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Post by YoshsMom on Apr 14, 2005 8:22:00 GMT -5
When Yosh was in NICU for so long and we didn't know when he would come home, I wondered "why me" a little. The pain of going home without him seemed unbearable. But since then, all DH and I have wondered why about is "Why did G-d entrust this wonderful child to us and will we be good enough parents for him?" We just can't get over how lucky we are. Sorry if it sounds sappy, but thats how we feel.
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Post by YoshsMom on Apr 14, 2005 8:31:22 GMT -5
WTG, Justin. Kids can be so creative in finding their way to do things. Yosh bounced on his tush for the longest time to get from place to place, and now he's walking.
I'm sure Justin will master the "right way" but its still great that he's accomplished something new.
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Post by YoshsMom on Apr 12, 2005 12:58:51 GMT -5
We did brushing therapy and joint compressions on Yosh and I think it really helped with sensory issues. Ask your pt or ot, if you have one. I don't remember what it was called, maybe someone else here does.
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Post by YoshsMom on Apr 4, 2005 12:40:38 GMT -5
Walking has moved from being something he does for applause to his main way of moving. ;D He can walk the entire length of the living room and even change direction.
And he says 4 words: head, hair, up, and down. He only says them when he feels like it, but he has been heard by several people so its not Mommy's wishful thinking. Also he's got 3 new signs: hug, I love you, and sorry.
This weekend will be spent joyfully childproofing all the places he couldn't get to before. I love every mess he makes because its a sign of his growing independence.
Just had to share.
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Post by YoshsMom on Apr 5, 2005 9:22:44 GMT -5
What a little cutie! Those are great pictures, thanks for sharing.
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Post by YoshsMom on Apr 6, 2005 18:57:54 GMT -5
I once actually had a doll that looked like me. My grandmother was a secretary at Ideal Toys and her boss had dolls made based on my picture and my sister's. They were called Chrissy and Velvet and had hair that grew. Well, I hated that doll and used it to play tug of war with the dog.
And I can't see spending that much money on a kids toy, my son would still rather play with the box and the wrapping paper.
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Post by YoshsMom on Mar 30, 2005 20:32:51 GMT -5
Yosh isn't quite 3 and functions at about 15 - 18 mos, so its not so much of an issue with us yet, but DH and I both feel we have to find a middle ground. Right now Yosh is "the baby", but he still has to pick up what he throws and gets reprimands (no hitting etc.) or time out for hitting and biting. If he wants something he knows the sign for he has to sign it before he gets it. On the other hand, we still do so big and touch your nose because that's where he is right now. As he gets older, we'll try to treat him as close to his age as we can, but I can see from reading the other posts here that its not as easy as it sounds.
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Post by YoshsMom on May 27, 2005 7:19:53 GMT -5
I have to admit that Yosh kind of fits the stereotype. i don't really see it as a ds thing though, its just how he is. If Yosh is in a bad mood or crying for more than a minute or 2, I call the dr. I don't let other people attribute it to the ds either. Just the other day someone said to me that people with ds are always so happy. I answered that people with ds were people but yes Yosh is a very happy little boy.
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Post by YoshsMom on Mar 27, 2005 10:21:17 GMT -5
NJ also has the Catastrophic Illness in Children Fund which covers all medical expenses over 10% of your income. Some hospitals have charity care. Talk to Joshua's service coordinator or case manger and ask the financial dept at the hospital. I'm still filling out forms for Yosh's last surgery and that was a year ago.
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Post by YoshsMom on Mar 25, 2005 14:55:49 GMT -5
I actually quit a job because the principal insisted in High Scope. I don't think it works for special needs, or for any kids really. Children need structure, they need boundaries. It is just as important to teach a child resposibility and discipline as it is to teach creativity and imagination. To me, High Scope is nothing more than a glorified playgroup. (Sorry if this sounds like a vent, needless to say I have issues with this kind of class)
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Post by YoshsMom on Mar 22, 2005 12:03:12 GMT -5
What bothers me most is that politicians seem to be using this poor family for their own ends. I don't think either the Republicans or the democrats really care about what Terry Schiavo would have wanted. They all should have minded their own business. I don't know what's right or wrong, and I don't trust what I read in the news becuse every source seems to report whatever supports their opinion. I just pray that this family finds peace.
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Post by YoshsMom on Mar 21, 2005 12:59:14 GMT -5
First, I want to say that Jason is very lucky to have you in his life. I used to work with special needs kids who had been emotionally and/or physically abused by their parents. A lot of these kids benefited from play therapy. They didn't have the language to express their feelings, but the feelings were there and needed to be acknowledged. They needed to know that it was ok to be angry with a parent that hurt them and that rejection from this parent didn't mean there was something wrong with them. A good therapist who specializes in special needs kids might be able to help you explain things to Jason.
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Post by YoshsMom on Mar 14, 2005 19:41:53 GMT -5
I know just how you feel. Yosh grabbed a glass jar off a shelf and dropped it at a store where he is well known. When I reprimanded him, not yelling jsut saying "no touch", everyone in the store yelled at me saying "He's just a baby, he doesn't understand. Yeah, well if I don't teach him No now, he'll never understand. I hate when people think he should get away with stuff just because he's got ds.
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Post by YoshsMom on Mar 14, 2005 11:23:26 GMT -5
Welcome to Unomas and congratulations on your new baby. While I don't know about Tommy's specific problem, I do know what its like to not have your baby at home. My Yosh spent his first 2 1/2 months in NICU. I still remember what it was like spending every day in the hospital with him. My best advice to you is to touch and talk and sing to him as much as you can. Yosh is almost 3 now and the only song which calms him when he's sick is the first one I ever sang to him. Yosh has had no ill effects from his time in NICU. He's the happiest, friendliest little guy in the world. I will be praying that your Tommy is soon home where he belongs.
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Post by YoshsMom on Mar 11, 2005 17:18:02 GMT -5
I always pack enough formula for the first 2 days, you can always buy more. If it is possible to switch to soy formula, if you're not already using it, it stays fresh longer without refrigeration. Or buy the powdered kind in individual packets. Its a little more expensive, but you have a fresh bottle each time and all you need is some bottled water. Have Fun!
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