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Post by wrblack on Oct 23, 2007 13:05:08 GMT -5
And you might want to ask about the time-released version. Two snips from Dr. Leshin. One from above, <<Melatonin is available in quick-release form regular tablets and capsules and special time-release forms extending its release over several hours (also referred to as extended-release, controlled-release, or time-release forms). Quick-release aids the ability to fall asleep, while time-release may be more helpful in staying asleep. Time-release versions cannot be crushed or chewed, but can be found as very small tablets.>> And one from elsewhere, <<At 08:20 PM 8/28/2007, Michelle wrote: >anyone use this stuff? I bought some to try today. Ciarra has never >been a good sleeper, up half the night, like her internal clock is WAY >off. I asked our Ped and he gave me a prescription for clonidine, but >I tried it 3-4 times and every time it seems to make her either overly >emotional or just cranky the next day. I want her to have a good >nights sleep, Im getting desperate. So I want to try melatonin. And >could use any anecdotal evidence from you moms who have experience. >Side effects? Hangover type thing the next day? Does it WORK? Avi has been on it for years. It does work, with little side effects, but too high of a dose can leave you with a hangover the next morning. Use the regular version if the problem is falling asleep, use the time released version if the problem is staying asleep through the night. Len Leshin, M.D., F.A.A.P. Father to Avi, 13 y/o with DS Down Syndrome: Health Issues www.ds-health.com >>
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Post by Chris too on Oct 26, 2007 8:39:35 GMT -5
Found this study on the net. It was in over-50 adults, but it was a good double-blind crossover study. This study shows the effectiveness of very low dosage (300 micrograms - less than a third of one mg). from: web.mit.edu/newsoffice/2001/melatonin-1017.htmlMIT researchers reported in the October issue of the Journal of Clinical Endocrinology & Metabolism that doses of melatonin, a pineal hormone that is secreted by humans at night, can help older adult insomniacs obtain a good night's sleep. <snipped out the details of the study> "According to our research, the physiological dose of melatonin of about 0.3 milligrams restores sleep in adults over the age of 50," said Wurtman, lead investigator in the study. "The adults who would normally wake up during the second and third thirds of the night were able to sleep through the night with the 0.3 milligram dosage." The researchers also discovered that the typical health food store dosage of melatonin, which is about three milligrams (or 10 times the dosage in the study), is less effective in treating insomnia. In addition, the higher dosage can cause potentially serious side effects, including hypothermia (low body temperature). The study also showed that the higher dosage elevated plasma melatonin levels during the day, which can cause a "hangover" effect in some of the subjects.
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Post by justinsmom on Oct 29, 2007 10:14:58 GMT -5
We're in the same boat as Lespring, Justin takes 2 of the 3mg tablets and 1 time released and 1mg of Tenex about 20-30 minutes before bed. Worked great for awhile but the honeymoon is definitely over. Behavioralist is waiting for the results of his 4th sleep study, we just got those and he's having 2 apnea spells an hour lasting 8-10 sec. They are suggesting we opt for the CPAP, but I still have a few unanswered questions that the sleep study wasn't able to answer. The main one is regarding restless leg syndrome, I swear this kid is running a marathon or in a kick boxing tournament in his sleep, flopping and kicking all night long. They said there was no correlation between the apnea spells and the flip flopping, kicking. His behaviors for the most part are sleep related, but I just think waking him up more than what he is now to reapply the CPAP mask is worth increased behavioral problems and I know once he is up we are all up . Now I'm not taking the apnea lightly my dad has it really bad, but I have taken the 2 older ones in for a sleep study and both came out with positive results ok fine heredity but what has me questioning the whole thing is that the 16 year old still has his tonsils/adnoids and no mention of ENT consult whatsoever. By the way apnea was labled mild and the settings would be the lowest possible, they said both just needed a little boost. Ok sorry I know I haven't posted in ages it seems and I go off and start rambling
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Post by jswanson7977 on Nov 30, 2007 11:20:23 GMT -5
I am so glad to hear that we arent the only ones with sleep issues. Everything i am reading sounds just like what we are experiencing--we were giving Evan robitussin night time--I gave him 1 tsp last night at 830pm--by 1015 he was asleep--so I thought--put him in bed and went into our bedroom and I turned around and there he was--so finally about 1130 he fell asleep, only to wake up at 230 and then finally slept until 615!! I am on the phone with the pediatrician now to see what he would think would be best. I am thinking of a white noise machine too would help.
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Post by lespring on Dec 6, 2007 9:27:19 GMT -5
I didn' t look back to my previous post to seee if I already said this but Angela moved to clonidine about a year and a half ago. It ALWAYS works and she ALWAYS wakes up refreshed! She WILL be out cold within 1/2 hour of taking it, and she sleeps for 8-10 hours, wakes up once (occasionally twice) which is far better than before!
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Post by hannahph on Dec 6, 2007 10:33:44 GMT -5
Justinsmom- just for what it's worth, Hannah is on CPAP and has been since June. It has made a HUGE difference in her mood and behavior. One thing it sounds like they didn't tell you is restless leg(or periodic leg movement disorder) often goes hand in hand with the apnea. Hannah had this as a secondary diagnosis to the apnea and once she went on CPAp it went away with no meds. CPAP is no picnic at first but now after her being on it a few months, we feel like we can't live without it. She used to thrash around in her sleep and now she sleeps very quietly. It did take a few months thought to get there. You may want to at least consider CPAP.
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Post by samanthajosmom_12 on Nov 12, 2020 1:31:38 GMT -5
i am giving samantha 5 mg right noe- 19 yrs old. weight is 203lbs
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