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Post by kg91207 on Jul 19, 2011 11:51:17 GMT -5
Oh my I want to kiss those cheeks!!!! Yes, the info can be overwhelming. I remember that when Kaelyn was born and when I was diagnosed with Diabetes. I would definitely give yourself permission to take a step back now and then to un-overwhelm yourself! hee hee. The best things I can suggest are 1. early intervention-that's great they are starting PT. States require early intervention and there are programs everywhere for that. 2. Trust your instincts and don't be afraid to speak up. I wish I had a few times in the past earlier than I did, because I think Kaelyn would be further along. But I have lived and learned. and 3. the best book I think to start with is Babies and Down Syndrome, put out by Woodbine House Press. This book was handed to us when we got the results of the amnio, and I STILL refer back to it almost 4 years later. Our friends and family have read it. Oh, and 4. connect with others, here and in your hometown, I always say other parents are your best resources!!!!
FYI-my daughter is almost 4 and a little diva. I also work as a developmental disability specialist for kids in foster care in Texas and love it. I can find you just about any resource in Texas. I just wish I knew the resources in other states!!
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Post by Kaylis on Jul 27, 2011 4:38:54 GMT -5
Welcome! I hope you are as amazed as I was at how a weak torso and neck area can turn into a wild and crazy climbing addict. That's what happened to my son. He's seven now, still has low muscle tone (so less endurance), but he's as strong as an ox. When he was tiny he couldn't lift his arms more than a third of the way up in the air while lying on his back. Now he's mastering monkey bars and can climb virtually any playground equipment.
Even when it seems quiet around here, there are still people around. We'll be here for you and your adorable daughter.
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Post by momofrussell on Jul 28, 2011 7:57:42 GMT -5
Welcome!!!!! I have 3 kids, and my son, Russell is 13 and has DS.
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