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Post by dannysmom on Feb 19, 2008 21:11:11 GMT -5
We've had a few scares due to petichae...but thankfully every time he was just fine. Daniel gets them very easily and we've now learned that and I no longer rush him into the doctors to draw blood. I have been reassured by several moms that although our kids have an increased risk, it still is VERY rare for our kids to develope leukemia. Unfortunately, it does happen, but if it does.....our kids respond better to treatment than the children in the typical population.
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Post by samanthajosmom_12 on Mar 2, 2008 23:38:32 GMT -5
what age do they test for this? sue
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Post by naomid on Mar 3, 2008 5:43:04 GMT -5
Callum also regulary gets petechiae, usually when he's sick. I was always told that if the petechiae are above the chest then there is nothing to worry about, below the chest should be checked out with a blood test. We just do a regular yearly CBC with his thyroid bloodwork. The first time he got petechiae I completley freaked out (he was only a few weeks old) but now I know it's pretty common and just something that Callum gets.
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Post by hannahph on Mar 3, 2008 7:51:24 GMT -5
It's not a certain age. It should be routinely looked at. Usually when our kids have yearly bloodwork the CBC should be done just to screen.It's not like celiac disease or AAI. Leukemia can develop at any time just like anyone else.
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Post by rickismom on Mar 10, 2008 18:56:46 GMT -5
Leukemia in DS usually shows up by age 4. And the type they are likely to get--they have a better that average cure rate
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Post by sandi on Mar 12, 2008 22:34:14 GMT -5
Cassie had "transient" Leukemia, but went away at 3 months. They said it could come back around 3-5 years old. I hope it doesnt, but I guess we will deal with that if it comes.
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Post by joydiane on Mar 14, 2008 20:47:09 GMT -5
My son, Ibby, gets a CBC every 2 months and visits to Hematologist every 4 months because he had transient leukemia at birth so his risk is even greater than other children with DS. We have a hematologist in Houston who is great at explaining all this and what it means. (He has to reassure me every 4 months when we see him.) If I remember correctly, the older he gets the better his chances of it not returning. There are all sorts of stats on what age they are most likely to develop leukemia and when leukemia in children with DS becomes the same chance as anyone (I think it's a pretty early age, like 5.) This link gives a pretty good, simple overview www.ds-health.com/hemat.htm. You can also google DS and leukemia and get way more info than you can imagine. Hope that helps. Joy
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Post by jessjetland on Mar 14, 2008 21:07:41 GMT -5
Ok sam has never been tested and honestly that freaks me out a little. One more thing to add to the list. Thanks for the heads up
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Post by Gina on Mar 30, 2008 1:03:52 GMT -5
Ok sam has never been tested and honestly that freaks me out a little. One more thing to add to the list. Thanks for the heads up Ashton is 12, and her doctor has tested for it every 6 months for the last 10 years!!! She has always had a problem with piticia (I know I am spelling it wrong, but small reds dots on her skin, which can be a sign of the cancer) but it has never been a problem. But, yes, the tests can be very scary to say the least!
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