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Post by Myria on Aug 20, 2010 9:35:38 GMT -5
Hi everyone,
Thanks you all for your continued support and prayers! Ayden is feeling better, he is ready to go home! We are still in hospital, he has had bone scans, MRIs and mulitiple xrays and ultrasounds. The final result is osteomyelitis(bone infection) they still have no idea what is causing it, probable staph infection (no sign or MRSA, thank God) They can't find an exact bacteria to blame, however. They did the nuclear bone scan because he had a couple of little spots near his knee that showed up on the MRI, but nothing on the bone scan except for the ankle. They were checking to make sure he didnt have any abnormal spots on any of his bones(including his spine) luckily everything came back ok. That was a scary time, it is so hard not knowing whats going on!
This has been one of the longest and most draining weeks ever! We are hopefully going to be discharged today, Ayden has a PICC line in place so he can continue his IV antibiotics at home for the next month. Hopefully we can get this infection GONE soon!
Jenn to answer your question, I don't know exacty what those levels are right now (those are inflamation markers, right?) but I do know that is something they are monitoring, and will be for the next month.
Thanks again to all of you, I will keep you posted on his progress. ((HUGS))
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Post by rlm08 on Aug 20, 2010 19:27:26 GMT -5
So happy that he gets to go home! What an exhausting week for your entire family.
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Post by char on Aug 20, 2010 23:19:01 GMT -5
Prayers from Tucson.
Char
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Post by mg12061 on Aug 22, 2010 9:14:28 GMT -5
Wow, What an ordeal for your family. I'm praying he's back to his old self. Mary G.
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Post by Googsmom aka Jennifer on Aug 22, 2010 14:32:57 GMT -5
{{{{{{{{{HUGS}}}}}}} Yes inflamation/infection marker
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Post by faithhope on Aug 23, 2010 14:24:13 GMT -5
(((((((((((((((((((((((((((((((((((((((((((((HUGS))))))))))))))))))))))))))))))))))))))))))))))))))))) TO AYDEN AND ALL OF YOU!!!!!!!!!!!!!!
LOVE, Jessika and family
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Post by Jackie on Aug 23, 2010 17:20:27 GMT -5
Heyyyyyyyyyyy...Marnie started working in Peds at Georgetown just last week...have you met her yet...surely cant be more than one Marnie Dodson....
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Post by Myria on Aug 23, 2010 22:57:43 GMT -5
Aww Jackie, I wish I had met her!! I wasn't lucky enough to have her as our nurse. For some reason I was thinking maybe I would see her- I wasn't even sure what hospital she worked at! Now I'm disappointed! Ayden was discharged on Friday, he's on an IV antibiotic for the next 4 weeks. It is so nice to have him home!! Yesterday he was up and walking again, he's a little unsteady because of the incision in his ankle, but I'll take it! Hopefully this bone infection is soon a distant memory. I'm just happy to see a smile on my little guys face again!
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Post by Jackie on Aug 24, 2010 9:03:48 GMT -5
I called her before you made this last post and she told me that last week she thinks she did see y'all. She was still sort of in the orientation process I think...she is a discharge planning nurse...and she always thinks she should get all the kids with DS...LOL. I guess whoever she is working with took care of your discharge. Hopefully you won't ever have to meet her in this context...but you should get to know her...she is a lot of fun! I am Ayden is getting better!
Jackie
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Post by CC on Aug 25, 2010 0:02:49 GMT -5
WOW Myria you said "he's on an IV antibiotic for the next 4 weeks" How do you do that at home? I am soooo happy to hear Ayden is home and doing better ;D Prayers continue from New Jersey till you post up all is well and then some CC~
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Post by Myria on Aug 25, 2010 12:52:12 GMT -5
Jackie- next time I am down there maybe I will get a chance to meet her CC- Ayden had a PICC line inserted in his arm, it's an IV port that is inserted into his vein and it ends in his chest near his heart. It has a power port attachment so its pretty easy to use, I just have to swab the port with an alcohol swab, flush it with a saline syringe, swab again, hook up the medicine bag(its gravity fed so no machines need to get involved) let it run until its empty(about 15 mins) take it off, swab the port, flush with another saline syringe, swab again, then one last syringe of heparin to prevent clotting. Piece of cake. haha. It actually has become an easy routine. He doesn't play with the port or anything, it hangs out of his upper arm about 3 inches, but I just cut off the top of a new tube sock and slid it onto his arm and tucked it underneath, so he doesn't even know its there. one good thing about it, when we go to his annual Ds clinic visit tomorrow, no needle sticks for his bloodwork, they can get blood directly from his line- yay!!
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