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Post by cheyanne12 on Jun 9, 2010 13:06:44 GMT -5
Hello! It's been awhile since I've come on here. My son who is six with DS certainly didn't act like I would have hoped today. I took him in to the school psychologist with our materials. Started off with the school having a show of the Wizard of Oz which my son couldn't stand due to the noise of it all. Anyway, today he really showed his worst sides by throwing the color cards, throwing his blocks, and then taking off his shoes when I talked to the psychologist and throwing them as well. He refused to work and she sent us on our merry way. I asked if this is what happens when he goes to school and they will just send him home? She feels he will not be able to handle a full day of kindergarten, but he will be assigned his own teacher. He has his good days and his bad days. He has taken up spitting and began spitting at her as soon as we got there. Thing is I had four kids before adopting my little guy and I just never dealt with all of these issues. I was always complimented on how well my kids behaved, and now I feel like I'm a horrible parent. To make matters worst my husband and I recently separated. I have an IEP meeting on Friday and I KNOW my son is capable of doing some of the work... he can sing his a,b,c's and he almost can count to twenty. He recognizes some numbers and he can match colors and all. The real frustration comes in with his behaviors. I went into a reg kindy class and I did feel he's better off with one on one assistance. I believe they will recommend a half a day of school for him at this point.
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Post by cheyanne12 on Oct 30, 2008 13:27:17 GMT -5
THis past summer I gave my little guy a hair cut with the buzzers. Well he didn't sit very still and we ended up with a few bald spots... I thought it was something I did to my poor guy. Anyway they are not all growing back in. Anyone else ever experience this? Thanks!
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Post by cheyanne12 on Nov 9, 2007 9:45:32 GMT -5
Thanks Chris.... I love the name too! LOL Who would have ever thought when I picked the name for my son that I'd realize how it could be used for a children's organization? I have no idea what is in our future since Noah is only three and he has his therapists coming into the home at the moment. We are due to write up a new IEP this December.
I guess I really wanted to hear from other parents to find out what would be helpful for our kids. I know I went and spent some money on books like "Fine Motor Skills for Children with Down syndrome," "Gross Motor Skills in Children with Down Syndrome," and a book on IEPs. I wish I would have bought these books sooner. I know there are times I have felt we are at a disadvantage when the teachers come into my home with toys I don't have. I know the more Noah is exposed to the items they use, the better his chances will be of succeeding with them. Noah also has sensory issues, and I have a feeling there is a whole world of sensory equipment for our kids out there.
Anyway I greatly appreciate everyone's feedback! Have an awesome day!
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Post by cheyanne12 on Nov 9, 2007 0:05:17 GMT -5
Hello Laura...
I'm just checking to see if there is already a group called Noah's Ark. Our adopted son is Noah, and I just thought it would be real neat to have an organization named after him since he does have Down syndrome and is the joy of our lives.
I'm looking to find out what needs parents and children have. If there was such a group what needs are not already being met.
I've been asking myself WHAT could I do to make a positive impact in the lives of other children like our son Noah, and in the lives of their parents. No one has ever said to me, hey we have therapy balls you can use at home with your son. Or here is a pair of special scissors to help your son. I didn't know if there is a group that is already in existance to help with this, and I didn't know if other parents may have other ideas.
Just looking for feedback and hoping to make a difference in this world we live in.
Hugs to all,
Suz
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Post by cheyanne12 on Nov 8, 2007 21:24:32 GMT -5
I sat back thinking about what needs families have that are being unmet. Have you ever been offered scissors, therapy balls, or educational materials to work with your child at home? Do you feel there is a need for such a service? Do you think it would be nice to have a program where you can borrow helpful toys and materials?
It's just a thought.
Have you ever heard of a Noah's Ark (Association for Retarded Kids?)
Suz
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Post by cheyanne12 on Nov 5, 2007 9:20:14 GMT -5
Is anyone's child taking music lessons, and if so at what age did you begin? How about music therapy?
I know our kids love music, but I'm really wondering how many of our kids are taking music lessons or are more of us doing the music therapy route?
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Post by cheyanne12 on Oct 31, 2007 21:23:34 GMT -5
Noah was Woody this year. He got out there and then wanted to go for a walk till two guys popped up in their yards and scared him... so much for that! He cried he wanted to go home.... so we came straight home and I figure better luck next year.
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Post by cheyanne12 on Oct 30, 2007 18:59:23 GMT -5
Have you tried apple juice or any other juices? I know that our son did better after adding more juices to his diet.
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Post by cheyanne12 on Oct 30, 2007 22:20:00 GMT -5
I did tell him that we listen to story first and then trains, but with the delay in the story beginning, and then meeting a new little friend who was looking at books with him. He may have forgotten what I said and lo and behold the story began.
Thanks so much Chris for your feedback. It's been awhile since I had a toddler, and I don't believe any of my kids were quite as stubborn as our Noah is. Noah will also go to scratch our faces, arms or even pull my hair when I go to pick him up when he is not ready to leave. I know our little Noah is going to teach us A LOT as he grows.
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Post by cheyanne12 on Oct 30, 2007 16:49:15 GMT -5
I've been taking my son to storytime where they will read about three books, then color and get a snack. However they have Thomas the train set up which I allowed him to play with last week. This week when we walked in he said he wanted to play with Thomas the train, but I thought storytime would be starting soon enough so I told him first storytime. Anyway storytime didn't start right away, he had been socializing and touching books with sound on the racks and talking to a new little guy there. Anyway, when storytime started he would not sit down for me... so I moved closer to the story thinking he might not be able to see the story. Then he thrusted himself upwards off of my lap and rolled onto the floor. At that point I felt his mind was set on trains and he would only continue to fight me.
Last week he sat through three books, but I'm not seeing a consistent pattern. Seems to change from week to week and he certainly is stubborn.
After playing trains I told him we should go and color and get our cookie.... but colored for a few minutes and then threw his crayon. By the third flung crayon, I said no more and he's done.
I guess my question is what do you do with a child who is thrashing around? He isn't in preschool and I'm wondering what the teachers would do in such a situation. Should I have just left all together? I'm now thinking that maybe I should have said NO TRAIN. I guess I'm afraid that giving into stubborn behavior just means I'm going to get more next time. HELP! LOL Ideas anyone?
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Post by cheyanne12 on Oct 30, 2007 16:29:59 GMT -5
Happy Anniversary.... it will be one you certainly will ALWAYS remember! You made me smile today.
Suz
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Post by cheyanne12 on Oct 30, 2007 16:26:44 GMT -5
Happy Birthday Brianna!
hugs,
Suz and family
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Post by cheyanne12 on Oct 30, 2007 16:51:24 GMT -5
A great big HAPPY BIRTHDAY from us! May you have MANY more!
Hugs
Suz
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Post by cheyanne12 on Oct 30, 2007 16:36:04 GMT -5
Arr, Arr, Arrr, Trick or treat... ? I think it was mere piracy since she did a great job stealing Jack Sparrow's costume! A job certainly WELL DONE! Aye!
Have a wonderful holiday!
Suzanne and family
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Post by cheyanne12 on Sept 23, 2007 19:23:48 GMT -5
The latest is the mention of a psychologist for our three year old son who throws toys, cups, and doesn't like to have a plate of food on his tray. I noticed that he does stimming (which I am trying to learn about and maybe someone on here knows more) he was looking through a book and just verbally going ahhhh. He hates loud music like at an outdoor concert so I always take him to the very back of the concert. I feel he will throw when he wants to get out of something or lately he has even started putting things under the couch to get out of them. Anyway, my stepfather sat back and said What does he need to see a psychologist for... he's three years old and most boys misbehave at three. From what I'm hearing is that they don't know what to recommend to do about the throwing. We've taken toys away, we've even done time out recently. They keep hinting at preschool for our son ever since I just asked about it. My stepfather doesn't agree with Noah learning how to use the scissors either. However Noah has recently taken up interest in learning and doing it himself. Although he needs help. My husband is against a psychologist, and I just sit here wondering "what are they thinking EXACTLY?" Is there something they are looking for or trying to rule out? I was told that everyone would be on the same page as to what to do about the throwing since they believe his problem is all behavioral. (They represent OT, PT, and a preschool teacher that comes into our home). As Noah's mom, I'm not sure how I feel about a psychologist at this point. Guess I'm looking for some feedback from anyone on here. I had asked about autistic spectrum disorder or tendencies.... only because I have noticed in the past that he would play for awhile with wheels just spinning them, and then the stimming when he is reading (however the OT says that is functional play). I feel like I've got a LOT to learn. I've seen Noah pinch himself (and it's not like anyone here pinches him) and even hit himself. He will say "dont throw the sand" and then he throws it. I'm thinking I need to tell him what to do instead of what not to do since it seems to replay in his head. Does he see the sand and remember me saying "Don't throw it" which causes him to throw it? PUzzled mom here!
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