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Post by Jackie on Mar 1, 2007 18:36:28 GMT -5
I think Joan's advice is excellent and remember she is an expert in the field.
I posted earlier...to CC (I think) that having been on this path for over 26 yrs...the first advice (when asked) that I give new parents is the nutrition lecture. Em was born with all sorts of physical problems which we overcame early...but her primary problem since reaching mid teens has been obesity. It is far easier to keep the weight from ever coming in the first plance...than to try to get it off. I am sure most of us know that about ourselves too. ;D
If more pediatricians would warn parents of babies with DS from day one about this...then maybe more families would take heart and go the nutritious non fast food route. And I agree about keeping our kids active.
When Em was born she had 'failure to thrive'...coming into this world at 8.5 and six months later weighing only 9.3. All the while we were focused on getting her to grow...her neonatologist would just laugh and say.......one of these days you will be trying to get it OFF of her...how correct he was...LOL.
Even the 'string beans' with DS that we knew when Em was growing up are now sort of paunchy and need to lose.
Not an easy thing................
Jackie mom to Emily 26
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Post by Chris too on Mar 2, 2007 8:42:37 GMT -5
I really appreciate CC's post about DS and metabolism. It's a real eye-opener. I've never had to meter out my kid's food - I don't even buy sodas or snack cakes and they love all the healthy stuff (even snacks are mainly yogurt, string cheese, clementines and bananas) and are super active even in the winter. Stevie follows along with the activity level - she's even beginning to run!! She's lucky to have such sibling motivation. I think, though that she doesn't seems to know when she's eaten enough of those healthy things I'll let you know how the low-fat milk and no baby cereal diet works, and I'd still like to have some guidelines on how much of the healthy stuff she should get since she doesn't have a clue!
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Post by chasesmom on Mar 2, 2007 22:23:31 GMT -5
"(Krispy Cremes's don't really count towards processed foods....do they? ? LOL) " ROFL Leah.....of course they dont! But then again Chase and his aide think those disgusting 7/11 hotdogs count as protein....LOLOL so what do I know?? BTW...I never had a Krispy Creme till Susan gave me one in Ohio and man oh man they now have them all over here, can we say heaven? Renee....you ARE a good mom, never second guess that fact! It is hard, no matter what, she is at the age where they gain a litle but you are on top of it and it is getting warm and she'll be more active. It's going to be okay, you rock and so does she! hugs, Robin Chase's mom
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Post by alisonzmom on Mar 3, 2007 15:10:03 GMT -5
It's kind of funny that this topic has been resurrected so to speak. Tuesday evening our DS parent group is going to have a presentation by a developmental ped on nutrition and nutritional requirements in children and adolescents with DS. I'll be happy to share any insights I pick up with you all.
Alison goes on Monday for her 4 yr check up and I'm curious to see where she falls weight wise. Each visit her weight is one thing her doc and I look at pretty closely and so far her height and weight have been pretty good. I'm usually surprised by how much less she actually weighs than what I think she does based on her appearance ( she is one of those rolly-polly looking little kids, pudgy cheeks, little pot belly etc) and how heavy she feels to pick up. Hopefully I'll be pleasantly surprised again.
Barb
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Post by Renee' on Mar 3, 2007 23:28:03 GMT -5
Barb Looking forward to hearing what was shared with you.
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