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Post by donnita on Sept 7, 2006 11:17:04 GMT -5
Cassandra's Celiac screen came back positive today. We are now waiting for GI Doctor to call and set up another test. While I wait, I would like to know which gluten-free cookbooks are the best for picky children, and which ones I shouldn't waste my money on. There are several out there, but I don't need to make "fancy" stuff for Cassie, just normal picky-eater stuff. She basically lives on chicken nuggets now, which will have to change. So, any recommendations?
Thanks,
Donnita
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Post by Connie on Sept 7, 2006 12:28:59 GMT -5
Donnita,
I wouldn't worry to much right now. Collin had a positive Celiac Test about 1.5 years ago and we went to see the GI doc. But, while I was fighting with the insurace company about coverage it came time again to test and this time he was normal so I never had the biopsy done.
There are a lot of things that can trigger a positive result when actually it's not ie...things they eat or a reaction to something completely different.
Prayers,
Connie
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Post by hannahph on Sept 7, 2006 14:55:40 GMT -5
Wow, how ironic, I just got a call that Hannah tested positive also. She is completly symptomatic though, that's why we tested. I am beside myself and don't know where to start. I ahve an appointment Monday with her Dr and I will let you know what I find out if it is usefull at all.
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Post by donnita on Sept 7, 2006 16:18:02 GMT -5
Heather,
Cassie has no symptoms and her GI appt probably won't be until October, so I would appreciate any info you can share!
Donnita
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Post by donnita on Sept 7, 2006 17:15:16 GMT -5
Connie,
I am not really worried, whether she has it or not, but a little preparation won't kill me KWIM?!?! It will take a lot to wean her off of chicken nuggets!
Donnita
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Post by Emilysmom on Sept 7, 2006 18:47:44 GMT -5
Donnita,
I'll hope and pray that Cassie has the same experience as Emily and Collin had. Em tested positive (1 out of 3 of the tests did anyway) and we didn't exactly hurry to get to the GI doc. Before long, it was time for the next year's test and it was completely negative. So, at least for now, we don't have to think about gluten free lives. I know this isn't your question........but wanted to let you know I'll be hoping that Cassie can continue to eat those chicken nuggets!
Susan
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Post by wrblack on Sept 8, 2006 16:25:46 GMT -5
Just FYI www.iansnaturalfoods.com/entrees.htmlWHEAT FREE! GLUTEN FREE! Chicken Nuggets Perfect for kids of all ages with food allergies. No wheat, no gluten, no casein, no milk, no eggs, no nuts and no soy. Tasty all white meat chicken nuggets with no antibiotics or growth hormones. GO SKINLESS! www.dietspec.com/ecommerce/frozen/catalog/product_info.php?products_id=376370 - Gluten Free - Chicken Nuggets [6370] $8.99 6370 - Gluten Free - Chicken Nuggets Click to enlarge BREADED CHICKEN NUGGETS FULLY COOKED WITH NO PRESERVATIVES / LACTOSE- & CASEIN-FREE Ingredients: Chicken meat, battered and breaded with rice flour, water, yellow corn flour, salt, tapioca dextrin, corn starch, spices, onion powder, garlic powder, paprika, extractives of paprika and turmeric, natural flavor, autolyzed yeast, turmeric, beet powder, soybean oil, malic acid, lecithin, lemon oil. Fully cooked in soybean oil. Nutritionals: Serving size 5 Nuggets (92g) ][ Servings per package 5 ][ Calories 190 ][ Calories from Fat 90 ][ Total Fat 10g ][ Saturated Fat 2g ][ Cholesterol 30mg ][ Sodium 300mg ][ Total Carbohydrates 15mg Dietary Fiber 2g ][ Sugars 1g ][ Protein 9g ][ Exchanges 1 starch, 1 meat, 1 fat ][ Contains : Soy and Corn. And I'm sure there are others. |
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Post by momofrussell on Sept 8, 2006 16:52:34 GMT -5
Good luck Donnita!!! I know nothing about this. I do know a child on another board just recently got DX'd with it. Had no symptoms... blood work came back positive.. had the biopsy and yep.. has it.  I know changing foods for Russell would be a pain to do so I am with you on JUST wanting to be prepared.. JUST in case. What part of the chix nuggets are the gluten? The chix or breading? Breading? Was thinking the Morning Star veggie ones would be ok? I know NOTHING about gluten free... I just know I think Russell eats ALL gluten and I'd be crying if he had it!!! But.. I'd have to get the tests done to find out LOL. HUGS!!! A. |
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Post by Kristin on Sept 8, 2006 23:18:48 GMT -5
I like the Betty Hagman's gluten-free gourmet series. They have been the most useful. Another good one for kids foods is "Incredible edible gluten-free food for kids" by Sheri L. Sanderson. It has a recipe for chicken nuggets that's pretty good. Once you get started, it takes a couple of months to get to where the gluten-free cooking is "easy" and just part of your routine, so don't get frustrated. There are also some good websites with recipes and lots of products on the shelf.
Kristin, mother of Clarice who is gluten, casein, egg, and other foods intolerant
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Post by hannahph on Sept 9, 2006 19:39:55 GMT -5
Ok, I found the same geutin free chicken nuggets that Charies Dad was talking about. They had them right at the regular grocery store(Hannaford and price chopper) they are pricey though $5.69 for 13 of them. I am finding the geutin free food is SO expensive but there are ways you can cook geutin free and for cheaper. By the way Mcdonalds french fries are gleutin free but the nuggets are not. Some managers will make a grilled chicken happy meal though. i guess one of the concerns is about cross contamination from other sources such as toaster used to toast bread with gleutin, toothpaste , even play doh! A good site I found was Celiac.com they have a great forum with lots of ideas and list of items. Good luck. I know this is not going to be easy(or cheap) but it will be so much healthier in the long run!
A- the gleutin is in the breading. "naked"chicken is ok, but no maranade or stuff like that.
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Post by Chester on Sept 9, 2006 21:00:51 GMT -5
I just did a quick search to try to find out about celiac. It sounds like an "allergy" type of reaction to gluten? Pretty much what I found was what to avoid.
Does anyone have a short, easy to understand explanation of a positive celiac screen? What are the symptoms that made you get the screen....or is it something everyone should have done at some point?
Just curious (and being a bit lazy)
Let us know when you find out more about Cassandra. I'm hoping that it is a false positive too! But if not, looks like there is a ton of info out there, it'll take time to sift through it all!
Dawn
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Post by hannahph on Sept 10, 2006 6:56:11 GMT -5
Symptoms of celiac are diarreah, stomach upset, bloating, anemia, poor weight gain, failure to thrive. the list goes on and on. Hannah has been having stomach issues all summer prompting us to test her. People with DS are much more prone to celiac disease(10%) and even though it is not in the health care guideines it is now being recommended by many DR's that our kids be screened every three to five years. It is important because even if the child does not have symptoms it causes a host of probems including a higher cancer risk down the line.If gleutin is eaten it damages the vili in the small intestine, flattening them out and thus nutrients are not absorbed by the body leading to malnutrician and vitamin deficiency.
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Post by momofrussell on Sept 10, 2006 15:55:25 GMT -5
Ok. I was talking to another mom friend of mine who also has a child w/DS... and I am wondering.. do you ask for this screening (blood test) say when you do your yearly blood work? Like, you get the child's thyroid and CBC and they throw in a Celiac screening to boot? When we lived in CA one of our Ped GI's wanted to do a test but it was NOT the screening from what i understand.. or maybe it was and I misunderstood her.. but.. needless to say, Russell has never had a screening or test and he has had GI/Reflux issues for years. Should I be asking the next time we get a check up? Do I need to open another can of worms?? LOL
A.
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Post by donnita on Sept 11, 2006 13:50:53 GMT -5
I had Cassie's ped write a prescription for the screen, which is a blood test, and then gave it to the lab at the same time she had her blood work done for her thyroid, so she only had to get stuck once. Cassie's ped had never mentioned the screen, I asked for it because it is more common in people with Ds. Cassie has no symptoms really except for the bloated belly!
Yeah, A- I opened this can ofworms myself!
Thanks for all the replies!
Donnita
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Post by hannahph on Sept 12, 2006 9:17:23 GMT -5
Hannah is almost eight and had never been screened. I always asked her Dr about it and he said that she only needed to be tested if she had symptoms. I was ok with that. Now when Hannah started having al the symptoms and we dicided to test this DR said she had just attended a conference on this subject with one of the top celiac doctors(GI) and that DR said that all kids with DS should be screened every three to five years. I reay agree with Donnita that they should be screened regardless of symptoms. It is generally just the simple bloodtest although now I am getting conflicting opinions between two doctors in the same practice and we are retesting Hannah and sending her blood to the Mayo clinic to be sure. I am ready to jump off a bridge.
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&&Mommy to Griffin (96), Gray (97) Collin (00) enhanced and Lauren (02) the little princess.
&
Susan, Proud mom of Michael (32), Justin (25) Emily (22ds), and Jordan (20).
I know changing foods for Russell would be a pain to do so I am with you on JUST wanting to be prepared.. JUST in case.