Post by Debi on Jul 1, 2009 10:39:03 GMT -5
I am hoping I can post without breaking down.. the last two weeks have been so chaotic and this am was NO help!!
For those who remember.. I was agnozing over whether to send Gabe to a group home, which is actually an ICMF facility.. it has a higher standard of nursing care which is not exactly.. say what we think of as a typical group home ubt it's not like a full blown nurising care facility. As you can imagine the rules and regs and procedures are overwhelming... but because I work a school calendar I decided to go ahead and admit Gabe (which was a terribly terribly difficult decision on it's own) and then fly like the wind and get all these proceduares etc done, which with Mr. Gabe is NO fun and a lot to put him through in a short time.
However... the whole iintake process has been so nightmarish
Gabe's been a champ through most of this this but FIRST they told me he needed X Y and Z done.. then two weeks later OOOPS.. they needed more assessments done... and every single day there has either been outright misinformation or lack of information. and I have been on the phone constantly with at least 3 different people. Tues... YESTERDAY... after I have been flying all over everywhere AND gotten everything done on their list but one more thing.. they told me .. that all the paper work (which since it's being written by the docs and specialists isquite out of my hands ) had to be in by TOMORROW
and he HAD to move in next Tues or they would cancel this admit. As if all this isn't bad enough.. they call me on Tues afternoon.. say, ahem he has to have one more test and that has to have results in by tomrrow so that shoots their whole.. "we aren't making any mistakes" crap right there.
I have a call in to the state.. I am so angry. At this point I am really ready to call it off ; they have been downright snottly to me about this stuff. I can't believe all this is kosher by state rules and that they can be SO dismissive of what the family and the person (Gabe ) Can do and need to do. I have to keep reminding them that I am a single mom and at any rate I am still bound by the laws of the physical universe.. i.e. can only drive to fast.. still have to take care of Gabe.. once in a great while try and do laundry lol
Thanks for letting me share.. Susan... I was SO SO upset yesterday that I couldn't do anything but I did find how to post!!
On top of all this... of course I am just so overwhelmed by emotion at Gabe moving.. overall I am still thinking that long term he will really like it and that this will all be worth it. But there are other agencies out there and this one is just obviously handling it so bad.
Thanks SO much you guys .. for the should er to cry on.. for any ideas you might have in terms of advocacly... just for being there and listening to me rant and rave.
I love all you parents so much and I love all your kids even more!! And we haven't met!!
Hopefully... will post a bit more when I am feeling a bit more coherent if tht is possible
Thanks most of all for being the people who understand how much I love my Gabe and how he should have the VERY VERY best!!
For those who remember.. I was agnozing over whether to send Gabe to a group home, which is actually an ICMF facility.. it has a higher standard of nursing care which is not exactly.. say what we think of as a typical group home ubt it's not like a full blown nurising care facility. As you can imagine the rules and regs and procedures are overwhelming... but because I work a school calendar I decided to go ahead and admit Gabe (which was a terribly terribly difficult decision on it's own) and then fly like the wind and get all these proceduares etc done, which with Mr. Gabe is NO fun and a lot to put him through in a short time.
However... the whole iintake process has been so nightmarish
Gabe's been a champ through most of this this but FIRST they told me he needed X Y and Z done.. then two weeks later OOOPS.. they needed more assessments done... and every single day there has either been outright misinformation or lack of information. and I have been on the phone constantly with at least 3 different people. Tues... YESTERDAY... after I have been flying all over everywhere AND gotten everything done on their list but one more thing.. they told me .. that all the paper work (which since it's being written by the docs and specialists isquite out of my hands ) had to be in by TOMORROW
and he HAD to move in next Tues or they would cancel this admit. As if all this isn't bad enough.. they call me on Tues afternoon.. say, ahem he has to have one more test and that has to have results in by tomrrow so that shoots their whole.. "we aren't making any mistakes" crap right there. I have a call in to the state.. I am so angry. At this point I am really ready to call it off ; they have been downright snottly to me about this stuff. I can't believe all this is kosher by state rules and that they can be SO dismissive of what the family and the person (Gabe ) Can do and need to do. I have to keep reminding them that I am a single mom and at any rate I am still bound by the laws of the physical universe.. i.e. can only drive to fast.. still have to take care of Gabe.. once in a great while try and do laundry lol
Thanks for letting me share.. Susan... I was SO SO upset yesterday that I couldn't do anything but I did find how to post!!
On top of all this... of course I am just so overwhelmed by emotion at Gabe moving.. overall I am still thinking that long term he will really like it and that this will all be worth it. But there are other agencies out there and this one is just obviously handling it so bad.
Thanks SO much you guys .. for the should er to cry on.. for any ideas you might have in terms of advocacly... just for being there and listening to me rant and rave.
I love all you parents so much and I love all your kids even more!! And we haven't met!!
Hopefully... will post a bit more when I am feeling a bit more coherent if tht is possible
Thanks most of all for being the people who understand how much I love my Gabe and how he should have the VERY VERY best!!
&
Susan, Proud mom of Michael (32), Justin (25) Emily (22ds), and Jordan (20).
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