|
Post by sandi on Feb 14, 2008 22:10:21 GMT -5
Wow Emily is beautiful! I cant wait till my Cassie gets big. I sure have a lot to look forward to. Thanks for sharing that pic Jackie.
|
|
|
Post by sandi on Feb 14, 2008 18:27:29 GMT -5
Hi, I have a daughter, Cassie who is 10 months old. She has DS. All my life the one fear I have had is having a child with a disability. I have twins that are 18, and a 12 year old boy as well. When I found out I was preg. and found out I was having the little girl I always wanted, I was so happy. When Cassie was born, I made sure that she was ok. I stared into her face, and looked so careful to see that she was perfect. I called everyone and told them she was perfect, and that nothing was wrong with her. Then the next day, we found out from the nurse that they wanted to do testing for DS. I couldnt believe my ears. I was in total shock. It was like my eyes had been opened and I saw she had DS. My husband said no, she didnt. The nurses said they werent sure because she didnt have all the characteristics. But I knew she did. After a week the test results came back, and they were positive. I had already prepared myself for the outcome anyway. Cassie learnt how to say na na, ba ba and little words like that at 5 months old. Way before my other kids. She was also rolling over at an early age too. I was surprised she was doing these things before my other kids. I have been told that these little ones usually walk around 18 months to 2 years old. She amazes the social workers when they come to see her progress. Yes she is delayed in some things, but not others. She will learn to do things when she is ready. It just means I will get to have my little baby a bit longer. She is rolling and just starting to pivot on the floor(turning to her toys while on her belly) She chatters away all the time. She sure is a daddy's girl and everything is da da. Cassie has been the joy of my life, and here I was so scared to death of having a child like this, and always said, if I did, I would have to give it away. Your feelings will change as time goes on. You will be amazed how your life and others lives around you will change for the better. Your little guy will bring so much laughter and joy to your lives. I sure wouldnt change a thing about Cassie. She is my little girl and I dont even look at her disability. She is just my little girl. Joining a group is one of the best things you can do. Just like the other groups I am in, everyone here sounds just like a family together. I am glad to be here.
|
|
|
Post by sandi on Feb 23, 2008 21:38:58 GMT -5
They are the most precious, beautiful, and amazing little children I have ever met. If I could get prego again, I would wish for another child with DS.. does that sound weird?? hmmmm. :-)
|
|
|
Post by sandi on Apr 9, 2008 21:16:48 GMT -5
I am definately taking in everything everyone is telling me, and talking about. Thanks to everyone for expressing their feelings on this and their knowledge
|
|
|
Post by sandi on Apr 7, 2008 7:28:48 GMT -5
Ok.. so I have read so much on vaccines and autism. What are your views on getting vaccines the way they are given. I would always vaccinate Cassie but, should I really be giving her all the shots they prescribe in the doses given. Should I spread them out more, or what do you all think about this. MMR is the next shot for her. Some say to spread it out. From what I am gathering, the measels shot is kinda linked to autism.. I think. Its found in the intestines and brain... something like that anyway. I am sure you will all do some research now, and maybe help me out with all of this. Of course the government says there is no link to vaccines and autism. Do they ever tell us what we want to know? I dont think so anyway. I love the site, ask dr sears. I have been reading up on vaccines and autism. Thanks for all your advice ahead of time.
|
|
|
DHA
Apr 3, 2008 21:13:54 GMT -5
Post by sandi on Apr 3, 2008 21:13:54 GMT -5
Really enjoyed reading this. I know you can buy milk that has the omega and dha added to it. I want to give it to Cassie now that she is starting to drink regular milk. I read an article about this on the Dr Sears website. You can buy yogurt with this added to it as well. I think its a good idea to buy foods added with these fats.
|
|
|
Post by sandi on Apr 4, 2008 15:00:23 GMT -5
Gee, looks just like Cassies cheeks. I thought it was teething, and it could be a bit, but I figured it was a bit of eczema. I am using Penaten cream on her cheeks and moisturizing constantly. If I didnt use the Penaten cream her cheeks would be just terrible and even under her chin a bit too.
|
|
|
Post by sandi on Mar 5, 2008 21:58:53 GMT -5
Well.. I did it. I took Cassie to get her blood work done. The nurse got it in one poke, but she cried sooo much. I hate it so much! Cassie never cries, really, she never cries. She may fuss a bit every now and then, but cry... never. I have only seen her cry the few times getting blood work done and stuff like that. So I guess when I have to take her for that stuff and she cries, it really sucks. I hope I dont have to take her for anything else for a long time. Boo hoo.
|
|
|
Post by sandi on Mar 5, 2008 9:40:21 GMT -5
Well from reading your post I guess I should go and get Cassies blood test done for Thyroid. I wasnt going to get it done cause I just cant stand the thought of putting her through anything else after going through open heart surgery at 5 months old. I had almost said to myself, that I am not going to get it done and if symptoms come about, then I will get one done. Geeeeee...... I hate blood tests, and I hate to see her cry.
|
|
|
Post by sandi on Feb 25, 2008 22:51:32 GMT -5
I notice Cassie has a high tolerance to pain as well. She is very double jointed in the thumbs. So I guess your first shots come in 2 needles too. You are only getting one done? I would rather get them both done and over with..... and I hate needles. We are still putting off a blood test for thyroid. I hate to get that done. I hated needles as a kid so it makes me sick to have to take Cassie to get her shots or blood work done. Boo Hoo
|
|
|
Post by sandi on Feb 21, 2008 16:19:33 GMT -5
I didnt get any of my boys, (3) circ. Didnt feel the need. Its a personal decision.
|
|
|
Post by sandi on Apr 9, 2008 21:08:58 GMT -5
Thanks for the info... I need all the opinions I can get.. :-)
|
|
|
Post by sandi on Apr 7, 2008 11:35:36 GMT -5
Hi there, thanks for bumping this up for me... I remember reading most of this and its a good refresher that I read it again... So to start this off again,,, in anyones opinion, should I wait and give Cassie her MMR shot later, or get it now? Should I ask to see if I can get these shots in single doses spread out over 3 years maybe. Opinions are greatly appreciated. Thanks.
|
|
|
Post by sandi on Mar 1, 2008 21:53:13 GMT -5
Gee, I have learned a lot about vaccines here today. Cassie got half of the flu vaccine when she got her 6 month shots. I guess the flu shot is given in 2 half doses the first time. Cassie usually gets a slight fever for about 3 days after her reg shots. But this time after getting a half dose of the flu shot, she had a bit of a fever for a week. She barely ate, and was just so out of sorts the whole week. So I didnt go back to get the second half of the shot. I have a problem with what the government tells people. I dont believe everything they tell you. In my opinion, I think they hide things so people will get the flu shot because the outcome would be worse if people didnt get it, but they dont tell you all the symptoms or what could happen to a very small percentage of people if they do get it. Then people wouldnt get it period if they knew everything about it. Anyway.. I do believe in getting your child vaccinated for sure. Its been proven that without the vaccines, kids die with these terrible diseases.
|
|
|
Post by sandi on Mar 12, 2008 22:34:14 GMT -5
Cassie had "transient" Leukemia, but went away at 3 months. They said it could come back around 3-5 years old. I hope it doesnt, but I guess we will deal with that if it comes.
|
|