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Post by YoshsMom on Dec 8, 2004 18:37:49 GMT -5
I just started using Eucerin with Yosh and its aworking great. Its kept his lips from cracking, too. My only problem is how much Yosh fights every time I put it on. He's really getting too strong for me.
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Post by YoshsMom on Mar 27, 2003 8:57:42 GMT -5
Kerri, Ken, and Yosh in Passaic, NJ. The Essex ARC has a program called Stepping Stones for kids with ds from birth to 9 yrs old. Yosh goes twice a week for an hour and gets ot, pt, and speech. What I love is being in a room with other moms/dads and babies while the therapists see 1 or 2 kids at a time.
The Judy Center is an evaluation/referral center at Hakensack Hospital. They see your child once a year and keep comprehensive medical records which follow him to adulthood. Dr. Fred Hirschenfang is fantastic. ;D
Also , register with your local Dept of Developmental Disabilities for help paying for things your insurance doesn't cover.
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Post by YoshsMom on Dec 2, 2004 18:38:17 GMT -5
Thanks for listening everyone. DH called my folks and they weren't nearly as mad as I was. He's worked something out with them and I'm staying out of it. I'm glad its over 'cause I really hate being mad at him.
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Post by YoshsMom on Nov 30, 2004 6:26:18 GMT -5
I am so angry at DH. My parents offered us a really generous chanuka present, a new computer. They gave us their credit card number and said to order what we wanted, up to $1000. Well, without telling me, DH spent $1600 and its already shipped.
My parents have been wonderful to us. They help support us so that I can stay home with Yosh and they pay for anything else he needs that we can't afford. DH used to be uncomfortable taking money from them and now he's taking them for granted. He's promised to talk to them, but I'm just so hurt and angry. He'd really hate it if he knew I was talking about this here, but he never visits this board and I have to talk about it. I don't get angry easily and I usually get over it fast, but I'm not sure I can forgive him until he makes it ok with my parents.
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Post by YoshsMom on Dec 2, 2004 18:45:47 GMT -5
When I was teaching, I saw the worst and reported many parents. I've had 2 students removed from their home because of my report.
I don't know what I'd do in public, but I think if Yosh was with me I'd keep my mouth shut. There are a lot of crazy people out there and a situation can get out of hand before you know it. I'd be afraid for my own safety.
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Post by YoshsMom on Aug 29, 2004 17:50:08 GMT -5
Thanks Alice, but I can't log in. I keep getting error messages.
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Post by YoshsMom on Aug 29, 2004 14:39:51 GMT -5
Hi, I'd like to post some pics of Yosh, but can't figure out how to get on the phto gallery. I registered, but did not get an activation code. Any help would be appreciated.
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Post by YoshsMom on Jan 15, 2003 20:58:20 GMT -5
I'm trying to put a picture of Yosh in my profile and all I get is a red x. Please help
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Post by YoshsMom on Jul 22, 2005 17:43:25 GMT -5
This was one of the most incredible books about autism I've ever read. The author, Elizabeth Moon, has and autistic teenage son. The book is written mostly from his point of view and it really seemed like I was experiencing the world as an autistic person might. It's a sci-fi book, but doesn't feel like one. The only futuristic elements have to do with a possible treatment for autism and whether the main character should take it or not. This was another book I just couldn't put down.
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Post by YoshsMom on Jul 8, 2005 14:43:18 GMT -5
Debbie: There are a lot of sci fi books with women as the main character. If you are looking for stories about the future I would try Friday by Robert Heinlein or anything by Elizabeth Moon. If you like stories about fantasy worlds with wizards and magic, try reading books by Mercedes Lackey or Marion Zimmer Bradely. But Robert Heinlein is my absolute favorite author. I do read Terry Brooks, but only his lighter stuff like Magic Kingdom For Sale/Sold.
Kristin: Yes, I was disappointed in the ending. I had been ready to accept one turnout and the other was a real shock.
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Post by YoshsMom on Jul 7, 2005 18:30:46 GMT -5
I finished this book in 2 days and had to force myself to put it down to go to sleep. Its about a family whose 3rd child was conceived to be a perfect donor for her sister, who had leukemia. The author is Jodi Picoult.
I usually read only scifi and fantasy but this book was amazing.
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Post by YoshsMom on Jul 11, 2004 21:20:34 GMT -5
Your Noah will be in our prayers. While Yosh never had cardiac problems, he did spend 10 weeks in NICU at birth and next Wed he will be having surgery to remove part of his liver that is growing too fast.
I agree with the others who say get a second opinion. I had drs talking to me about chemo before the biopsy was even scheduled and scaring me to death. The tumor was benign, but I will never forget the terror they put me through unecessarily.
Our children are a lot stronger than many doctors give them credit for.
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Post by YoshsMom on May 17, 2004 19:16:12 GMT -5
We got the results from the lab and its benign. He stillmay need surgery to remove it, we're not sure at this point whether it would be best to just watch it for a while, or take it out right away.
Thank you all so much for your prayers and support. It meant so much to me, knowing you guys were out there.
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Post by YoshsMom on May 11, 2004 14:59:29 GMT -5
Yosh had his biopsy yesterday and they think its benign, but they're not sure. The pathologist couldn't identify it and it may take a week before we know for sure. But they say it doesn't look like any cancer they know of, which is very good. Yosh came home today and I have to say he is totally amazing. He was already smiling and trying to play this morning and he only cries when I have to pick him up.
If it is benign, he'll need another surgery to remove what ever it is. I just wish he didn't have to go through all this.
Thanks for all your prayers and support.
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Post by YoshsMom on May 9, 2004 12:39:29 GMT -5
The mass in Yosh's stomach turned out to be a tumor in his liver. He is having a biopsy Mon. to find out exactly what it is, but the drs have already started talking to us about chemo. I don't think I've ever been this scared, so please keep us in your prayers.
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