Post by Monique on Apr 5, 2014 2:11:44 GMT -5
Wow, i just checked back in here after being absent for at least two years and on and off for the last 7? Gosh, i remember when i found this board in 2001. My son Jameson was about 1 yr old. Everyone got me through those first 3 to 4 years. Then we moved and then I guess life kept happening and then Facebook. Jameson is 13 now and he has a 12 yr old sister (Jasmine) and a 10 year old sister (Lexie) whose births were both celebrated on here with all the old timers who may remember me 
We moved from Orlando to Long Island in 2005. Jameson gets great services here. He is non-verbal but uses an ipad and samsung tablet for talking (provided by the school), he still gets PT 1x week, OT 2x week, Speech 5x week, Feeding therapy 2x week and potty training 1x a week. He goes to a school that has been great although it is only for children with disabilities, i feel it is the right setting for him. All these services are provided through his school district (not without a little help from me of course LOL). He still only eats pureed food and I cant wait for the day he can finally lose those pull ups! We are close. Even with all that he really tries to be independent as much as possible, he loves to bowl, and is an excellant swimmer!! He even got on a surfboard last year when we went to North Carolina. 11 years of swimming lessons really paid off!! It's definately been a more difficult journey than i had hoped. I see so many children with Down Syndrome that so much more social than him, and can talk and higher functioning. But no one can beat his smile and he is a charmer and my forever sweetheart. Just weird to think of where i was then on this board and where I am now. The years go fast. I miss my Unomas21 friends!! I am going to look through the posts to see how its been for everyone.
For anyone that may have a suggestion for a FB page, please let me know. I cant seem to find any support groups and why not start an Unomas21 page? Can't we have both? That's just my desperate plea to pull you over to the dark side LOL! Gonna try and check back more often. I'm not even sure how I will know if anyone reads this. Do i get an email?
i'll figure it out. Miss you all and wishing you well!
Monique (p.s. i think i added pics. not sure it worked. excuse the xmas pic but most recent family one )
We moved from Orlando to Long Island in 2005. Jameson gets great services here. He is non-verbal but uses an ipad and samsung tablet for talking (provided by the school), he still gets PT 1x week, OT 2x week, Speech 5x week, Feeding therapy 2x week and potty training 1x a week. He goes to a school that has been great although it is only for children with disabilities, i feel it is the right setting for him. All these services are provided through his school district (not without a little help from me of course LOL). He still only eats pureed food and I cant wait for the day he can finally lose those pull ups! We are close. Even with all that he really tries to be independent as much as possible, he loves to bowl, and is an excellant swimmer!! He even got on a surfboard last year when we went to North Carolina. 11 years of swimming lessons really paid off!! It's definately been a more difficult journey than i had hoped. I see so many children with Down Syndrome that so much more social than him, and can talk and higher functioning. But no one can beat his smile and he is a charmer and my forever sweetheart. Just weird to think of where i was then on this board and where I am now. The years go fast. I miss my Unomas21 friends!! I am going to look through the posts to see how its been for everyone. For anyone that may have a suggestion for a FB page, please let me know. I cant seem to find any support groups and why not start an Unomas21 page? Can't we have both? That's just my desperate plea to pull you over to the dark side LOL! Gonna try and check back more often. I'm not even sure how I will know if anyone reads this. Do i get an email?
i'll figure it out. Miss you all and wishing you well! Monique (p.s. i think i added pics. not sure it worked. excuse the xmas pic but most recent family one )
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