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Post by dannysmom on Dec 6, 2011 17:20:17 GMT -5
Hi, I still visit and read alot. I'm Lisa, Mommy to Danny age 6.5 and we are from RI.
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Post by dannysmom on Jul 19, 2011 20:08:38 GMT -5
You know I think it is a sign of the times. FB has really taken over and I do miss the activity on the forums I am part of. I am on FB, but I'm not as active there in the Ds groups. The way it's organized does not promote the types of conversations you can have on a forum like this.
I hope things change. I miss the connections I once had and even though I'm FB friends with lots of Ds momma's...it's not like it was a few years ago before FB came around. On a forum, you can see all the titles of the posts...on FB, unless your a friend of someone....AND you happen to see a particular update....you never know what's going on. Here on a forum you can have discussions when you have the time and not worry about a conversation getting buried in your news feed and never getting back to it. Can you tell I'm a bit bitter about FB.
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Post by dannysmom on Jun 23, 2011 3:42:01 GMT -5
I had to change my original answer...because I had the stores mixed up. I think those sizes are true plus sizes and you can order that top..it's really cute too!!
I originally didn't see that Forever 21 had a plus dept.
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Post by dannysmom on May 13, 2011 8:57:21 GMT -5
Jennifer's post about her little sister having cervical cancer got me to realize that I never reached out here for prayers for my little sis too.
Back in Nov, my little sis (only 34 yrs old) has been diagnosed with stage 4 breast cancer. When I say my sister is my best friend, I mean it with all my heart. She suffered in silence for too long. She felt a lump...but chalked it up as gaining weight, or a cyst....she was too young for routine mamograms...so it was only when she started having back pain she finally went to the doctor. By that time, her nipple was inverted...and the cancer had spread to her bones.
It's been a rough couple of months, but there are some things to be thankful for.
1. Her organs are clear, no cancer in them. 2. The tumors she had on hips, spine...have been treated with radiation and she is no longer in any major pain. 3. She tested estrogen positive so is on hormone therapy and not traditional chemo (she will someday need chemo...but for now hormone therapy is their first line of defense. 4. She has a great quality of life right now. Normal activity, feels like herself
Please pray for her. Her name is Marissa. She'll be 35 in June and we are planning a big party for her along with our nephew who turns 18 and my son Danny who will be 6. A big birthday bash is planned.
Thank you everyone for your prayers for my little sis. She is one amazing soul.
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Post by dannysmom on May 13, 2011 8:48:31 GMT -5
Many prayers for your little sis!!!
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Post by dannysmom on May 10, 2011 19:57:13 GMT -5
OMG, I've written, deleted, written again and deleted my answer 10x so far. This comment is stirring up emotions in me LOL. I would totally be irritated!!! I most certainly do not feel my child is 'less fortunate'. To me, less fortunate are the kids who have no food to eat, have no parents to love them, have no opportunities for a better life. That in no way describes my son.
I get what she meant, but I have a feeling even though her intention was not to offend....I have a feeling with just her need to make that comment...she'd irritate me. Sorry, I know that probably sounds mean....but that's how I feel.
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Post by dannysmom on Apr 14, 2011 16:28:01 GMT -5
I'd love to update about my Danny!!! I'm part of this board and 1 more...and do feel FB has really taken away from all the wonderful conversations, information and good stuff being shared. I remember like it was yesterday (although it's coming upon 6 years) that I found Uno. My first board, my first attempt at figuring out what Ds was and what it was going to mean for my son. I love to learn and share stories...and most of all, I love offering that helping hand to new moms (and dads) who are new to the diagnosis. FB doesn't offer that....if you don't have a friend in the Ds community...FB isn't going to get you involved...you need a board like this. So, my Danny.....almost 6 years old (June 7th). He will enter kindy in the fall at our homeschool. He'll be in unique setup because our city doesn't offer full day kindy. But, for Danny and a few other chldren....he will attend the morning AM kindy session in the gen ed class...then in the afternoon, spend the PM kindy in a self contained spec ed classroom. Kind of the best of both worlds. Danny just finished his 3 year re-evaulation. His strongest areas are gross motor (no more PT), and speech. He was evaulation to have 85% intelligble speech. He's very vocal about his wants and needs and his newest obsession is telling knock knock jokes!!! By far his toughtest area is OT. He doesn't have the handle control to even be tracing letters yet. He knows almost all his abc's, counts to 10, all colors, shapes, he sight reads many words which is incredible to see. I did allow the IQ test...and I know that's the topic of many FB discussions....but I decided to allow it to be done. My cousin is a guidance counselor in our town and upon her urging...I allowed it. She said there are children in every school in the our city with IQ's in the 70's who receive NO help. She said with all the budget crisises....school are looking for ways NOT to give children IEP's. So in the end, we allowed the testing. He cooperated with all of the different tests they gave in the re-evaulation and noted he was focused, seemed to undertstand it was a test, and overall they feel they got very good results. I also agree with that when I see the results. They are consistent with what I see has his strenghts and weaknesses. His IQ was determined to be 67. The day before I was given the results...I actually guessed it would be that. Not sure the number means anything in the real world...but they got their number, checked their box...and my Danny will get all the services he needs. The psychologist shared a few questions she was impressed he knew. She asked him "what is a hero"? His answer was Buzz Lightyear. She gave him credit for that because he is a Super heroL LOL. Another one was...."where does milk come from". She said most kids his age answer COW, but Danny said Mommy.....and she said Mommy is actually one of the acceptable answers! So, to sum it all up, I'm glad the testing is over.....he's made such progress....and we are now looking forward to the elementary years!! My daughter currently attends the school, and I myself went there as well. One of the first thoughts I remember having was wondering if Danny would need to go to a special school...or if he too would go to our homeschool. Well, I now know the answer!!! His kindy class is the exact same room as I went to.....let's talk about crying a river of tears on the morning I drop him off LOL!!!! Not sure if I ever posted his school pic...but here is my Danny
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Post by dannysmom on Feb 22, 2011 14:24:41 GMT -5
Awesome article...great job Haley!!!! My hubby was a Thunderbolt too
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Post by dannysmom on Oct 29, 2010 20:05:00 GMT -5
Many prayers for your Christopher!
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Post by dannysmom on Oct 29, 2010 20:04:02 GMT -5
Hope she is doing well! Prayers for Marnie and hope she is back to her old self very soon!
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Post by dannysmom on Oct 24, 2010 14:53:33 GMT -5
I haven't logged on in a few days....and here I find this tragic news. Char was WONDERFUL and her love and commitment to Abby was amazing. We corresponded quite a few times as my Danny and her Abby are the same age. Prayers for her family, and Char...we miss you already.
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Diploma
Oct 2, 2010 17:36:09 GMT -5
Post by dannysmom on Oct 2, 2010 17:36:09 GMT -5
Rose grew up with my husband's family and has been friends with my SIL's I think since grade school. Years ago (early 90's) we went to a birthday party at one of my SIL's house. Jillian was 2-3 years old and it was the first time we were meeting her. She was SO adorable, jumped up on my lap and was just SO precious!! When we left and were in the car driving home, both my husband and I had a conversation about her. We both said we never realized how precious kids with Ds were...and IF ever we had a child with Ds...we had to be sure to remember Jillian cause she was such a joy. Fast forward 15 or so years to 2005 and my ob tells us Danny has Ds. The FIRST person I thought of was sweet Jillian....and my husband and I knew it was a sign all those years ago and the afternoon we spent with her at that party. I just saw Rose last week at a party, but Jillian wasn't with her. I saw Jillian at a Buddy Walk maybe 2 years or so ago. What a riot she is...she LOVED my Danny and it was so good to see her all grown up after all these years.
And, no..we are from Warwick and my hubby isn't a firefighter. We might go to the buddy walk tomorrow....but we might not since we went to the NYC Buddy Walk last weekend (Danny's pic was in the Times Sq video).
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Diploma
Sept 23, 2010 16:44:13 GMT -5
Post by dannysmom on Sept 23, 2010 16:44:13 GMT -5
Hi, I don't have any insight to offer since Danny is still in prek....but I'll be watching this thread closely....cause time flies and since we are also in RI.....you are forging the path for my Danny (no pressure LOL).
Prayers it all works out for Haley. We have a friend in Cranston whose daughter (with Ds) just graduated from West. I don't believe she got an actual diploma. She just turned 19 and now in another program (not sure of the place). I could put you in touch. Her name is Jillian (RI is so small you might already know her). Her mom is Rose.
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Post by dannysmom on Sept 7, 2010 16:18:05 GMT -5
Hi Lauri, glad you found your way over here. I know you will get some great information from the mom's (and dad's) over here.
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Post by dannysmom on Aug 21, 2010 19:12:33 GMT -5
I always loves posts from MB about her son....and this one takes the cake!!!! I will be sharing this one with my family...as we all have this dream for Daniel.
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