Everyone update, shall we :)

[Googsmom aka Jennifer]

In light of the new posts about FB taking over I have an idea. A couple of us have updated and I think instead of the little snip~it's we post on FB a good ol' fashioned update, Uno style, is called for.

Ya think?!!

Brookster is awesome. She has been having all her tests for kindy lately. Rockin' them out for sure. Remember when I was posting about her going into the Spec Ed for two days, Kindy for two days and then the ALC class for one day. Well thats all changed now b/c of her scores on her tests ;D The kid doesn't qualify for PT anymore. She qualifies for OT but just barely b/c the teachers and I fibbed and said what she was tested on that day does not reflect daily life LOL I feel she really need some more help in that area. She will get some ST once a week b/c all of a sudden she is booming w/ words ;D Her test scores were not low enuf for her to be in the Spec Ed class so instead of that she will just be in reg. kindy w/o an aide and go to the resorce center instead of Sped for her OT and ST. I love the resorce room a whole lot better than the Sped room b/c it's three kids (all the same size. not any kid from K to 5th grade) and one teacher, who I already know well and she loves The Brookster already and has been taking time out of her days Tues and Thurs to go hang w/ Brook at her school now. The Sped room was just started this year after I was a pester and made them start one for the grade school level. Never had one before. Now after all the pestering for two yrs, Brook will not be going there but I am Thankful it is in place for the kids who need it and thrive there. That makes me happy. She will still be going into the ALC room to work on the few things she does that is considered 1st grade level one day a week. This kid, I tell ya, she is amazing!!I just can't wait for this next school year!!

Brook also has her first UTI and E~Coli. That is suckin' but she has meds and is doing better. Also, Dr Tami heard a murmmer the other day when we were at the doc for Brooks peepee test. Were going to go back to the heart doc after being realeased two yrs ago. I'm a bit freeked but hopefully in true Brookster fashion, she will be fine. You know me, paranoid freek I am, has been laying in bed at night when she is sleeping w/ my stethascope listining to her heart. Some nights it sounds ok, other night it sounds all weird. I don't know Even though I passed teh first round of school (yea me) it's not till next round here in May that we learn heart sounds

Well, my hand is numb and we need to hit the garage sale at church so I best go. I love Uno!! {{{{HUGS}}}}

[wrblack]

What? You didn't see my comment on the Miracle League photo my wife put on FB?



ML started last Saturday. Have second game this Saturday, weather permitting. Charlie's little brother has had his first 4 Little League games rained out. -- Bob

[dannysmom]

I'd love to update about my Danny!!! I'm part of this board and 1 more...and do feel FB has really taken away from all the wonderful conversations, information and good stuff being shared. I remember like it was yesterday (although it's coming upon 6 years) that I found Uno. My first board, my first attempt at figuring out what Ds was and what it was going to mean for my son. I love to learn and share stories...and most of all, I love offering that helping hand to new moms (and dads) who are new to the diagnosis. FB doesn't offer that....if you don't have a friend in the Ds community...FB isn't going to get you involved...you need a board like this.

So, my Danny.....almost 6 years old (June 7th). He will enter kindy in the fall at our homeschool. He'll be in unique setup because our city doesn't offer full day kindy. But, for Danny and a few other chldren....he will attend the morning AM kindy session in the gen ed class...then in the afternoon, spend the PM kindy in a self contained spec ed classroom. Kind of the best of both worlds. Danny just finished his 3 year re-evaulation. His strongest areas are gross motor (no more PT), and speech. He was evaulation to have 85% intelligble speech. He's very vocal about his wants and needs and his newest obsession is telling knock knock jokes!!! By far his toughtest area is OT. He doesn't have the handle control to even be tracing letters yet. He knows almost all his abc's, counts to 10, all colors, shapes, he sight reads many words which is incredible to see. I did allow the IQ test...and I know that's the topic of many FB discussions....but I decided to allow it to be done. My cousin is a guidance counselor in our town and upon her urging...I allowed it. She said there are children in every school in the our city with IQ's in the 70's who receive NO help. She said with all the budget crisises....school are looking for ways NOT to give children IEP's. So in the end, we allowed the testing. He cooperated with all of the different tests they gave in the re-evaulation and noted he was focused, seemed to undertstand it was a test, and overall they feel they got very good results. I also agree with that when I see the results. They are consistent with what I see has his strenghts and weaknesses. His IQ was determined to be 67. The day before I was given the results...I actually guessed it would be that. Not sure the number means anything in the real world...but they got their number, checked their box...and my Danny will get all the services he needs.

The psychologist shared a few questions she was impressed he knew. She asked him "what is a hero"? His answer was Buzz Lightyear. She gave him credit for that because he is a Super heroL LOL. Another one was...."where does milk come from". She said most kids his age answer COW, but Danny said Mommy.....and she said Mommy is actually one of the acceptable answers! So, to sum it all up, I'm glad the testing is over.....he's made such progress....and we are now looking forward to the elementary years!! My daughter currently attends the school, and I myself went there as well. One of the first thoughts I remember having was wondering if Danny would need to go to a special school...or if he too would go to our homeschool. Well, I now know the answer!!! His kindy class is the exact same room as I went to.....let's talk about crying a river of tears on the morning I drop him off LOL!!!!

Not sure if I ever posted his school pic...but here is my Danny

[Emilysmom]

GREAT idea, and great updates! ! ! I haven't seen a pic of Danny in a while and .......wow! He has grown up and is one handsome little guy! ! ! What a great picture!!


Since I just did an update on Emily the other day, I'll add just a bit of a "re introduction" for any new members.......or for anyone who has forgotten me! Feels like I've not posted in such a long long time, and I've missed Uno Mas! !

I am Susan, mom of 4 kids.........oh shoot, none of them are kids anymore! ! ! When did that happen?? We have an almost 30 yr old son who lives in CA and his precious daughter, Alexis (our only grand daughter, so far.). We have a 23 year old son who got married last August to a wonderful woman who adores Emily; YES! Then, comes Emily, who is now 19 and a Senior in high school. The vision loss has sucked a lot of the FUN of her Senior year out.........for me. But, SHE is having a great time and enjoying every minute of it!! The girl is truly amazing. I'll post pics, soon. And, last but not least, we have Jordan.........our totally unexpected blessing! He is now 17 years old and is the BEST little brother Emily could have hoped for.


Susan

[Myria]

Update to come..Momma's tired right now : )