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Post by violettesmom on Aug 19, 2007 20:05:52 GMT -5
www.sptimes.com/2007/08/19/Columns/Progress_is_more_than.shtmlAs a new mama of a child with DS, I was wondering what your feelings about no child left behind. This article reminded me to ask you guys about it...is it a good thing? A bad thing? Overall good, but causing resentment from school districts and parents of typical kids??? Just wondering...
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Post by violettesmom on Nov 10, 2007 23:45:33 GMT -5
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Post by violettesmom on Sept 25, 2007 19:44:13 GMT -5
Sort of LMAO that my child with Down syndrome could end up being a cheerleader when I never made the squad ;D
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Post by violettesmom on Sept 13, 2007 15:11:51 GMT -5
That made me cry! How great is that!
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Post by violettesmom on Sept 8, 2007 14:38:54 GMT -5
you might want to look at Weight Watcher's Core program. I lost 40 pounds on it (before I had this baby, lol, I've got to get 34 back off of me, darn it).
The nice thing about core is that you can eat anything on "the list" to satisfaction. The trick is finding the foods you like best on the list and then making sure you have them around. I need to go shopping for Core foods to get back on track. It curbs the sugar cravings and actually helps suppress your appetite.
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Post by violettesmom on Sept 2, 2007 12:55:45 GMT -5
Jackie - I think you've hit on the question I'm asking. I have great belief that my typical girl children can do anything they set their minds to, but know that in reality the odds that they will be the next Madonna, the President of the United States or the person who finds the cure for all cancers is pretty unlikely. I'm the sort of person who works best with an understanding of the big picture so I can work through the day to day...if the "superstars" I'm hearing at the conference in reality have a different version of T21 than my child that makes it easier for them to communicate and achieve, it gives me a different perspective...
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Post by violettesmom on Aug 30, 2007 20:43:23 GMT -5
I've been listening to the CD's from the Conference. AMAZING STUFF! There is so much to feel so very good about the life my 9 week old can have!!!
I do have a question, though...the self advocates I'm hearing on the CD - are they "vanilla" T-21 or are they people with mosaic DS?
I listened to the woman who swam the English Channel on my way home from work and she is just AMAZING and INSPIRATIONAL!!! I'll be happy if my typical kids have their act together as well as she does, let alone Miss Violette, lol...
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Post by violettesmom on Aug 25, 2007 14:55:29 GMT -5
Have you tried Zappos.com ?
I just ordered for my hard to fit typical dd...they have lots of shapes & sizes...
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Post by violettesmom on Aug 23, 2007 22:55:42 GMT -5
I got the CD's and want to listen to the best things first! Anything NOT worth listening to?
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Post by violettesmom on Aug 24, 2007 16:57:49 GMT -5
Since V is #3, we pretty much had everything except a bumbo seat...I found one on sale at target before I had her...I'm excited that it sounds like a good purchase!
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Post by violettesmom on Aug 23, 2007 16:05:02 GMT -5
She is adorable!!!
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Post by violettesmom on Aug 22, 2007 23:22:17 GMT -5
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Post by violettesmom on Aug 19, 2007 20:51:39 GMT -5
In the Boston Thread... I thought I'd post about my visit to a funeral of a good friend's father I went to last week. His mom and dad have had foster kids with DS since my friend was 2 yo. Two of them are permanent foster kids, so when DD was diagnosed a few weeks ago I had a good idea what I was getting from being around them. They are great, in good health at 40, but pretty non-verbal (although the one brother I haven't seen for about 15 years and he came right up to me and said "september" the month of my birthday without missing a beat, lol).
Anyway, at the funeral were friends they had from special olympics. The friends had two children of their own, both with DS. One is 40, one is 38. The baby and I had flown from Ohio to Wisconsin with my mom to attend the funeral, and my friend had told the couple that Miss Violette has DS. The father was as nice as he could be to me, and in the first two seconds mentioned that Timmy, his son WAS GOING TO CHINA next month with Special Olympics, and that he, his wife and his other DS daughter were going to cheer him on. I was floored.
Their mother told me that when her first child was born 40 years ago she belonged to a group called "Mothers of Mongoloids" (I cringed, and she rolled her eyes and said, yeah, it was a different time, lol). Her DD was very emotional through the funeral. The son, not so much. My friend has know them since they were kids and said they were pretty much exactly the same way when they were kids. The father said they are very blessed in that the daughter is very vocal (she was walking by when he said that and she responded with "and my brother is a big flirt" which was totally true). They both work at McDonalds.
Anyway, it was really cool to be with someone in a small wisconsin town who had DS who is an adult and going around the world and excited about it! One thing that I was worried about when V was born was that we wouldn't be able to travel as a family and see the world - and I really wanted to do that with my older girls. I have great hope that we still will be able to do that after meeting this family!
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Post by violettesmom on Aug 18, 2007 20:13:29 GMT -5
My typical 7.5 yo and her developmentally delayed 7.5 yo cousin both are going through phases where they don't listen...my mom & I were just talking about it!
Wish I had answers for you...if something works for you, let me know!!!
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Post by violettesmom on Aug 19, 2007 8:43:27 GMT -5
Monique - I was thinking about that, and I wonder for security purposes if it would be hard for her to be that high profile with her sister...I'd think she probably has some followers that would be fringy and obsessive enough that she could put her sister at risk if she brought her to the forefront...
Just a thought...
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