Post by rlm08 on Jan 5, 2011 2:42:14 GMT -5
I have been pretty sucked up by the holidays & other things. Haven't been on the internet too often, just a quick glance at FB on my phone every now and then. Reina had her 9-month check up and they did a blood test to check for a few things. The thyroid test came back unfavorable and she now needs to see an endocrinologist. The pediatrician said that she will probably mean she will need to be on some sort of supplement, but the endocrinologist will give me full details. I am just waiting for CHLA to give me an appointment. Anyone have any experience in this area?
In other non-DS related news, I found out a couple of weeks ago that my Dad has cancer. I've heard about the experiences of others, but never anyone this close to me...hits you just a little harder. When I first found out all of the sudden I felt much like I did when Reina was born and I found out about DS and her heart...very, very surreal and in disbelief. I am angry, scared, hate having a situation in my life which I can't control or fix on my own. I have had my share of ups and downs in life, but these two things in my life this past year are of a different nature. Any troubles I've had in life have been circumstantial or due to poor choices by myself or those around me...but always things that I could make a conscious decision to act on and to change. I can't control this stuff. I can do what I can to help, but ultimately I can't change it. Not knowing what the future holds is so hard. Sorry, I'm just venting. There is a part of me that is optimistic (or perhaps naive) that he will be a survivor like so many other people out there, and there is another part of me that is scared to death. I am not ready to lose my Daddy, but I suppose we never are, right?
In other non-DS related news, I found out a couple of weeks ago that my Dad has cancer. I've heard about the experiences of others, but never anyone this close to me...hits you just a little harder. When I first found out all of the sudden I felt much like I did when Reina was born and I found out about DS and her heart...very, very surreal and in disbelief. I am angry, scared, hate having a situation in my life which I can't control or fix on my own. I have had my share of ups and downs in life, but these two things in my life this past year are of a different nature. Any troubles I've had in life have been circumstantial or due to poor choices by myself or those around me...but always things that I could make a conscious decision to act on and to change. I can't control this stuff. I can do what I can to help, but ultimately I can't change it. Not knowing what the future holds is so hard. Sorry, I'm just venting. There is a part of me that is optimistic (or perhaps naive) that he will be a survivor like so many other people out there, and there is another part of me that is scared to death. I am not ready to lose my Daddy, but I suppose we never are, right?
