Post by kimnz on Jun 7, 2005 16:35:31 GMT -5
Hi there,
well we have been on a bit of a mission. Our son Jordan (now aged 7 years old) had surgery for Hirschsprungs disease resulting in a colostomy. He just recently had this closed they had to take the rectum and part of the colon as well as prolapsed colon so he now can go to the toilot like other children.
We are schooling him at home at present due to bowel issues but hope that possibly next year we will have him back at school.
The operation was not pleasant as you can imagine and it was really hard watching Jordan go through so much.
I am finding it difficult to find resources for schooling at home that Jordan will concentrate on, he understands alot but when it comes down to trying to get him to do any formal schoolwork, things are a real chore andf battle.
I do not have much support when it comes to formulating a proper curriculum for him and at the moment do not have any special teacher input. The teacher that we have on the correspondence school does not seem to have too much idea on how to teach a child with Down syndrome. I have 3 hours of teacher aide support in the mornings but the teacher aides are relying on me to give them the appropriate work for Jordan. It's tough as he is being uncoperative often when it comes to actual work. He will do the same type of activities if I use the computer, he is very good at this.
It's so frustrating having him refuse to do the work. I know that he obviously doesn't like it but trying to access appropriate schooling materials is quite a chore.
In desparation I phoned a lady in Australia and she thinks that the materials we have been given to use through the education system just aren't meeting his needs.
Any suggestions??
Kimnz
well we have been on a bit of a mission. Our son Jordan (now aged 7 years old) had surgery for Hirschsprungs disease resulting in a colostomy. He just recently had this closed they had to take the rectum and part of the colon as well as prolapsed colon so he now can go to the toilot like other children.
We are schooling him at home at present due to bowel issues but hope that possibly next year we will have him back at school.
The operation was not pleasant as you can imagine and it was really hard watching Jordan go through so much.
I am finding it difficult to find resources for schooling at home that Jordan will concentrate on, he understands alot but when it comes down to trying to get him to do any formal schoolwork, things are a real chore andf battle.
I do not have much support when it comes to formulating a proper curriculum for him and at the moment do not have any special teacher input. The teacher that we have on the correspondence school does not seem to have too much idea on how to teach a child with Down syndrome. I have 3 hours of teacher aide support in the mornings but the teacher aides are relying on me to give them the appropriate work for Jordan. It's tough as he is being uncoperative often when it comes to actual work. He will do the same type of activities if I use the computer, he is very good at this.
It's so frustrating having him refuse to do the work. I know that he obviously doesn't like it but trying to access appropriate schooling materials is quite a chore.
In desparation I phoned a lady in Australia and she thinks that the materials we have been given to use through the education system just aren't meeting his needs.
Any suggestions??
Kimnz
