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Post by Googsmom aka Jennifer on Sept 26, 2009 10:06:33 GMT -5
{{{{{{{{{HUGS CHRIS}}}}}}}}}
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Post by Danielle on Sept 27, 2009 12:10:34 GMT -5
CC - I'm sorry you're going through these issues with Chris!! Please keep posting and know he's in our thoughts. Miss you guys so much.
Dani
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Post by samanthajosmom_12 on Sept 27, 2009 20:25:14 GMT -5
i will be praying for you and your family. i hope and pray that chris kidney's will be fine. sue
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Post by Chris too on Sept 28, 2009 9:12:14 GMT -5
Prayers being said for clear pictures in U/S, so no CT - I hate that penny-taste that the shot gives and if it's bad for his kidneys - yikes!
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Post by CC on Oct 2, 2009 22:04:18 GMT -5
THANKS again gals.
We have an appointment this coming Tuesday October 6th for both tests. CT to follow the Ultra Sound if needed.
The dye or whatever they put in one for an IV contrast would normally not be any issue with someone with healthy kidneys but the Doc is really hoping it won't be necessary. He talked about doing an MRI instead but being Chris has a pace maker NO MRI can he ever have.
Will let you know as soon as I find out what is up with all this.
CC ~
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Post by steffipoo on Oct 5, 2009 21:43:02 GMT -5
Hi!!!!! Awwww Chris.... man oh man CC hope all goes well. What are his creatinine #'s? I am laughing at the U/S and having to hold it for 45 minutes,,, Hmmmm wonder what they r thinking. I know Liv would PEE all over if made to hold it while someone is pressing on her kidneys with the U/S wand.... Hope all is well and fill me in. (((HUGS))) Steff
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Post by ashleysmom on Oct 6, 2009 3:49:21 GMT -5
CC sorry your little guy has to go through all this, I will keep him in our prayers.
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Post by wrblack on Oct 6, 2009 9:47:10 GMT -5
Hope Christopher does okay today and gets some helpful results. Oh, and, CC, did you know
3 more FREE Nights with Select Magic Your Way Vacation Packages
Buy a non-discounted 4-night/4-day Magic Your Way Vacation Package at select Disney Moderate, Disney Deluxe or Disney Deluxe Villa Resorts and enjoy 3 more nights with tickets, free. For stays most nights 11/1/09-11/20/09, 12/11/09-12/24/09 and 1/3/10-3/27/10.
Ah, and does Christopher know about that? -- Bob
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Post by CC on Oct 8, 2009 19:51:23 GMT -5
Just a little update to let you that have followed this that we have no more answers then we had before Well actually the good part was that this second ultra sound and yes they did end up doing an IV contrast Cat Scan and NOTHING showed up on this one ;D ;D ;D I asked the Doc how could that be and he was as puzzled as I am that one ultra sound showed 2 growths and now none. Well for me as long as they are not there now is what I am going on ;D
His numbers in the blood tests are still elevated and again the Doc who happens to be a specialist in this is just plain puzzled about what is up with all this. So for now he told us in January to have the blood tests redone and he wants him to have another ultra sound. Doc said he was not clearing us and the we need to keep an eye on if the numbers go up more.
He did say that at first he was thinking the numbers were elevated due to a false positive that has been known to happen in ones with DS. Man I never heard that one but what he said. BUT there are 3 components to the Creatinine (SP?) Blood test and 2 of his were elevated and one was not. To the Doc that makes him think something is going on especially he says since his blood work has been showing this for some time now and he said he now does not believe its a false positive.
So for now that is all we know and I for one am glad that nothing showed up on these tests but really does make me wonder did they give us someone else's U/S test results the first time or what ever was there did it just go away I have no idea BUT I am a happy camper that for now this is put to rest and we will deal again with it all in January after we get back from Disney
LOL Bob we are going for 7 days which is long enough for Chris to get his fix
CC ~
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Post by Emilysmom on Oct 8, 2009 20:42:55 GMT -5
Glad to hear there were no growths seen.....for whatever reason! ! ! Hopefully, Chris's lab results will improve and stay within normal limits for the January test.
Don't have to tell you to ENJOY Disney........I know you will! ! ! !
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Post by wrblack on Oct 9, 2009 5:31:32 GMT -5
Yeah, Lynn would much rather go to Disney than the hospital. Me, not so sure. Major overhaul of Magic Kingdom just getting started. Won't be finished until 2013. And they're messing with the service of some of the counter service restaurants. No matter. Hope to avoid the place for years. But Robert keeps telling people he's going for Star Wars Weekend. Only if we hit the lottery. Only if we hit the lottery for a BIG jackpot. -- Bob
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Post by Myria on Oct 9, 2009 6:07:48 GMT -5
CC- good news that there weren't any growths this time! Kinda weird though, to have the numbers that he is and not have an explanation for it. I'm glad you (and Chris!)are able to take a bit of a break from this until January. Enjoy your trip to Disney!
Oh, maybe I am a bit out of the loop here, but what ever happened with the growths on his back? Did he get the surgery to remove them? What were they?
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Post by Googsmom aka Jennifer on Oct 10, 2009 16:48:57 GMT -5
{{{{HUGS}}}}
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Post by Jessie on Oct 12, 2009 12:52:48 GMT -5
Sorry - just catching up on this. I'm so sorry you guys have to constantly worry about things. It seems like it takes forever to get the answers too!!
How is Chris feeling? He's probably just waaaayyyy focused on the big countdown for Disney, isn't he?!
Jessie
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