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Post by Cbean on May 26, 2005 12:24:43 GMT -5
Ok, spitting this one out because if I hear "Aw they're such happy people" one more time...I'm probably going to pick up the nearest blunt object and clobber the next person who says it to me. Anyone KWIM? My lovely little 5 month old swallowed her last dose of steroids this morning and I am anxiously awaiting for her to get the "junk" out of her system because she is showing signs of pure evil this week. Gosh I love her, but I basically lived with a collicky baby all week. Will my little ball of sunshine ever come back??? Look out, it's been a week from hell and Polly's pissed! Ahh, thanks for letting me vent. Going to go put a hole in a wall now. ;D
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Post by momofrussell on May 26, 2005 13:11:39 GMT -5
Oh Polly.... darn-it for that dose of "the other side". I am sorry your peanut is possessed for this week. Maybe next week will be better? Maybe she'll be "happy" then? LMAO (sorry, I had to.. are you laughing yet?) Hang in there Polly!!!!!! A.
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Post by Emilysmom on May 26, 2005 16:41:52 GMT -5
"Those people" who say such things has never been in the same room with a 13 year old with Down syndrome with a BAD case of PMS!!!!! My gal is no more HAPPY than her brothers. She IS usually more openly expressive of her love for her family and friends, but isn't just giddy!!
I hope your little Emily feels better QUICK!!
Susan
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Post by shellk on May 26, 2005 17:39:33 GMT -5
Here's hoping your little one feels better soon. NOTHING is quite like a collicky baby. Boy ! am I glad those days are over.
And as far as the "Happy People" that one still gets me. I like to offer them my shoe, and tell them to take a walk in these for awhile. Cause, Kourtney like any other kid can go from "angel" to "devil" in about 2 seconds flat. LOL
Good luck to ya Polly ole' gal !!
Michele
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Post by Deannalee on May 26, 2005 18:48:58 GMT -5
Ahhhhh....how well do I know of the Dr.jeckyll/Mr. hyde syndrome on orapred!!!!!!! Justin has been on this multiple times. It never hit the first day, sometimes not the second....then whammoooo!! yeas...it is torture. she should be back to normal a couple days after the course is completed. BTW....Justin has been a crankmeister the past few weeks....can't poop d/t the simply thick in his ot feeding trials....and now he has either a cold and/or aspiration. he is happy most of the time....but he is a typical two year old with tantrums. he loves to smack his face when he's pissed. He also hit his head on the floor the other day when he was pissed and left a small goose-egg. This is one milestone i wish we could skip over....terrible twos!!!! keep your chin up. this too shall pass...hopefully soon.
Deanna
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Post by Cbean on May 26, 2005 19:32:10 GMT -5
Thanks Deanna! You are the first person to tell me that they experienced the same thing with orapred! I have quite a few friends who's kids were on it and none of them experienced this awful behavior. Of course none of them had DS - but I don't really think at this age that would have anything to do with it. Now I'm going to keep my trap shut as it seems like you are going through a heck of a lot more with poor Justin. It's tough being two! And as far as his smacking his face when he's pissed - could be worse, could be your face! LOL!
Oh and btw, bug seems to be coming back out of the black hole - she smiled at daddy tonight when he put her to bed. Sigh!
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Post by Deannalee on May 26, 2005 20:07:12 GMT -5
christine, You know, I am really not sure if the orapred affects our kids more intensely or not....good question. it is funny, though, because when When we were getting ready to start our very first course of Orapred, my friend forewarned me about the monster to emerge. I was soooo thankful to know ahead of time. If I had not known, wow, I would have just been ripping my hair out. We have done this orapred so many times and I just grit my teeth all the way through it. You know, the 'happy people" comment is why I mentioned the terrible twos. These kids may have an extra chromosome, but they still have the typical emotions.....and being pissy is one of them. It just cracks me up to hear that. They are still kids. I am just hoping that Justin's terrible twos stay just that. My 4 yr old has been diagnosed with ODD/ADHD. He is so angry, aggressive, whiny, and on and on. I just pray that Justin will be the 'typical" kid....if that makes sense....LOL!!!!
Oh....and very glad to hear little bug is getting back to her normal self. Whew!!! A Mom's sigh of relief.
Deanna
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Post by CC on May 26, 2005 20:31:37 GMT -5
YUP I totally KWYM HUGS to you and EMILY and glad to hear she smiled today Sounds like she is feeling better BTW, hope you don't mind me asking CHRISTINE but why is Emily on steroids?? I must have missed that Has she been sick?? Just remember as I remind myself on a regular basis, LOLOL The Sun will come out tomorrow or at least the day after that LOL CC ~
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Post by laurasnowbird on May 27, 2005 4:09:09 GMT -5
Ummm, AMEN SISTER! LOL! Yup, I get pretty hacked off about that sometimes, and there are days that I swear I am going to do physical harm to the next person that tells Ethan to "give them five".
Ethan can be an absolute dream, but just like every other child I know, he has an "evil twin". Sometimes we do battle with the evil twin for longer with him than you might with a typical child because his language limitations are frustrating to him AND us!
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Post by stevedp on May 27, 2005 4:35:41 GMT -5
i want stan to be whatever stan wants to be. the most important thing about his schooling is that i don't want people patting him on the head. this from our british message board
Freddie (6) is due for his annual statement review in a few weeks and I have just recieved a copy of the LEA specialist teachers report. Now I have never thourght much about her recommendations but considered to be at least harmless until I read the following,
"To encourage social interaction with peers, Freddie could be in charge of a bag of games/activities, and wear a label inviting others to come and play with him during Breaks".
The idea that my son, who has very limited speech skills and is trying so desperatley to play with the others, is actually labeled in the playground makes me feel physically sick. I called the school who really did not see what I was upset about and said that the specialist teacher had seen this strategy work in other schools really well and wasn't I just being a bit up tight?
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Post by Jackie on May 27, 2005 5:29:55 GMT -5
Oh I hate this too...the generalizations that all people with DS are this or that...............Gotta say Emily IS happy most of the time....but for those of you who have never been around her when she is having one of her (as we lovingly..lol....refer to it)...."furrowed brow " moments.....oh man...............
For us now its...."oh they are such loving people".....PEOPLE ...implies to me that they are not of this earth....some alien species...LOL......sort of the ...THEM and US concept.....oh well....basically this is a nice world.
Jackie
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Post by ValerieC on May 27, 2005 6:12:51 GMT -5
I don't mean to be contrary, but I'm somewhat new to the DS world and though I've experienced the "they're always so happy" comment, it really doesn't bother me.
My husband and I have talked about this at length. Yes, our children do have their moments where they are not so happy, but I must admit, Alethea is happy 99% of the time. Even in the middle of throwing up, she'll look at me and smile.
Our thoughts are such...
Wouldn't you rather have a child that is stereotypically happy all the time verses one that is stereotypically withdrawn and miserable? I know that people in general don't like stereotypes, but the fact is we're all stereotyped in someway or another.
My husband is a pastor and let me tell you, he is not the stereotypical pastor nor am I the stereotypical pastor's wife (although I do play piano).
We have found the only way to change the way people view us is for them to get to know us. Even after getting to know us, they still have the stereotype for others. That then would be true for our typical kids and our DS kids too, right?
Valerie C
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Post by Chester on May 27, 2005 6:32:03 GMT -5
Sounds like a tough week. In my book, there's not much worse than a colicky, unhappy baby. There's just no calming that works for the baby or for the rest of the family, including yourself!
Hope the steroids are out of her system soon!
Our little guy is basically a happy go lucky kind of guy. But saying that, there are some people who don't believe that he has the typical range of emotions, they think that he is always happy. He can be sad, have hurt feelings and be angry just as well as the next person.
I think a lot of JT's deal is that he is motivated by people. He could care less about toy or food motivators, he knows how to charm the socks off of people, that's his motivator. (He makes the therapists work extra hard, he could care less about seeing a toy rabbit pop up when he pushes a button, he DOES care if the toy rabbit makes the therapist dance and say "yeah".) So I guess what I'm trying to say is that he interacts more with people than a typical three year old, thus making it appear that he is always happy. The people don't understand that instead of playing with toys he plays with them!
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Post by carolyn on May 27, 2005 6:39:21 GMT -5
When John was diagnosed I really held on to the idea that ONE of my children would be happy. It seems my husband's glass half empty - pessimistic - down trodden gene is much much stonger than the extra 21. He didn't get the friendly gene either, but that one is all my fault. My husband will talk to anyone- he makes friends in the bathrrom at resturants (SWEAR) and I am some what stand off -ish. So all my kids are shy, and frequently bad tempered. But I love them all!!! We are a fun family. I am on a high because all 4 kids are going away to my girlfriends house in Fort Wayne this weekend and my husband will be alone. BLISS!
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Post by YoshsMom on May 27, 2005 7:19:53 GMT -5
I have to admit that Yosh kind of fits the stereotype. i don't really see it as a ds thing though, its just how he is. If Yosh is in a bad mood or crying for more than a minute or 2, I call the dr. I don't let other people attribute it to the ds either. Just the other day someone said to me that people with ds are always so happy. I answered that people with ds were people but yes Yosh is a very happy little boy.
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