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Post by tracey26 on Jul 16, 2011 16:36:16 GMT -5
Hello everyone! I'm a new DS mommy! I also have 3 other children. I've been enjoying my 7 week old daughter Savanna every day. Since shes been born we've been overloaded with information on down syndrome. Its a little overwhelming so any advice would be greatly appreciated.
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Post by Googsmom aka Jennifer on Jul 16, 2011 19:24:57 GMT -5
HI HI HI  Welcome to Uno!!! THE BEST forum out there. The parents on this board are awesome. I'm Jennifer, Momma to The Brookster who is 5 yrs old. Congratulations on your sweet new addition. Got any pics? We LOVE pics and new babies areound here  {{{{{{{HUGS}}}}}}} |
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Post by Chris on Jul 16, 2011 21:36:56 GMT -5
Welcome to Uno Mas! My advice is to love your baby. Mine was such an easy and content baby. I have a 5 week old granddaughter who is a big crybaby. Sarah never cried for the first three months. It was great! The first year can be overwhelming because of all the potential health problems. I know we had doctor appointments all the time. Just don't forget she is a baby first. The Down syndrome is secondary. Congratulations on your new daughter. She will bring you so much joy! Chris |
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Post by Emilysmom on Jul 16, 2011 22:56:34 GMT -5
Tracey,
Welcome to Uno Mas! ! ! Congratulations on the birth of your baby girl!
I love her name.
My daughter with Down syndrome is about to turn 20 years old, and the years have flown by! I do remember that it can be overwhelming at first, but just take one day at a time and enjoy all the milestones. Savanna will amaze you every day.
Looking forward to getting to know you and hearing all about Savanna.
Susan
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Post by logansmom on Jul 16, 2011 23:02:52 GMT -5
Congratulations on the birth of your little one! My oldest is 8 and was diagnosed with Down syndrome at birth. Our best advice (and it came from a pediatrician in NICU) is to remember that your child is a baby first (just like Chris said). It's so easy to get overwhelmed with the diagnosis if you're not careful. Looking back, most of us regret losing any amount of time "worrying" about things that usually work out just fine. Does your pediatrician have any experience working with children who have Down syndrome? If not, you might print off the recommended health care guidelines and growth charts to give them. ndss.org/index.php?option=com_content&view=article&id=70&Itemid=139&limitstart=2ndss.org/index.php?option=com_content&view=article&id=71&Itemid=91Welcome to Uno Mas! We can't wait to learn more about Savanna! Kim, Logan (Ds, 8) and Carson (5 1/2) |
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Post by Jackie on Jul 17, 2011 11:15:26 GMT -5
Hi...welcome to you and little Savanna  My daughter Emily is 31 now and lives about 500 miles away from us by choice in a town hear her oldest sister. She is an artist in Austin TX. She was included throughout her school years and graduated with the kids she started kindergarten with and went for two years of post secondary school at Eastern New Mexico/Roswell 200 miles from us in Texas. I can just imagine the 'overload' you speak of. When Emily was born it was pre cyberspace in 1980 and we just had one or two very good books to learn from. I think now days it MUST be a bit confusing with lots of contact with well meaning people (like us LOL) quick to share our experiences. But we are a great source of good information and the people here are super friendly and interested in everyone. We have as a group experienced just about every single thing good and not so good with our children who have DS so you can ask away whenever you feel like it. Meanwhile welcome to our group and as Chris advised...first thing is to just LOVE little Savanna just as you did your other children. |
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Post by tracey26 on Jul 17, 2011 12:06:54 GMT -5
Thank you everyone for all the advice and reassurance! I've been trying to download pictures and every picture the file is to big any advice on how to get a pic up?
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Post by Jackie on Jul 17, 2011 12:11:08 GMT -5
I am not very techie...but I do mine when I do them thru photobucket
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Post by tracey26 on Jul 17, 2011 13:03:22 GMT -5
Here's Savanna! Again thank you everyone for your advice! Attachments:
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Post by Emilysmom on Jul 17, 2011 16:08:10 GMT -5
Oh, she is a little doll! ! ! Thanks for posting her pic!
Looking forward to getting to know you and hearing all about her!
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Post by logansmom on Jul 17, 2011 17:23:17 GMT -5
She's adorable!
Kim, Logan (Ds, 8) and Carson ( 5 1/2)
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Post by Googsmom aka Jennifer on Jul 17, 2011 18:28:19 GMT -5
OMGoodness!!! Could she be any more adorable!!!!
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Post by Jackie on Jul 18, 2011 8:11:23 GMT -5
She is precious and oh so tiny...you forget...LOL
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Post by tracey26 on Jul 18, 2011 16:27:23 GMT -5
So we just had an assesment done on Savanna's mobility and it looks like as of now we have to work on strengthening her neck,chest and arms. Its not to bad but we're starting physical therapy once a week. Her development was good and on track so we'll do another assesment in 3 months for that. Hopefully all this works out for her.
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Post by Chris too on Jul 19, 2011 9:13:51 GMT -5
Yay! I'm so happy that you found us here on Uno. This is the perfect place for encouragement, tips, brain-storming, celebrating triumphs, and sharing struggles. Savanna is a cutie-pie My advise: keep up the great work! You are on it, Momma - loving and enjoying her, taking struggles in stride and taking the needed steps to progress, and joining us here at Uno where we can cheer you and Savanna on as she grows Welcome to Uno! |
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Welcome to Uno!!! THE BEST forum out there. The parents on this board are awesome. I'm Jennifer, Momma to The Brookster who is 5 yrs old. Congratulations on your sweet new addition. Got any pics? We LOVE pics and new babies areound here 
&
Susan, Proud mom of Michael (32), Justin (25) Emily (22ds), and Jordan (20).
My daughter Emily is 31 now and lives about 500 miles away from us by choice in a town hear her oldest sister. She is an artist in Austin TX. She was included throughout her school years and graduated with the kids she started kindergarten with and went for two years of post secondary school at Eastern New Mexico/Roswell 200 miles from us in Texas.
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