I know in the past I have heard that our children need neck x-rays..... Erin needs one now or they won't let her trot on her horse. I am also worried because she loves to do somersaults.... I am feeling bad that I haven't done this before & am trying to STOP her sumeraulting until I know she is clear !
My question is:
What exaclty is the "name of the problem" ? What do I tell the doctors to X-ray.... should I have results sent to DS CLinic at our hospital....who I haven't visited in a couple of years....should I let them make the appointment ? Or will someone local be just as knowledgable ?
I could & should ask my peditricain all these questions... but again..... I don't know what you call the x-ray area & don't want to ramble on & on as I am doing here !
Thanks ! in advance for any & all help you can offer !
Mom to Connor (20) Ty (16) and Erin (13 with DS & Autism dx)
Post by Ericsmomma on Sept 20, 2004 7:12:51 GMT -5
The x-ray is for Atlantoaxial Instability. I just had Eric's done this May. You could ask your pediatrician to order this. It didn't take very long to do, and we did it at our local hospital. Eric's x-ray was fine. There is another post about this from about a month ago...if you scroll down, its on about page 3.
Post by laurasnowbird on Sept 20, 2004 8:42:53 GMT -5
Seems like there's always one more thing that we think we should have known, right? LOL. Relax girlfriend, you're the mom, not the doctor. This article has helped me schedule all the screenings that are recommended for kids with DS. www.dsrf.co.uk/Health_Issues/Health_guidelines1.htm
I would just go ahead and schedule any of the things that were for "younger" ages that your doctor failed to mention to you. Make sure that you look at all of the pages that are included in this document. I printed one so that I always have it on hand. THis is the most recent one that I'm aware of.
Laura, mother to Nicholas (27), Victoria (15), Ethan DS (11 years) and Aidan (7 years)
"The true realist is the person who sees things both as they are, and as they can be. In every situation there is the possibility of improvement; in every life the hidden capacity for something better." Lester B. Pearson
Post by MaggiesMom on Sept 20, 2004 20:39:14 GMT -5
Maggie just had hers done for the 3rd time! The first time the ding dong pediatrician we have ordered the wrong set of films. The 2nd time, they didn't the a clear shot for whatever reason and the 3rd time they said it was fine.
PTL! It's really hard holding that kid still for all those pictures! She hates it.
Valentine's Day is a special day at our house...It's the day we learned about love! Maggie 2-14