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Post by snickers71801 on Sept 22, 2004 0:57:50 GMT -5
I know that I dont post much, but I have to on this one. My Taby has been the greatest child. I was young when she was born and deathly afraid that I wouldn't be able to handle a new baby. She was AWESOME!! She slept through the night almost from the beginning, never cried!!! She never took naps during the day which was awesome. We did the house work together and she was so content just bouncing away with mommy, in her back pack. It was so cute. We didn't find out until the day that she was born that she had ds. It didn't matter to me what so ever. The only thing that I kept thinking was that I let my daughter down and made her disabled. I guess I felt guilty in a way, like I myself did this to her. That has all changed now!! Watching her grow and become this beautiful little girl has been the greatest thing ever. Today we were at the hospital visiting my mom and we were going outside to go for a walk. We got on the elevator and she instantly let go of my hand and I got that "I can do it Mommy" look from her. She grabbed the railing and hung on for a floor. After we started going again, we began doing the hokey pokey elmo dance. The elevator was so crowded, but everyone squeezed even more together to give her room. They all clapped when she was done and everyone was laughing!! It was so hilarious. I dont know if this is a good thing, but I can not get mad at her. She has broke things and anything else you can think of that a 3 year does, but as soon as she looks at me with them big blue eyes, it melts my heart and I can't get mad. I have to start laughing and then everything is fine. Sorry got off of the subject!!! But just to let you know, she is the best thing that could have ever happened to me and she knows it!! That is why she is spoiled rotten!! You will love your child no matter what and you will learn to accept the disability. It took me a little while, but everyday that you watch them grow and every little thing that amazes them that we take for granted, it becomes so clear why we were blessed with this child!!! Good luck! Taby has been my savior and has gotten me through much more than she will ever realize!!
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Post by justinsmom on Sept 23, 2004 10:07:55 GMT -5
hmmmmmm can't really top what everyone else has already posted but here it goes He too slept through the night although we didn't cause of the apnea monitor which kept going off everytime he moved or pulled the leads off grrrrr lol. I truely believe that the extra chromosome gives them extra personality. Justin has a fan club no matter where we go. When we go to the hospital he goes straight to the admissions desk and runs in the back and waits for his girlfriend the clerk to get him some goodies of course she usually hears us coming first lol. We go to the grocery store the cashiers all know him and have a little snack waiting for him. Our kiddos have an extra sparkle in their eyes and and a smile that can melt the coldest of hearts. We have 2 daughters 7 and 12 and he has them wrapped around his little finger ok he has me wrapped as well but who cares lol. When I'm having a bad day it's like he knows and I get the biggest hugs and the sweetest kisses. Oh I guess I may as well warn you though you see they are the absolute cutest and they know it and they know how to use it against you Justin also uses it at school lol. He is sensitive if someone is upset or crying he will go over and pat them on the back and give them a hug. So sit back, relax and get ready for the biggest, bestest hugs and the sweetest kisses and the most heart warming smiles you could ever imagine. Oh and by the way I agree lets get that naming thread going lol I like Alyssa Nichole and Ashley Amanda OK sorry had to put that in there lol
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Post by Kristen on Sept 24, 2004 12:20:48 GMT -5
Carter is by far the best little guy I have ever seen (besides all of yours, of course!) I can tell you a thousand things he does (belly laughs straight fromt eh heart, gives teh best hugs, is a total people MAGNET, such a charmer...) but truly, all that needs to be said is that he is love and grace on two feet. Or two feet and two hands as it stands now. He just is.
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Post by Staci on Sept 24, 2004 12:50:16 GMT -5
What is good about having a baby with DS, you ask??? WELL, since you asked Aidan was the BESTEST baby in the world! Yes, I am a bit biased, but he was gorgeous and wonderful! He slept allll through the night from day one. I had to WAKE him up to eat! He never really cried as a baby...he has this cute little meow (that's the only way I know how to describe it!) and it was precious! I literally had to keep one ear open just to hear the kid Believe me, I NEVER knew how fortunate I was to have such a wonderful and calm baby UNTIL I had Parker...she had colic and was a SCREAMER! And to this day she has NOT slept through the night! So, I should have enjoyed it while I had it! LOL Aidan is also a little magnet, he attracts attention EVERYWHERE we go! He loves people and loves life and he is just amazing...after all he's been through in his short 4 years, he has nothing but smiles and hugs for everyone...he's my hero! As a little boy, he is fun, fun loving, he loves his music, loves to dance and is just an amazing little boy. He has the cutest little giggle, everything he does just makes me smile and laugh...he's quite a comedian! There are a million things that are wonderful about having Aidan in our lives...he's a true gem! Staci
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Post by YoshsMom on Sept 25, 2004 20:37:54 GMT -5
What a fantastic thread! I've really enjoyed reading about how wonderful all your children are.
Dh and I must ask each other at least every other day how we got this lucky. Yosh has the most beautiful laugh and I love that in the middle of playing he often has the need to come over and kiss me. Every little milestone is a celebration and I get so much pleasure out of his love for learning. He's such a little charmer, too. Lately, he only waves hi to women, and also blows kisses.
We've had some tough times with medical issues, but I've learned I'm a lot stronger than I ever thought I could be.
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Post by keeransmom on Sept 26, 2004 2:10:02 GMT -5
:)Hi everyone. You probably don't remember me but I have been off line for about 8 months or so. My son is now 14 months old. The last time I posted was when I was fighting for some speech with the state. As of late, we are totally private and my insurance is paying! Don't ask me how... I just thank God! Anyway, I loved this question on the forum! Now, after 14 months, I have so much to say! What a joy Keeran is! I too love so many ways about him. When he was little he too did not cry. I sure can't wait to ask God about that when I get there... He would mostly just coooo. He would always fall asleep right away when I laid him down. He slept through the night from day one. He wakes like a clock at 7am every morning. He ( I am so thankful) loves to eat everything...my husband calls him the King of food or supla-raman. He also is a cuddler. Now he even hugs me and will hold on tight if he hasn't had enough. He loves music too and will rock out to it. He also plays ball with me and adores beads! and he definently has the best smile. When he was younger he would just stare at me for the longest time...study me and his eyes were just full of love. Now my family says he worships me. He lights up everytime he sees me. He leans way over if he hears my voice even to get to me. Another great thing is his laugh. He laughs fully without anything held back and he has since he was small. I remember he would imitate my laugh and he sounded just like Elmer Fudd...huuu huu huu huu.... He is a joy to be with... He also is the easiest baby I have ever had. I have had so many people say..."your baby is so good. He is so laid back" and he is. I was able to travel with him so many places because he was so content as long as he was with me. Also, he has taught me soooooooooo much about this life. He has taught me that it really doesn't matter how soon you walk, or talk. He has taught me that every day is a gift to be lived fully and enjoyed. He has taught me never to wait for tommorrow to touch and say I love you. He has taught me that all people are valuable and to be treasured because they are made in God's image.
He has taught me that control in this life is a mirage. Only God has control, we just think we do somehow.
He has taught me that I can do much more than I ever thought was possible and that I can pull through tough times with God's ever present help. He has also made me learn what the pincer grasp is and what it takes to creep is very different than what it takes to crawl, and how to really use a bulb to syringe a plugged nose. He has helped me to become compassionate to others who struggle with their lives. He has helped me learn to love those who are not so lovely in the world's eyes. He has taught me that "perfect" is in the eye of the beholder. He has brought me the greatest sense of joy I have ever known, especially when I see him take a risk and delight in his own achievement no matter how small.
I love Keeran and if he didn't have DS he wouldn't be Keeran. He would be some other boy...not mine. So he makes me realize... I was made to go to Holland!
I still have moments of sadness when I compare his physical achievements to other babies his age, or when I see the reactions of others to him when they discover he is different and stop short of really reaching out to him, but those moments, they don't last long...only until I see his beautiful face again and thank God over and over he came into my life. What a gift I have been given. What a precious gift. So, yes there is loads and loads, and mountains and oceans of good things about having a child with DS. Keeran-- my ray of light.
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Post by Deborah on Sept 26, 2004 6:26:59 GMT -5
What a great thread! I have to add Jennifer to the easy baby category. Out of 4 kids, she was the one who was just happy to be wherever, not in a hurry for her dinner, etc..
Like everyone else has mentioned, as a family we have learned so much from having a special child. We have met the greatest people and made lasting friendships. Jennifer brings out the best in all of us and that is one of her many gifts to us.
Deborah
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Post by HannahUKmom on Sept 26, 2004 17:36:51 GMT -5
what a positive thread this is
My Hannah was such a good baby and she still is
She slept through the night, she hardly ever cried to be fed. She kept still for me to change her diaper/nappy
She was easy to play with and easily pleased.
She is a delight to be with. I love to hear her laugh and she melts everyones hearts.
she has a cute smile and everyone wants to hold her
We even had our neighbours little girl asking us if we could do a swap with hannah for her brother ( and she was deadly serious!!)
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Post by Claire on Oct 11, 2004 23:10:09 GMT -5
Now that you mention it, Adam also never cried much. He was always happy just be be laying there watching everything around him. As long as he was fed and changed he was the perfect baby. Now that he is 6 he is a real clown and you never would have thought back then that he would have turned out to be such a clown. Nothing holds him down. ;D ;D
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Post by Deannalee on Oct 12, 2004 0:40:04 GMT -5
Well, now that I am WAY behind everyone else posting....I will too. My pregnancy was a petrifying experience because it was monoamnitic. The twins shared the same sac only giving me a 50/50 chance of even delivering one alive. When I found out about 16 weeks they would probably have DS, I was crushed....at first. That quickly, and I mean overnight, turned to something miraculous to fight for. At the time I had never seen identical twins with DS.
I fought so hard to save these little boys. When Jordan developed hydrops at 20 weeks, I thought I would die. It was a death sentence for him. I refused to tie off his cord to save his brother. I loved them both so much to sacrifice one for the other. Jordan amazed me early on with his strength and determination to live. I was told he would never live past 23 weeks. THIS little boy kept on kicking....literally. At 29 weeks, I had an emergency C/S because Justin had stopped moving....amybe cord compression causing loss of O2, maybe TTTS, maybe a God thing. In my heart I think he did this because he knew his brother was going to die. He knew I wanted to see him at least one day.
I did lose Jordan....but his will persevered to the last. I believe these special children are very happy to be here with a loving family. I named Justin...Justin Gabriel....because he reminded me of the messenger angel Gabriel in the Bible. He knew they had to be born then so I could see Jordan. Jordan...Jordan Michael....is also named after the archangel in the Bible. The names just clicked. They were two perfect little souls with a miraculously strong will to live.
Justin to this day is the light of my life. His smile melts my heart. He looks like a cherub when he sleeps. His baby babbles fascinate him to try new sounds. His face speaks emotion not mentioned with a word....you can read his face so perfectly. He is amazed at what he CAN do, not what he CAN'T do. We clap everytime he does something well, so now when we clap for him....he claps his hands and feet at the same time....ticles me evrytime. Like Adrienne, he is sooooo much easier to manage than my 11, 8, and 4 year old. He is patient, amuses himself if I am busy. Instead of screaming when he wants something, he wrinkles his little face, puts his bottom lip out, and makes the tiniest liitle squeak.....then peeks at me to see if I saw him. I could go on forever.
The best thing about these kids is...everything....and I had twins!!! OK, I am crying, have to go. God Bless you all.
Deanna
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Post by Jackie on Oct 12, 2004 9:50:44 GMT -5
WHAT'S GOOD ABOUT HAVING A BABY WITH DS? ?? Seeing them....grow up.....become responsible adults....and GET A LIFE!!!!!!!!!!!! Jackie Mom to Emily 24....living and working happily 700 miles from home
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Post by samanthajosmom_12 on Oct 12, 2004 20:28:13 GMT -5
seeing them grow up . samantha jo will be 4 yrs old in dec. i have enjoyed her so much. she has shown me that she can do anything she wants to in time. she has shown me to be understsanding and caring and more loving to others. if i could have another baby ,i would want another baby to be just as lovely as samantha jo. sue
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Post by Cbean on Jan 6, 2005 0:14:34 GMT -5
I wanted to bump this up for anyone who may be new, lurking around out there, or who might be where I was 6 months ago. To anyone who doesn't know me, I found out while I was pregnant that my baby had DS. A couple of days later, I found UnoMas. How lucky for me! Since I have been on this site, this has to be the best post ever!
My Little girl is two weeks old today. She has already had two appointments with her ortho to fix her club foot. It looks better already! She met her pediatrician last Thursday and he was thrilled with how strong and healthy she is. Looking forward to seeing her cardiologist on the 11th to check on the PDA. This house is filled with love for her. My five year old is the best big brother and my husband is looking mighty good with his little girl in his arms. A man that tends so kindly to his children is very sexy I must say!
I find it so amazing that something so small could have so much power! I was so hurt, so scared, but when Emily was FINALLY laid in my arms, it all washed away. She is just so perfect, so beautiful, so precious. Every time I look at her sweet little face, I know that I will do anything and everything I can to give her the best that life has to offer.
Soooo, what's good about having a baby with DS? Same as any other baby - the chance to witness a miracle, the pride that comes when you look at this tiny person and you think to yourself "I made that" and the feelings of love they instill in your heart. So much love that you feel as if it will burst.
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Post by Jessie on Jan 6, 2005 14:47:28 GMT -5
Wow! Thanks Christine for bumping up that topic . . . you were right on . . . I'm new and was lurking out there! As I was reading all of those posts I kept wondering what your reaction and experience ended up being. I'm so happy to read that you are so happy. My experience is a little different. Jason is new into my life at 11 years old. So, unfortunately, I didn't get to experience all of those wonderful things that everyone else was talking about. Also, unfortunately, I don't think Jason's real mother appreciated the child she had. NO ONE was allowed to rock Jason when he was a baby (she didn't want him getting too used to it . . . can you IMAGINE not rocking your baby? !!), so he and I are having to work at having any kind of bond. He is not a "kissy" or "huggy" child either, probably because of the lack of maternal affection. His dad, my fiance Brian, used to work on the road alot, so Jason was left alone with his mom often. Now, me and Brian have Jason full time (we are in Michigan, his mom is in Florida), she hasn't seen him in a year and a half, has yet to send a Christmas gift and calls maybe once a month to act all lovey towards him. However, even though I missed all the good baby stuff with Jason, in the past year he has, unbeknownst to him, taught me patience. I mean this child is SLOW at doing everything (he has no idea what "hurry up buddy" means! LOL). And, even though he isn't as happy as most other DS children seem to be, when he does smile, act goofy and give hugs, it is cherished that much more! And, I do also have to agree that the men who are wonderful dads are just about the best thing out there! Just the fact that Brian took Jason and loves that child more than anything speaks volumes to me about the man I am going to be marrying in a couple of weeks. We will hopefully be having kids of our own, although I did miscarry three weeks ago , and will be able to give Jason the chance to be a big brother and feel even more love than he does today. Thank you, everyone, for your posts, they were great. And, I'm crying now, so gotta go! Jessie
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Post by momofrussell on Jan 6, 2005 15:21:25 GMT -5
Oh Jessie, what a wonderful post and you got me in tears now too! LOL Thank you for posting the importance of motherhood and parenthood even if you didn't give birth to the child! I am glad Jason has you in his life!!!! I am sorry for the miscairrage Take it easy and enjoy the wedding! A.
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