sibling study

[wrblack]

Saw this on the List and another board, so trust Ms. Bierema won't object to me copying and pasting here.

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Do you have a sibling with Down syndrome?

You are invited to participate in a survey evaluating the effects on
siblings from living with a brother or sister with Down syndrome.
Siblings, ages 7 and older, of individuals diagnosed with Down
syndrome and their parents are eligible to fill out a survey. We are
conducting research to investigate how living with a sibling with Down
syndrome positively and negatively influences the following:

- The sibling's personality
- The sibling's relationship with his or her sibling with Down syndrome
- The sibling's relationships with his or her parents

Parents are also invited to take the survey. Parents' responses will
be compared to siblings' responses in order to examine how closely
related parents' and siblings' perceptions are regarding the positive
and negative impacts on the sibling from living with a brother or
sister with Down syndrome.

The following surveys are available on the internet:

Sibling Survey, siblings under 18 years of age
www.surveymonkey.com/s/Downsyndromeunder18sibling

Sibling Survey, siblings ages 18 and older
www.surveymonkey.com/s/Downsyndromeadultsibling

Parent Survey
www.surveymonkey.com/s/Downsyndromeparentsurvey

By choosing to participate in this survey you will help researchers to
better understand both the rewards and challenges that families
experience as a result of having a child with Down syndrome. This
research will also assist parents towards gaining insight into their
well-child's experiences and feelings. Participants can register to be
eligible for one of two $50 gift cards to www.amazon.com .

You may contact us directly if you would prefer a paper version. For
additional information or to request a paper version of the survey,
please contact Dr. Sarah Elsea at [e-mail], or contact genetic
counseling graduate student Lauren Bierema at [e-mail]. You may also reach us at [phone], ext. 123.

Thank you for your interest and support of Down syndrome research.


--
Lauren Bierema
Genetic Counseling Student
Virginia Commonwealth University
Phone: [phone]
Fax: [phone]

[rlm08]

Very interesting. I would be interested to know what their findings are once their research is completed.