Dawn, The email by the founder of the group sounds very informative and inviting!! I'd check it out!! The reasons for starting the group sound like exactly the reason any parent would want to be a member of a Ds support group. (And the reason I love Uno Mas get togethers so much!!! Good for Emily and my other kids too!)
I have NO idea why the OT felt the need to even mention the whole "uppercrust" stuff. That's silly to me. But, the email didn't give any hints of that mind set. I'd go to the beach get together...........sounds like fun to me!
LOL If I remember correctly, today is not Tammy's birthday!! Years ago, when she registered, she listed her bday as 07/08............but her birthday is 08/07!!!!! I hope I'm right.............if not, HAPPY BIRTHDAY TAMMY!
You know we're game, A!!!!!!! And honestly, ANY of those places sound good to me!
For our family, one of our favorite get togethers was in Clarksville Indiana. We stayed at the Holiday Inn, that had a nice indoor pool and an outdoor pool too.........and right behind it, there was the ATLANTIS water park. Only about $6-8 admission for adults, and lots of fun!!!! We basically hung out at that water park for the two days we were there, and got to visit with each other a lot! I think the kids had a blast!
I've never been to the KY Lake, but DH says it's an awesome place. And I see commercials for that water park all the time. Looks good, and only about 4 hrs from me, I think.
Cincy was the site of the first Uno Mas get together, and that's always fun.
Ok...................so, someone come and meet up with us!
True? I think. Every year a group of us at work volunteer for our local Alzheimer's foundation. We also have an ongoing fundraiser going, and in September we turn in all the money we have collected over the course of the year. We also participate in the yearly "Memory Walk"; which helps to raise $$ for Alzheimer's research, etc. I became interested in this, because of my contact with so many elderly patients with dementia, because of my own grandmother who had Alzheimer's before she died, and because of the strong connection between Down syndrome and Alzheimers.
TPBM has gone parasailing in the past. (I hope I've not used this one in the past.........can you tell that I'm interested in this??)
Awwww Pauline, I'm disappointed for you too!! I had a knee replacement last September, and I know all the preparations that have to be made (although I didn't have to make as many arrangements as you!), so I know it's frustrating for you. And, I know you just want to get the surgery and rehab behind you! Susan
Dawn, Emily has a stubborn streak a mile long.............and if we ever push her to do something she is not prepared to do, she will always be pretty firm about not doing it. Prayer is such a personal thing, and I never wanted to push her. But it made me sad to think that maybe she had been made to feel that her prayers weren't "good" enough. (maybe another one of those times when I added 2 and 2 together and came out with FIVE!!) So, for the most part, we just left her alone..........or I would ask her if she wanted to just repeat after me, and she would always go along with that. I was just totally blown away that she would be ok with praying in front of a group of moms and daughters. That can be intimidating to lots of us!! Susan
Since Emily was a little girl, she has always loved to say prayers at mealtimes and even in her Sunday School classes at church. Granted, it is often hard to understand what she is saying, but I have no doubt that God understands every word! Well, for some reason, about a year ago, she totally STOPPED saying any prayers at all. If we ask her to say the prayer at meal time, she will immediately say "uhhhhh no thank you.......you go ahead". And Jordan says she stopped saying prayers during Sunday School at that same time. It has bothered me, because I worried that something had happened to make her stop. I didn't know if someone had made fun of her very simple prayers, or if she had just gotten more shy or what! She will now, at home, repeat short sentence prayers that I will say........but only when it's just the family at home. I've tried asking her what's up with it, and she won't tell me.
SO.........fastforward to tonight at church. All the teens and their parents met together to eat dinner and then to sing and pray together. All the women (including teen girls) met in one room and all the men and guys in another room. We decided to go around the room so that any woman/girl who wanted to pray could do so. There were probably 20 of us. I was sitting next to Emily, and I was certain that she would not say a word. But, when it got to her turn, without missing a beat, she immediately started to pray!!!!! And at the very end, she ended her prayer by telling God "Oh, and I love you". Melted MY heart, for sure!!!! And afterward, she acted like it was no big deal at all. Gotta love that girl!