Post by wrblack on Jul 24, 2009 11:31:11 GMT -5
Photo album still MIA. Today got linked to some expired domain name message. Is that progress?
And, poor netiquette to call out any specific individual on a general post to a board, but Barb never did send any photos of Alison at WDW. Probably put 'em all over Facebook but didn't share here.
Ah, well, maybe I'm just grumpy from lack of sleep. Robert kept me up til midnight and then Charlie got up at 3:30.
A slightly redacted snip from something I just sent to the List,
"Meanwhile, maybe it's time to start giving Charlie melatonin again.
Usually he sleeps well without it, but he has his moments, like 3:30
this morning. And it's supposed to be good for kids with autism anyway.
He's got that too. And is severely impaired in a number of areas,
cognitive, gross motor, non-verbal. He's also vision impaired, had
congenital cataracts and developed glaucoma. ...
But maybe Charlie got up at 3:30 this morning because he didn't want to
miss any of his birthday. Ten years ago today, at 4:42 a.m, I first met
Charlie. First time I saw him, he was very blue and very still. I
thought he was dead or dying. Delivered by emergency C-section at about
30 weeks gestation. Weighed less than two and half pounds, 1130 grams.
Had Apgars of 1, 5, and 7. Means when he was born, he wasn't breathing
and wasn't moving, had a heartbeat but rate was less than 100 bpm.
Then, couple of days later, we got Ds dx. That still rates as one of the
worst days of my life, right up there with when my brother died from car
wreck, can't rank order those and not going to try.
So, even though he'll never be a Ds superstar. I think we'll keep him.
In spite of his many challenges, and some of them industrial strength,
he's a fairly healthy and very happy and easy going guy.
I've actually grown quite fond of him over the last ten years.
Regards,
Bob, Charlie's dad"
And a happy birthday to my not so little anymore boy!
And, poor netiquette to call out any specific individual on a general post to a board, but Barb never did send any photos of Alison at WDW. Probably put 'em all over Facebook but didn't share here.
Ah, well, maybe I'm just grumpy from lack of sleep. Robert kept me up til midnight and then Charlie got up at 3:30.
A slightly redacted snip from something I just sent to the List,
"Meanwhile, maybe it's time to start giving Charlie melatonin again.
Usually he sleeps well without it, but he has his moments, like 3:30
this morning. And it's supposed to be good for kids with autism anyway.
He's got that too. And is severely impaired in a number of areas,
cognitive, gross motor, non-verbal. He's also vision impaired, had
congenital cataracts and developed glaucoma. ...
But maybe Charlie got up at 3:30 this morning because he didn't want to
miss any of his birthday. Ten years ago today, at 4:42 a.m, I first met
Charlie. First time I saw him, he was very blue and very still. I
thought he was dead or dying. Delivered by emergency C-section at about
30 weeks gestation. Weighed less than two and half pounds, 1130 grams.
Had Apgars of 1, 5, and 7. Means when he was born, he wasn't breathing
and wasn't moving, had a heartbeat but rate was less than 100 bpm.
Then, couple of days later, we got Ds dx. That still rates as one of the
worst days of my life, right up there with when my brother died from car
wreck, can't rank order those and not going to try.
So, even though he'll never be a Ds superstar. I think we'll keep him.
In spite of his many challenges, and some of them industrial strength,
he's a fairly healthy and very happy and easy going guy.
I've actually grown quite fond of him over the last ten years.
Regards,
Bob, Charlie's dad"
And a happy birthday to my not so little anymore boy!
]
&
Susan, Proud mom of Michael (32), Justin (25) Emily (22ds), and Jordan (20).
