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Sarah
Oct 18, 2008 11:09:28 GMT -5
Post by char on Oct 18, 2008 11:09:28 GMT -5
Our family has said Down syndrome from the day we found out that Abby had Ds. I know that Sarah Palin's sister has a child with Autism so possibly that is why she uses the more generic term.
Senator McCain may feel that Palin understands more than most because her sister's child is older so she's been associated with Autism for quite some time.
I sometimes think I support Sarah Palin and sometimes I think I don't. I'm not too sure she is ever going to get it right because I don't think I'm the only one who can't make up her mind.
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Sarah
Oct 18, 2008 12:42:14 GMT -5
Post by Renee' on Oct 18, 2008 12:42:14 GMT -5
I think he was saying that in the political world she knows more than most. When Lauren was born I knew a lot. I read my rear off, went to meetings and met several children with Down Syndrome. We also volunteered. I was only 22 weeks when I found out so I had a lot of time to become educated. I never had a problem saying Down Syndrome when she was born. I think Ms. Palin is only trying to keep everyone in mind. The fact is no matter what are children are facing we all have our battles and she is a great person to have on our side. He will grow up in his early intervention years in the White House.
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Sarah
Oct 18, 2008 23:40:49 GMT -5
Post by twinsplusone on Oct 18, 2008 23:40:49 GMT -5
I think that she probably does "understand these issues more than most". My daughter with DS is only 17 months old, but I probably understood these issues more than most, within months of finding out we were going to have a baby with DS. There are ALOT of people out there that have no clue. I'm sure you have all come across them. Some of the questions people ask me, or some of the "reassuring" things they say (I'm sure this falls under another topic). I'm kinda new here (to the website), and I'm sure most of you have had experiences that I have yet to encounter, but as for the rest of this crazy world, I definately understand these issues more than most.
Anyway, I am thankful for this place to come and read (which I have been doing long before I actually created a login). I kinda feel like I've been eavesdropping on the pros.
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Sarah
Oct 19, 2008 20:25:30 GMT -5
Post by Renee' on Oct 19, 2008 20:25:30 GMT -5
You mean the comments like "you knew while you were pregnant and you STILL had the baby?" There are so many people who are clueless. I am praying that should they end up in the WH more attention will come to including and educating our children and people in general.
Oh, last night at dinner a lady in our party said does she have genetic down syndrome or is she mongloid?
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Sarah
Oct 19, 2008 20:55:45 GMT -5
Post by sd112170 on Oct 19, 2008 20:55:45 GMT -5
W-H-A-T-!!!??
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Sarah
Oct 20, 2008 11:37:54 GMT -5
Post by elizabethsmom on Oct 20, 2008 11:37:54 GMT -5
Give that lady a hand.... I think that is probably the most ignorant thing I've heard so far...and I've heard some good ones!
Sheryl
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Sarah
Oct 20, 2008 15:12:59 GMT -5
Post by momofrussell on Oct 20, 2008 15:12:59 GMT -5
LOL Renee!! Ok, I think THAT is the funniest thing I've ever heard!!!! My response would have been........ "BOTH" That will throw someone off right? A.
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Sarah
Oct 20, 2008 17:36:32 GMT -5
Post by Chris on Oct 20, 2008 17:36:32 GMT -5
I think once you find out your child will be born with Ds you become an expert pretty darn fast. You may not have the depth of understanding that a parent who has a grown child with Ds has but you do have an edge on the general population. My guess is that Mrs. Palin did some indepth research when she learned her son would be born with Ds.
Chris
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Sarah
Oct 20, 2008 20:55:21 GMT -5
Post by sd112170 on Oct 20, 2008 20:55:21 GMT -5
I think she knows that it is important to be and have an advocate. I don't vote, so I am very open to it all. I do know I like knowing that there is a possibility of having some kind of support for us (all special needs).
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Sarah
Oct 21, 2008 5:54:44 GMT -5
Post by momofrussell on Oct 21, 2008 5:54:44 GMT -5
How come you don't vote?
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Sarah
Oct 21, 2008 14:18:30 GMT -5
Post by Alice on Oct 21, 2008 14:18:30 GMT -5
When my son was little I had problems to say out loud "Down Syndrome", I sad special child. Now I am fine with DS! ;D
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Sarah
Oct 21, 2008 19:16:21 GMT -5
Post by Renee' on Oct 21, 2008 19:16:21 GMT -5
"both" where were you Saturday when I was sitting across the table thinking "is this woman nuts?" The hubby said he was very proud because I didn't jump across the table and I educated her in a nice way.
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Sarah
Oct 21, 2008 19:28:28 GMT -5
Post by momofrussell on Oct 21, 2008 19:28:28 GMT -5
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Sarah
Oct 21, 2008 19:30:37 GMT -5
Post by Emilysmom on Oct 21, 2008 19:30:37 GMT -5
Before Emily was born, I remember referring to anyone I knew with Ds (there weren't that many people, but a few! And because I had gone through nursing school, I thought I knew a lot about it! LOL) by the term "Down's". I meant NO disrespect whatsoever. It seemed less "technical" or "medical" as "Down syndrome"...........that reminded me of a sickness. It wasn't till after Emily was born that I first heard of "people first language".
I know that had nothing at all to do with the original question., but the question reminded me of those first days/weeks/months of being Emily's mom. I had no problem saying "My daughter was born with Down's", and later I used the term "Down syndrome". I really do think Sarah Palin uses the more "generic" term of "special needs" in an effort to make sure people understand that she intends to help parents of ALL kids with special needs; not just parents of kids with Down syndrome simply cause her son has Ds.
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Sarah
Oct 21, 2008 20:07:38 GMT -5
Post by sd112170 on Oct 21, 2008 20:07:38 GMT -5
Momofrussel,
I haven't voted since Bush. I just feel that at the point of the president, they all step on the little man to get what they want. They do promise things that are not followed through. Maybe it is lazyness on my part. I just don't see spending time to vote, only to be let down. But I will say, this election has intregued (sp) me. Makes me want to vote. But being so early in the game(ds wise), it would be more of an emotional decision for me. I am republican at heart anyway. But I do like what Obama has to say. So this would be a tough one for me. I would be open to hear what ya'll have to say. Maybe it would encourage me to vote.
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