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Post by Kristen on May 17, 2005 21:02:03 GMT -5
You said a lot of the others are somewhere ont eh autism spectrum...can she be modeling their behaviors>
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Post by Kristen on Jan 24, 2005 13:29:29 GMT -5
Oh my, you sound like me! I get so burned out on it all sometimes, all I want to do is cry! I remember it being hard at around 15 months, then 2 and now 2 1/2 with him not walking it got stressful, too. It's like when they make a big jump everyone eases off you for a while, KWIM? As if you ignored them up till that point or something Please, I have them coming here looking at my "typical" 15 month old saying, can she say this or that? OMG! LEAVE HER ALONE! Sometimes I think they can't help themselves.
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Post by Kristen on May 16, 2005 13:31:03 GMT -5
Mongoloid? Oh come on! I would laugh if I thought it was a joke, but unfortunately I know it is true. Whatever. I guess some people do to the "disco" but that went out in the 70's too. I am just sorry as a mother you had to hear that. None of us ever want our kids exposed to the ignorance that is out there and I am sad when it happens. You are a much better lady than I becasue I might have had to have a little discussion with her
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Post by Kristen on May 15, 2005 16:50:11 GMT -5
Um...Happy Mother's Day? Oh, okay. Freak. You are so close to getting away from her - keep your eye on the prize!
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Post by Kristen on May 15, 2005 17:09:11 GMT -5
I am so getting a migraine. Did I mention I have already gone a few rounds with someone over there...a secretary telling me Carter will not get into the summer program. Who the heck is she to say that? If you have ever thought you did good because you refrained from using the REALLY BAD WORDS in referring to members of school administration's family....you might have an IEP. LOL!
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Post by Kristen on May 16, 2005 13:35:32 GMT -5
Those are the days that I sit in front of the laundry room door with the dogs and kids (they run over there) when we hear the garage go up and Dad is home. He gets the picture.
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Post by Kristen on May 15, 2005 17:00:48 GMT -5
Congrats to you! Statistically, it's one in 200ish. There isn't much else to say. As a mother, I had a negative level 2 u/s and triple screen and well, someon has to be the 1 in a million, might as well be me Just don't burden yourself with all the books and stuff. I did in the beginning and I wound up being freaked out about what COULD happen so much I didn't enjoy what was as much as I could have - my healthy, happy baby! For example, they made freaking SKIN CARE sound like an hour long ordeal. NOT TRUE! I am the eczema queen and C is without a blemish. Everyone is still an individual despite possibilities and probabilities. None of that stuff has even happened to my guy health wise and now I know it can happen, but I do not worry. It will or won't and we'll take care of it what it does. I denied an amnio with #2 because well, after what I went through I believed nothing until I saw her and only 15 months later was at the point where I didn't care. I cared for her, but not like oh no, what if she has it? By then I viewed what we expereinced and the gift of Carter as a gift with NO STRINGS ATTATCHED which is exactly what a baby is no matter if they have 46 or 47 chromosomes. While I understand your fear and apprehension - believe me, anyone will tell you what a wigged out mom I was! Though I hope we don't see you for very long please know that in the end it does all work out and if you end up here hanging around with us there are worse places to vent your frustrations!
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Post by Kristen on May 13, 2005 12:27:36 GMT -5
Can you believe Carter will be 3 in June? It seems in SO many ways like I just found this place and he was just born. My guy has come a long way!
We did this group screen which was a JOKE and go next week for the 1-on-1 and the next week for his staffing meeting. I am a nervous wreck already. All of a sudden I DON'T want him going to school! I have been so focused on when he goes to school I have not thought about what happens when he is THERE! We are HOPING they let him in for the summer for 6 weeks, then we will have a little break then the full year starts. Time, it does keep going by, doesn't it?
Anyone else do a group screen? This thing was such a waste of time. There were three other kids and their mms and five school people in the room. The others had various needs which seemsd mainly centered around they won't sit down if you pay them. Carter, on the other hand, sits there and does his thing and you have to pay HIM to get up and walk. We spent a lot of time by ourselves playing whilethey chased down the other kids. A therapist would stop by and ask some questions, ask him to do a few things, he would do them and that was it. Very anti-climactic. I'm thinking, I am here why? They can surely read the reports, yes? *sigh* I am HOPING this all goes well and am practicing saying things like "This is appropriate, that is not" without using words like "best" or "better". I am not very ecited, but very apprehensive. I will be SO GLAD when this month is over - it is so jam-packed with things going on all the time I get tired looking at the calendar.
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Post by Kristen on Dec 16, 2004 11:33:03 GMT -5
I agree that it's mostly up to us. Right now I have a PT losing her mind because Carter (who is 2 1/2) is actively refusing walking. It's pretty funny when you get down to it. My take in general is this: You can only do so much. We give all the help, support, direction, etc. it the world to both our kids. At a certain point they will do what they do when they do it which is totally the norm, but in our situation with our diagnosed kids, it's like there's this big heightened awreness and freak out factor when they don't do some things. It doesn't necessarily mean incapable, it means not yet for them. You never stop trying and helping and encouraging and working, but at a certain point I found it was helpful to take the they'll do it when they do it attitude. They aren't robots we can program. That would make it all too easy
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Post by Kristen on Dec 14, 2004 12:40:28 GMT -5
Oh jeez! Talk about something you wouldn't think twice about! We are so careful with paints and eerything and here it is in kid's jewelry! Love that woman's response - that's the part that really ticks me off!
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Post by Kristen on Dec 9, 2004 13:06:40 GMT -5
That's awesome!
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Post by Kristen on Dec 7, 2004 11:28:32 GMT -5
Eucerine by Aquaphor. I have the tub on the dressing table and they both get a "facial" every night. Carter has never had red cheeks since I started it over a year ago and I do it every night. We sing the "facial" song and he thinks it's the bee's knees. It's a little on the expensive side, but I have had the tub for two years and it isn't even half gone. Great for bum rash, too.
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Post by Kristen on Dec 7, 2004 11:35:12 GMT -5
YAY EVAN! IT'S YOUR BIRTHDAY!!!
What a cutie pie! That last shot is priceless!
I remember when you first came here, Clint! I can't believe it's been over two years! I was new here too...we've come a long way together, yes?
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Post by Kristen on Dec 7, 2004 11:31:37 GMT -5
Jeanette, you're gonna freak, but I am from the southwestern suburbs and used to go to the clubs on the south side a lot and I think I used to see him play! He has an unusual name and it stuck with me! I am very deeply saddened - what a talent! I am so sorry for your family!
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Post by Kristen on Dec 3, 2004 12:42:48 GMT -5
My two cents, take it or leave it as you see fit...My little guy is 2 1/2 and his improvements in speech are the thoughest (exactly how do you "make" someone talk, KWIM?) and a lot of how they benefit from any therapy is from your own follow up, not the hour a therpist is with them. Sounds like you do a lot to help him out and honestly, I would maybe try once a week for a while and keep up your part and see if he does any better or worse.
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