Hi Everyone - my first post here... desparately trying to come to the all important decision about putting my daughter on nutrivene, or at least getting her on some type of vitamins. Would really appreciate hearing from any and all of you - those who ascribe to it and those who don't and why. Money is tight. I will most likely be getting Grace on something (she's been put on her first antibiotic today for a cold that won't quit), and I guess the main concern is what. Greatly appreciate your input!
Jamie, mom to Jared (5 yrs) and Grace Marie (14 months) w/Ds
Post by momofrussell on Jul 26, 2004 18:09:16 GMT -5
Welcome Jamie!!! I am Adrienne. I have 3 kids, Regan 11, Russell (ds) 6, and Reece 3.
Well, I am not a knowledgable person with the Nutrivene. Sorry. Russell is 6 and won't take any vitamins so we give him a powdered formula with Phytonutrients in it. Mita-mins. It tastes like juice. My husband and I are firm believers in Phytonutrients for the body and since it's a powder, it's the only thing Russell will take.
I noticed your doc gave your daughter Anitbiotics. You said a nasty cold? Was there a reason for the Anti's? Sorry to sound like I am questioning your doc, Anti's won't do anything for a cold, just for ear infections, ect... so I was just curious. I would hate to have your daughter's body build up resistance to anti's for when she really needs them...
Sorry just being nosey I talked to the doc today about Russell's NASTY cold that has turned for the worse. But we (us and the doc) won't give anti's unless there is an ear infection or something that warrants it. I have had a doc tell me one time that she would be happy to give my oldest anti's just because she had a fever for a week but nothing else was wrong. I said no.
Good luck in your quest for vitamins. Ask your doc about them and others and make sure it's the proper nutrients you want to give your daughter, not just what someone is selling you... if that makes sense. I know some mom's who give it to their children NOT for the claims that are made, but for the nutritional value. I personally think any vitamin is better than none. And it can be in your price range LOL. I know that Nutrivene stuff IS expensive. I know there are HapCaps by Dr. Warner too.. if you are looking at all options. Or, just a plain old good dose of PoliVysol is good too! We did that until Russell wouldn't do it anymore. And he doesn't do chewables, so powder we do!
Welcome, I am Michele and mother to Kaylyn 12, Kourtney 5 (DS), and Jason 10 months old. When Kourtney was 3months old I started her on Nutrivene and we did the day time formula and the night time formula, it cost me around $100.00 every 2 months and I will say that I am not sure that it did anything for her, at about 7/8 months old she got to the point where she wanted nothing to do with it, at that time it was all powdered and you had to mix it with things, and we really ran out of things to mix it in, she knew the smell of it and it was bad . I finally asked my Ped. about what I should do and he advised me that it was nothing more than vitimans and he realized there were a lot of amino acids and antioxidants in it, but if she would not take it don't force her. This man was the chief of staff at All Children's Hospital for 2 years and he never advised me to start the Nutrivene -D in the first place. I will say that I quit using it and she never regressed or had any problems with getting sick or anything like that. Now I just give her a normal ole vitiman Flintstones and she is fine hardly sick....Knock on wood LOL.... I say it is up to you and your husband....I really did not notice anything at all and it is not cheap, and thank the one upstairs that my in-laws were paying for it then.
Good luck, Hope to hear more about you and yours Michele
There is also something called MSBPlus and it is available in Canada. I think it is a bit cheaper than Nutrineve but is supposed to be the same. I am considering putting my son on it but am not sure yet. Here is the link for it.
Allison mom to Derek (5, DS AVSD repair, patent ductus repair, coarctation repair, 2 sets of tubes, sub-aortic stenosis repair, in remission from Leukemia type AML, epigastric hernia repair, Konno procedure and aortic valvotomy, awaiting the Ross procedure
I am Jeannette and I have an 8 1/2 month old baby girl (MeKyah)whom has Down syndrome. We started nutravene about a month ago. We're using the daily supplement and enzyme. We also have the nighttime formula but have not started her on them yet. We immediately saw a change in how often she makes a bowel movement. She was only going every other day and sometimes she had a time doing it but now it's every day with a breeze. We feel this is because of the vitamins.
She is also starting to do a lot of other things, like sitting unassisted, rolling both ways, taking steps while I hold her hand. Now I can't say if this all came about because of the nutravene or simply with age or a combination of both. All I know is she's developing fairly well. She also says 'da da' but she started saying that when she was 6months. I think it’s on an individual basis as far as how much or how little it helps. I've heard parents say it helped, less colds, hair thickening etc and then others say it was just a waste of money. Our genetics counselor said it was okay to give it to her and that it doesn’t have anything in it to hurt her so we thought at the most we'll be out of the money but her health will not be jeopardized.
How old is your daughter? You mentioned being on antibotics for a cold, well my baby girl has had nasal conjestion 3 times that required antibiotics and I don't think she would have gotten over them without it. Since she has been talking the nutravene, she has not had it since. Again, I can't say if it's because of the vitamins or simply her age, as she grows her nasal passage gets larger so that could easily be it.
Good luck on your decision. I look forward to hearing more about you and yours.
hi Jamie I have to say I do love the name Grace marie,it has a lovely ring to it anyway I heard much about TNI ect., and did not know what to do for the best after a lot of thought I decided to give it a go(to be honest I just felt I needed to do something more for Chris if you know what I mean)anyway I am now glad I made that decision Chris has been on TNI for a few years now and also omega 3 oil which is so benificial . my advice to you would be to go to DSRF web site,and get all the up to date info,I could give you so many resons to give Grace TNI ,but I think it best you read about it from the experts. good luck chis M
Thanks for the responses, everyone. Chris - what is the DSRF website that you mentioned? I thought I'd found every website possible about TNI, but maybe I've missed one?!
I went to the health food store at lunch and bought some liquid acidolphilus for Grace as well as flax seeds. The girl told me the flax is easier to get down them than the fish oil and the seeds are fresher than the already ground stuff. Now, I just need to get her on the rest of the stuff (nutrivene)!! And hopefully her repiratory problems will be fewer and short lived!
Jamie, mom to Jared (5 yrs) and Grace Marie (14 months) w/Ds
I see you went to a health store , it may help you to know that is not necessary as you can get TNI and flax oil and fish oils from Beannachar camphill community which acts as an outlet for supplements for people with d.s . Jamie if you need anymore info please dont hesitate and e-mail me and I will give you any info you are needing. chris m.