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Post by Jodi on Apr 21, 2005 9:31:17 GMT -5
My sister-in-law shared this with me, and I thought I'd pass it along... web.syr.edu/%7Ejisincla/inclusion.htm BTW - I visited a SDC on Friday that was K-1 combined. I'm seriously considering this for Ryan next year. Our goal is for him to function more independantly, and I think if we keep him in a regular class, that will be all but impossible since he is already glued to his aide in kinder. The IEP is about a month away. It's an interesting journey... my first experience with SCD was so horrific that I swore Ryan would NEVER be in one. Now, I'm excited about this great opportunity that could really make a difference for Ryan. Although I think the majority of the people I deal with at the district are morons, I'm truly blessed that I have a couple of team members who are just wonderful, and I'm glad they convinced me to check out this class.
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Post by Jodi on Apr 16, 2005 19:18:51 GMT -5
Awe Jessie! Yes, I've heard the whole song - once!!! LMAO!! And every time it comes on I hafta change the station!! I actually downloaded a copy and have never been able to play it. Gets me every time!!
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Post by Jodi on Apr 16, 2005 16:39:34 GMT -5
I had to have an amnio because things were so funky on the level 3 ultra. I was called at work by a genetic counselor. They were supposed to call the house, but the girl said she kept getting the answering machine. How 'bout calling after 5??? Duh!!!
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Post by Jodi on Apr 16, 2005 17:05:30 GMT -5
I'm thinking of Letterman's top 10 as I write this... except it's Ryan's top 10 annoying habits ;D I too have fallen victim of the flying shoes in the car. Socks on the dash. Books out of the bookshelf. Toys out of the toy box. But I would take them ANYDAY!! One of Ryan's two worst habits was decorating floors and wall with poo! When he was about 3 1/2, he had woke without a sound. Ryan then redecorated his room. He must have had quite a large bm - it was smeared into the carpet, on the walls, on his bed, pillow, toy box, in his hair, nose, ears, his legs (looked like he had taken a mud bath)... we were at a point that we didn't want to take him to someone elses house for fear he might decorate. Be warned, the following is VERY GROSS AND GRAPHIC!!! LOL!!! And the number 1 top annoying habit? BY FAR the WORST of the WORST... actually licking his poo off his finger!!! He would go a little, stick his fingers in his pants and then sample it. KNOCK ON WOOD he hasn't done that for a while, but man that was a HUGE problem. It got to the point that I was afraid to answer the phone at work for fear he had done it (again) at school. He actually wiped in one the teacher's pants one day YUCK!!! We never did know for sure if it was a reactionary thing, or if it was something else. A nurse told me something about it being animalistic - dogs do it and maybe his body was lacking something... but still, YUCK!!!
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Post by Jodi on Apr 16, 2005 16:13:23 GMT -5
Ryan is 6.10, is 43 in. and 49# - looks like he falls in about the 60% for both categories.
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Post by Jodi on Apr 15, 2005 11:46:07 GMT -5
I don't have any suggestions for DS specialist, but I just wanted you to know that Ryan was in the lower 5th percentile until he was about 3 for kids with DS.
He had 3 small holes in his heart that closed by his first birthday, and he had sleep apnea (went undiagnosed until he was 3) which also affected his growth.
But, as someone told me once, someone has to be in the 5th percentile in order to make the chart work! Now, although I did later find that Ryan had a medical issue that contributed to his slow weight gain, I do believe there is a chance for a healthy child with Ds to be one the small side.
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Post by Jodi on Apr 15, 2005 11:49:50 GMT -5
That is hysterical! I love the look!
I haven't had that problem with my boys - but there's time!
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"NO!"
Jun 2, 2005 8:25:17 GMT -5
Post by Jodi on Jun 2, 2005 8:25:17 GMT -5
No No No NO NO NO No no NO!!!!! We are working on strategies too. Time-outs work well, and using "first and then" has been very effective. When I tell my little guy to go potty - before I can finish my sentence - NO!!!! So now I say, Ryan do you want to (something he enjoys) He'll say yes, then I follow with - okay go potty then... and that works most of the time. I wish there was a magical way of getting him to not protest so much, but hey - he's a kid!
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Post by Jodi on Apr 14, 2005 15:07:33 GMT -5
I think I've said before that I am a control freak. Although I was able to actually celebrate Ryan's birth, finding out ahead of time gave me the false sense that I could control the situation. I guess I went from asking "why" to asking "how". Like A, I'm a planner. I planned to cure Ryan! LOL!! It was all out of love - and I thought if he had enough therapy, he could be great. Sometimes I laugh at myself for how I handled it all, but what the heck... I handled it the best I could.
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Post by Jodi on Apr 14, 2005 11:25:27 GMT -5
Kristin #2 - about the Birth Day... I am on the other side of that coin. I had a difficult pregnancy and as a result I found out about Ryan's condition ahead of time. I'm not sure how to explain it, but when I had Ryan, we had a HUGE celebration. My doctor was on vacation and came in just for the delivery - he didn't want to miss meeting Ryan!! I do feel very fortunate that it was a very positive event.
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Post by Jodi on Apr 14, 2005 11:06:33 GMT -5
Okay, now I'm curious. If some of you don't mind me asking, how old were you when you had your child? I was 29.
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Post by Jodi on Apr 13, 2005 21:57:29 GMT -5
After I found out about Ryan having Ds during my pregnancy, I wanted to understand more about Ds. I really didn't know much, and wanted to learn all I could to help Ryan when he got here. I do remember reading something about a large percentage of the "sticky gene" issue is related to the mom - and so I had a lot of guilt about that at first. My mom was a basket case. She blamed my gyno. It took months for me to explain and for her to understand that he had nothing to do with it. My dad thought it was hereditary because his brother has Ds. My In-laws said "God only gives special people special children". Uh, hello? We are all God's children, and unfortunately there are some kids with disabilities that are not in the best living conditions, if you know what I mean. I think they just didn't know what to say. Anyway, When I had my two week check up at my ob/gyn, one of the nurses went on about how her friend smoked/drinked A LOT and that is why they had a baby with Ds. Unfortunately, my mom heard the whole thing (LOL) and I found myself in many situations where I had to gently educate others about the common misconceptions about Ds. A co-worker was pregnant shortly after I had Ryan. She came to me one day and said, "I hope it doesn't bother you, but I am having an amnio because (my brother in law) had Ds and I want to make sure my baby doesn't have it". What do you say to something like that I think you've done a great job encouraging your cousin. It's a delicate situation. I remember telling people (in helping them to feel comfortable about it all) that it stinks this has happened to Ryan, that no one is to blame, and that he is still my boy. Period.
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Post by Jodi on Apr 13, 2005 22:09:26 GMT -5
That would be great Steff. BTW I just picked up a guitar at Costco for Ryan ... he LOVES it. Maybe they can start a band LOL!!
Still cracking up over the OC!!
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Post by Jodi on Apr 13, 2005 14:42:39 GMT -5
Just curious if anyone is planning on going to Anaheim. Thought it would be neat to meet some fellow unomasers. Ryan's program specialists has spoke highly of Ms. Falvey (sp?) one of the main speakers on inlcusion. I guess she did an inservice training at our district a couple of weeks ago and was regarded as being "brilliant" - we shall see - our IEP is next month and we are transitioning to 1st grade don't you just love transitions - the IEP is fun enough
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Post by Jodi on Apr 20, 2005 18:14:44 GMT -5
Hey CC ~ Hate to ask, but can you elaborate on the device? I requested an speech eval to see if there was any augmentative devices that would assist Ryan, and the lady who did the eval. (who is a total moron!!) came back and recommended a $12 talking photo album. Now, I'm not saying that it's cheap and therefore it doesn't work. The team agreed that it was pretty stupid and not to use it. We are using Total Communication like you, but without any device. His speech is coming along, but intelligibility is not that great. It melts my heart how he will look me in the eye, and repeat and repeat and repeat himself until I can figure out what he is saying... he's so patient with me
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