004 19:06:08 GMT -5
Laura,
Thanks so much for this information - Paige has FINALLY been diagnosed with speech apraxia and articulation disorder - as an actual diagnosis. This enables her to get WAY MORE speech than what the IU would have originally given due to the DS diagnosis. I mean WAY MORE, she was originally getting 2 small group speeches a week in preschool and now once I've presented the letter they are going to give her the 2 small groups but add THREE half hour individual sessions to that. I am so excited.
I sent for the videos - have not recieved an email. Has anyone else received a confirmation after you requested yours?
Debbie
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Post by meghans_mom on Jun 4, 2004 20:45:14 GMT -5
Debbie - I sent my email request yesterday AM and by the afternoon rec'd an email back saying they were making more copies and would mail them when they were ready. Can I ask who dx'd Paige w/ Apraxia? Her SLT strongly disagrees with me (as do her PT and OT) but we're going to see another therapist the end of the month and we'll see what she says. although I am thinking it's *not* apraxia..her speech has really taken off these past few months now that she is around kids who talk a little more. I do recognize many of the signs of apraxia in her but since I'm no professional, who knows?! it's all so confusing  laurie |
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Post by laurasnowbird on Jun 4, 2004 20:45:56 GMT -5
Debbie,
I think the only reason I got an e-mail is because they were temporarily out of copies of the video. The third video wasn't completed until later this year, and they didn't send an e-mail letting me know that it was coming, it just showed up!
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Post by christie on Jun 4, 2004 22:27:20 GMT -5
DEBBIE, I sent my request for the video's very late at night and the next day I got this response...
"I have to place a order for more videos with our duplication company, I will get a copy of the video to you as soon as I get them back from the duplication company."
LAURIE, my guy was Dx as Apraxia by his Kindy ST and his private ST also. Both saying the same bout Chris and neither knowing each other or speaking together bout Chris. Even now at 11 his new ST says the same thing bout Chris. I think a ST that is experienced with Apraxia would be able to tell you for sure if your daughter was truly Apraxia or not.
Chris even with this and being 11 years old continues to improve in the speech area, just slow going for us but as long as there is improvment I am ;D
CC
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Post by meghans_mom on Jun 4, 2004 22:59:33 GMT -5
CC - our slt is really excellent but she's young, and i don't know how much direct experience she's had. But she's terribly knowledgable and works so well with meghan. my PT, who i also love, her mom is an slt, one of the best around here, from what I'm told...and they all agree it's not apraxia. I think most of their thinking stems w/ MMs' lack of poor motor planning...it's one of her strong points, always has been -- but i don't know how much MM talks for them, because she's super quiet in school. And I think I recall you saying Chris has really good motor planning skills as well? I mean, if you look at the definition, it says it may go along w/ poor motor planning, but lack of this does not exclude apraxia.
But then again, it may just be low tone or poor tongue positioning....
Meghan can't say "D" or "T" she positions her tongue in the wrong spot and alot of her "D" words (eg- Dog is "Gog", duck = guck) come out wrong. She also can't say double constantant words that have more than one syllable. Little, waffle, balloon, umbrella. These words all have 3 or 4 syllables. bal-la-la-laoon. wafuhlululul.
It's funny, I was talking to the SLT (anne) today and we were remarking how well MM is coming along, and she's coming w/ us to connecticut to see the other speech specialist and anne thinks that this woman is going to tell me meghan is further along than most kids her age. (w/ ds).
but, i'm still interested in what the other therapist has to say -- if i'm not right about the apraxia, hopefully she'll still be able to give us some good tips and pointers on how we can all help meghan improve her speech.
thanks for letting me ramble here :-)
laurie
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Post by PaigesMom on Jun 5, 2004 17:17:50 GMT -5
Laurie,
The question of apraxia has always been there with Paige. Since Paige was in EI her ST has said that "most children with DS have apraxia and articulation disorder" - I was told the same thing by a private SLP. They both told me that BECAUSE this is common in kids w/DS and because the cognitive ability is less than the numerical age, they ususally dont work on THAT, per se, until they are about 6-7 years old, when the kids can understand when told to try and place their tounge in a certain place in the mouth. Basically they told me that it's a given that our kids will have this, and that regular speech therapy up until that age (6-7) should be enough, without any specialized treatments. I have no idea on how true this is, but Paiges ST at preschool has also basically concurred with the others. Because they needed a specific diagnosis from a medical professional they could not work on the apraxia and articulation disorder specifically, they were just doing across the board speech therapy.
If you ask me, it's just another way to not give all of the services our kids need, because it costs $$$, but I took her to the developmental pediatrician, had a complete evaluation done on her, separate and apart from any evaluations done in Early Intervention and Preschool. She said that the other SLP's were right about how I had to get service for it, she said Paige definately had it, and wrote up an evaluation report for it. I had to present the ER to the teacher, who presented it to the head of speech language therapy for early intervention preschool in our county and present it to her current SLP and they decided how much more speech she would get based upon her scheduling. It just so happens, Paige fell in at a good time and she was able to get so much more.
That is basically how it went. I am however excited about these videos. I'm thinking I might need to put in another request because I never received an email back from them.
Debbie
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Post by PaigesMom on Jul 9, 2004 12:00:04 GMT -5
Ok everyone, I cant believe this, Just got back from the park w/my kids and right in front of my door was a BIG package........I was thinking, what the heck is that....and at the same time, oh goodie, who is sending me a present, he he he..........  It was ALL THREE speech apraxia videos AND 3 lengthy booklets that went with them. I am sooooooooooo excited. Did anyone else get theirs yet, and if so, did you read/watch yet?  Debbie |
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Post by meghans_mom on Jul 9, 2004 15:43:29 GMT -5
Debbie - I rec'd the first video yesterday but no others but hopefully the rest will arrive with-in the next few days. I'm going to watch #1 this weekend. I glanced thru the packet and it looks great. Thanks for all your input and experience with Paige. We took MM last week to see another ST and she said Meghan has articulation problems...that is, her jaw is EXTREMELY weak and she can't position or use her tongue independently of her jaw..so she's writing us up a whole report and series of exercises to do to help strengthen the jaw and work on the tongue as well. She never mentioned apraxia specifically, which led me to believe that MM didn't have apraxia but I'll see what her final report says and if she doesn't mention it I'm going to email her and ask her. I went thru the apraxia criteria last week and while 6 months ago meghan had over 1/2 the 'symptoms' (for lack of a better word) now she only has one...so I'm really confused now :-D I guess we'll do the exercises for apraxia here at home whether or not she has the diagnosis...can't hurt is all I know. laurie |
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Post by christie on Jul 9, 2004 19:48:48 GMT -5
I also got my package yesterday BUT only received one video in the package  Haven't looked at it or the literature yet but plan to this weekend
CC
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Post by MaggiesMom on Jul 9, 2004 23:35:50 GMT -5
Hey! I got the first video today! I hope to get to it this weekend too.
Thanks for the information.
Robin M - Maggie's mom
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Post by Deborah on Jul 10, 2004 7:00:58 GMT -5
I received a video yesterday also..but only 1. Now I have to make time to sit and watch!!!!
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I am sending in my request for these videos NOW 
Haven't looked at it or the literature yet but plan to this weekend