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Post by Debi on May 1, 2008 8:35:42 GMT -5
I hope I am understanding this thread okay.. but just to clarify the district doesn't get to say : nope, no ST until 3 years o f age. If the child is eligible for qualifying services such as OT PT and or ST then that is what the child gets. I am just not understanding how they can say your child has a speech delay ; then not provide services. Lots and LOTS of people go private or other routes toward speech therapy cause they don't feel the school doesn't do enough but that is another topic entirely. IT's true that there are TONS of info out there on speech and SLP's at this age work most actively w/ the parents to help make sure they are doing everything as much as possible on the daily experience w/ their child (which you are surely doing w/ Brooke) But I guess I think of it as being somewhat similar to the case if your kid needed a daily med or something.. and you were the primary provider of that.. but wouldn't you expect to have a resource person to go to and make sure everything was being taken care of correctly? Any of the therapies are kiddos receive esp. in home are like that. Anyway.. if I am understanding this right.. I do believe that you can have another IFSP meeting and get this clarified. I honestly think from what has been posted that Brook's rights are being ignored. You don't want THAT either!
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Post by damarasmom on May 1, 2008 8:43:33 GMT -5
Well, If anyone can do this you can. You are so determined and I know you will do wonderful for your little Brookster!!! I'm still floored that she doesn't get ST until 3, but I guess each state is different??? Please let me know if there is ANYTHING I can do to help you along...
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Post by steffipoo on May 8, 2008 8:23:54 GMT -5
Hey Jenn...... I was thinking bout this speech thing this early am when I couldn't sleep, found a link and wanted to leave an excerpt. Why not ask at wrightslaw as well. They will find out about Oregon law. I found one excerpt from an Oregon law and wanted to share it and the site to you. 6) "Early intervention services" means services for preschool children with disabilities from birth until three years of age that are:
(a) Designed to meet the developmental needs of children with disabilities and the needs of the family related to enhancing the child's development;
(b) Selected in collaboration with the parents; and
(c) Provided:
(A) Under public supervision;
(B) By personnel qualified in accordance with criteria established by rules of the State Board of Education; and
(C) In conformity with an individualized family service plan. Now you need to perhaps contact your worker and have speech written into Brookes IFSP. Or go check yours cause this may be why they r not caring to provide it. I've got a webpage I can link to you next post K??? Notice the part where it says "BY personnel QUALIFIED in accordance with criteria established by rules of the State Board of Education.: That more certainly doe NOT mean you.
Now will send the link next but remember what you wish for I wanted Olivia to get a bit more st when she was 2-3 years of age. She got it in her center based group but wanted more one on one. Well she got it lasted 5 hideous months in an office. The last time we went the lady said to me no joke, :Olivias attention span is very very limited and I am having trouble getting her to focus she wants to play with my books and cards. and will NOT sit still and focus LOLOL This lady says this in front of a roomful of parents and was kinda nasty mind u Liv was 2
K Here;s my response as this lady had been tolerated by myself n Olivia for this length of time, WELL This will be Olivias last ST session with ABC center. We thank you for your time but speech therapy in a 4X6 office doing flash card after flash card does not promote anything but BOREDOM in Liv. I'll make sure we incorporate teachable moments into our daily living along with the her group st at ""TW". Then the lady kinda made a nasty sound and I said to Liv as we were leaving ",Girl I am going to mount you on the dashboard for lasting this long. I love you Liv and she gave me a hugger n said I love you mom... : hee hee
so just another exampler of how speech could go terribly wrong too it has to be enjoyable to learn rote flash learning is not a method most ppl take to specially in a tiny office.
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Post by steffipoo on May 8, 2008 8:30:00 GMT -5
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Post by Googsmom aka Jennifer on May 8, 2008 10:49:08 GMT -5
Thx Steff As you know I called the EI "boss" lady and she indead said no ST. So I just sucked it up and went on about my way. Got a little more pissy the more I thought about it and called her back. Come to find out it is NOT in her IFSP which was done when she was born. (of corse not, I had NO clue and was trusting the EI people to help Brooker) Also her PT is also her new case manager due to cut backs so when she came on Tuesday I kinda gave her a what for She was a kissy butt b/c I know she knows I called her boss. Brook's new IFSP is due again like May 22nd and i'm going to be nice about it and "demand" ST be put it there. We'll see I guess there are only a couple and their time is limited. The PT/case manager who knows my life and me very well also said she never put ST in there b/c I talk to Brook. What? Of corse I talk to Brook. She says alot of parents she deals w/ don't and she see's more help needed there. Well to say the least I was floored! Not talking to your kid. Sounds banannas to me. I said let's at least try it and if I come to the conclusion I do more than they do then I won't waste their time and just do it myself. IDK, we'll see Plus she kinda slipped and said that her and the OT were talking the other day (probally the day their boss scolded them ) and PT thinks that Brook is doing very well and is quite advanced but then she says OT thinks Brooker should be far more advanced than she is. WTH? Which one is it. I could kinda tell she didn't mean to say that but she DID and now it's stuck in my head of corse. Kinda like what the OT said last time she was here and says to Brooker, something like, "you need to start paying attention Miss. Brook or you will be eaten for lunch in my class". Yep, you heard it right, eaten for lunch. Mind you this OT also knows me and Brook very well and I really think she was kidding but something like that sticks in my head wanting me to do more so my poor girl isn't someones snack. KWIM? I tell ya, if only I knew then what I know now, man things would be different!!!! All the new parents here, PLEASE learn from my mistakes!!!!
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Post by jelanismom on May 8, 2008 11:41:55 GMT -5
I'm sorry for not keeping up with this thread, I haven't read all your replies, only read yours. I can just say that it wasn't your mistake, your fault, or any such thing...it's the fault of the case wrkr for not informing you of ST not being an option. When you have a child with special needs here in Cali, the IFSP is done once a year, and I remember speech beginning at around 2 years old with a therapist contracted with the regional center who made in home visits. I was following the course that Jelani's case worker put into action and I never thought to question why speech therapy wasn't included in IFSP earlier, I never knew any better. I just went along with the case worker. When Jelani was 3 mos. old OT began...and then at 2 years old, PT and ST started coming to do therapies. I remember questioning why PT was so long in waiting, and I was told that the OT was sufficient because at this stage of the game the OT was providing what the PT would, something about duplication of services? IDK, but I went along with it. I'm sorry you are having to deal with this...it's nothing YOU did wrong. Jelani's speech therapist now is in no way my favorite person...she is the opposite of proactive and whatever role she's playing in Jelani's education, well it's not very obvious, Jelani has no signing ability and no new words. I've attempted to have her send home examples of what she's working on with him in school, and she hasn't. It's listed in his IEP that I receive monthly reports on his progress, and she hasn't given even one. Instead she tells me "you know too much mommy" grrrr. So this month I have a meeting, and guess who I'll be talking about? I really think our concerns and pro active approach to our kids has intimidated the therapists, because now they need to be even more on top of their game....and that's sad. What would they prefer? A silent parent not making any efforts? I wish you all the best, you are a wonderful mom. I think there's so much we as parents need to be aware of, and if we're not, then we feel so guilty. It's a shame, because advocating for our children's best interests should NOT fall soley on the shouldrer's of parents...it should be a cooperative effort of all educators together! And informing us of all our options would be a really cool thing, wth??? I just really think you are doing a great job. and (((hugs)))
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