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Post by CC on Jan 14, 2009 23:34:46 GMT -5
yapping about this and just to kind to say so BUT the time is almost here and for some odd reason I cannot kick this fear of mine We leave at 6 AM tomorrow morning and the pace maker will be put in at 9 AM tomorrow. PLEASE PLEASE think good thoughts for Chris and the Docs doing it and for the after time that Chris will not freak and just go on as normal. I hope this is the last post I ever ever will have to post about Christopher and his heart issues. I tell you guys Chris is 16 and had issues with his heart from the beginning and I really always was the one in control. This time for some reason I am freaked and its not even really for the procedure its all for the after.... CC ~ who needs sleep YIKES 5 AM to get up just seems way to soon
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Post by Ericsmomma on Jan 15, 2009 7:00:20 GMT -5
CC, Of course you are freaked out! Anytime Eric has ANY type of surgery I'm a basket case! Maybe we know to much...maybe it is the lack of "control" of the situation....or maybe its because you're his Mom, and you hate to see him go through another "procedure". Whatever the reason, you feel what you feel. We can give you reassurance out the whazoo, but you problably won't be able to breathe normally till you see him in recovery. And I can fully understand your concern about the healing process....Eric is the same way. Anything "new" or different bothers him. It takes some time for him to adjust. We still have issues with the Hirschsprung's disease(not potty trained...no control), and some of the doc's may suggest another colostomy. Eric would have a huge problem with having a "bag" on the side of his abdomen! That would definetly be a major challenge!(maybe impossible). I think our kids with the dual diagnosis are much more sensitive to procedures than other kids with DS. But the bright side is that your Doc's seem to think Christopher may not notice the pacemaker. He may surprise you! And if he feels so much better with it, it won't be long before he is able to do all his "regular" things. I know my brother didn't have any restrictions other than the normal ones (like not playing football, or something that might injure his chest area). He scuba dived, swam, golfed, hunted, etc. It really was the best he ever felt. I will be thinking of you and your family tomorrow. Prayers for a speedy, complete, surprisingly easy transition for your guy! Hugs....
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Post by Emilysmom on Jan 15, 2009 7:45:58 GMT -5
Christie, Nope.......not tired of you at all. Through all of this, I've put myself in your shoes and wondered how I'd be handling it. It's totally natural that you are freaked out by this! ! ! I think it would be odd if you weren't very concerned, and I'm glad that you talk your feelings out with US!! I think that's one of the greatest things about Uno Mas.....that we can vent and cry to each other and share the happy stuff we go through also! You and Chris and Collin (and the docs and nurses you'll be dealing with) are in my prayers and will continue to be in my prayers until Chris is totally recovered and things are going well. Susan
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Post by lorraine on Jan 15, 2009 8:15:24 GMT -5
Awwww huge hugs CC and Chris It will soon be all over, maybe already is as I write this. I can't wait to hear that Chris is recovering well from the surgery and that he isn't freaked out by the pace maker. (were they going to hide it?). Loads of love Lorraine
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Post by momofrussell on Jan 15, 2009 8:48:37 GMT -5
CC.... sending you and Chris lots of love and hugs...... I know it's hard.......... keep us posted on his recovery!!
A.
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Post by Jackie on Jan 15, 2009 10:21:00 GMT -5
I will keep you in my prayers and hugs to all of you. Please keep us posted on how he deals with it.
Jackie
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Post by Jessie on Jan 15, 2009 10:27:37 GMT -5
It's 10:25, hopefully he's in recovery by now and things went as planned. We could never get tired of hearing you talk about Chris or his medical issues - that's what we are here for! It's amazing how we can all care about each so much and yet if we passed each other on the street we wouldn't even know it!! Hope you can post up later today after Chris is safe and sound at home. Hugs. Jessie
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Post by damarasmom on Jan 15, 2009 10:49:08 GMT -5
Can't wait to hear how GREAT he did! Thinking of you all now and just wanted to let you know!
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Post by laurasnowbird on Jan 15, 2009 12:15:32 GMT -5
Thinking of you guys today, and saying lots of prayers. Hope to have a good report soon!
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Post by Pat on Jan 15, 2009 16:11:18 GMT -5
((CC)) Sorry you guys are having to go through another procedure. Sure would be nice if it would the last!!! What did he say about hiding it? What if you tell him you'll go to WDW afterwards lol Sorry, couldn't help it. Just trying to cheer Christopher up. We'll be praying for all of you. Let us know how it goes. PatPat
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Post by Googsmom aka Jennifer on Jan 16, 2009 10:05:47 GMT -5
How was it CC? {{{{{HUGS}}}}}
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Post by pmjc48 on Jan 16, 2009 10:23:56 GMT -5
Hi Christie. I hope everything goes really well for Chris as I am sure it will. I know this is a very difficult time for you but please remember how lucky you are that there is something that can fix Chris and let him lead a normal life. Many of us are not so lucky . Will he be getting a trip to Disney after this
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Post by tiffany on Jan 16, 2009 10:43:15 GMT -5
CC, hugs to you! I hope all goes well and everyone is happy with the results! Sometimes our kiddos suprise us!
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Post by sd112170 on Jan 16, 2009 11:23:51 GMT -5
C C, This is a place for you to come and release. Please don't ever feel like you are a bother. If it wasn't for this site, I would have just dissolved into nothing. Everything will be fine, sometimes, we as parents; tend to fall apart in times like these. Hold steady. We will be praying for you, and Chris. HUGS HUGS HUGS!!!!
Let us know how it went. Can't wait to hear.
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Post by PaigesMom on Jan 16, 2009 11:44:04 GMT -5
CC - Still praying that everything has/is going well for Chris. Update soon!!!
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