Post by paulineuk on Aug 8, 2004 3:17:37 GMT -5
My son, Nicky, is 17 today ;D. When he was born he was not expected to reach two years old due to an inoperable AVSD and severe pulmonary
hypertension. He went on the develop Eisenmenger syndrome, chronic lung disease and it totally tube fed via a gastrostomy. Up until around the age of 7 he was close to death on a number of occassions so each birthday has been a wonderful bonus and we have high
expectations that he could live until his later 20's or even early 30's. He is a fantasic young man, always smiling and well behaved, he is one of the less able boys and a joy to all his family. Even though he is non verbal he has lots of friends who understand what he
wants through his gestures. In lots of ways he is a typical teen but in other ways still a toddler and he will always be my 'baby'. I hope the weather stays good as we have a big party planned in the garden later today
Pauline UK.
hypertension. He went on the develop Eisenmenger syndrome, chronic lung disease and it totally tube fed via a gastrostomy. Up until around the age of 7 he was close to death on a number of occassions so each birthday has been a wonderful bonus and we have high
expectations that he could live until his later 20's or even early 30's. He is a fantasic young man, always smiling and well behaved, he is one of the less able boys and a joy to all his family. Even though he is non verbal he has lots of friends who understand what he
wants through his gestures. In lots of ways he is a typical teen but in other ways still a toddler and he will always be my 'baby'. I hope the weather stays good as we have a big party planned in the garden later today
Pauline UK.
&
Susan, Proud mom of Michael (32), Justin (25) Emily (22ds), and Jordan (20).
