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Post by MaggiesMom on Apr 29, 2006 21:38:45 GMT -5
Sorry I'm late posting on this...I'm still trying to get caught up from months, or has it been years, since I posted. Maggie has/had an ASD and PDA. Her PDA is still there, although it's miniscule. Her ASD had been about the size of a quarter since she was born. To everyone's surprise, it seems to have closed last year on it's own. The cardiologist said she didn't know of children Maggie's age, 4 at the time, who's heart healed. Most heal by the age of 2 she said. Since Maggie's a walking miracle...we're waiting a while longer to see if the PDA closes on it's own too. Why not?! If it doesn't close, the cardiologist said that it would be a snap with catherization to fix it. We like that a lot better than open heart surgery! Hope your baby does well and everything heals up on it's own. Maggie was fortunate in that her heart never gave her trouble after she left NICU at 2 months. Take care, Robin - Maggie's mom
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Post by MaggiesMom on Dec 28, 2004 0:29:19 GMT -5
I feel your pain!
We have tried everything as well, but what we find works the best is...a really special movie or tv show that she really likes, and we save it just for hair cuts. And, we've also cut it in the bath tub. She plays with shaving cream and toys while I cut away. It's not easy in the tub, but it worked.
The last time I got someone to cut it, the poor lady about had a coronary, but she cut quickly and talked to Maggie the whole time. She did the best job of anyone (besides me - lol ) so far. Her suggestion, cut it short so you only have to do it every so often.
Hope you find something that works. Can you ask Jason what it is that made him so scared of getting his hair cut? Maybe there is someway to reassure him that that won't happen again.
Take care
Robin M - maggie's mom
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Post by MaggiesMom on Dec 7, 2004 23:09:40 GMT -5
Wendey - Way to go Cooper! I know how thrilled you must be. Tubes made a huge difference for Maggie. With her permanent hearing loss, they don't take any chances when it comes to additional hearing loss.
I hope that everything continues to just go great for Mr. Cooper from this point forward.
Take care.
Robin M - Maggie's mom
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Thyroid
Nov 14, 2004 22:55:18 GMT -5
Post by MaggiesMom on Nov 14, 2004 22:55:18 GMT -5
Hey this is our thing! Maggie has the exact same readings and it freaked everyone out at first.
But, we got this great doc at UVA...William Clarke...who is like Mr. Rogers! And he said as long as she wasn't showing any signs of hyperthyroidism and her levels stayed within a certain range, not to worry. So we have it checked twice a year and it's always "abnormal" but never enough to worry about.
If it were me, I'd wait on the tests until someone can give you a darn good reason to do it. What's the worst case scenerio if you don't? (I don't know the answer to that one!) But what we've been told is..."if it ain't broke BAD, don't fix it!"
Good luck!
Robin M - Maggie's mom
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