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Post by sarahp on Feb 24, 2006 7:41:56 GMT -5
Has anyone had any experience with Raynaud's? If Cohen gets cold at all, his hands turn dark purple. When we try to warm them up by massage, it seems like it really hurts him. Any suggestions?
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Post by Emilysmom on Feb 24, 2006 8:40:50 GMT -5
My 18 year old son has Raynaud's too. I have photos of him as a newborn with little purple blotched hands, and at that time I remember thinking it was just too cold in our house! (He was born in January). So, we kept sleepers on him that had little coverings for his hands. Now, it comes and goes and he says it really can be painful at times. When it hurts, he says it does not help to rub them and sometimes that makes it hurt more. We asked his doctor about it, and she said if it becomes too painful for him, she can prescribe medication to help the blood flow improve in his hands..............but since all meds have side effects, she wanted to wait and see if he really wanted to do that. He says that right now, it's ok.
Susan
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Post by ALLISA on Feb 24, 2006 10:51:19 GMT -5
Welcome to Uno ! While I'm sorry to say I have no answers for you, I did want to say that I am so glad you posted this. My daughter is 6 and ever since she was born.....her hands and feet would be purple/gray in the cold and red red red in the warm. I've ALWAYS asked her docs if I should be concerned (especialy since she DID have a heart defect, you always worry about circulation) and they alwasy said she just had good "mottling"....now I have an actual name I can ask them about.....and I'm slighlty irritated that no one ever thought to wonder themselves if she had this. Anyways.....sorry I can't help you, but you did point me in the direction of a diagnosis and when I looked at different sites I think she seems to fit a lot of what they say. Best of luck with your son and thanks for giving me something to think about ! Allisa
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Post by Claire on Feb 24, 2006 23:25:20 GMT -5
Hi I myself have been diagnosed with reynaud's disease a while back and so has my sister. Yes my hands and feet get cold very fast, and they usually thurn white then purple and it burns. Hope this helps. Their are a lots of site on Reynauds disease if you want to learn more. Just write it in your search engine and it will pop up.
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Post by sarahp on Feb 25, 2006 1:22:16 GMT -5
Thank ya'll for the input about Raynaud's. It really freaks me out when he does that. Thanks for letting me know that it does hurt to rub them. I guess that I will just have to cover his hands up when it is cold.
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Post by Debbie on Feb 28, 2006 0:29:49 GMT -5
sarahp,
Hi and welcome to Uomas!
I am Debbie as you can see. I have Mosaic Down syndrome. I am forty five years old. I have Raynaulds too. I didn't know why my hands would turn purple and blue or why my thumb or fingers would twinge or experience sharp pains. I have a difficult time touching and handling ice. And the cold makes it much worse! I have read though that by putting your hands under your arms pits can warm them up. I had to stop swimming because I would get so cold. My feet would turn almost purple. The vein's in my wrists would pop up. It does that in my arms too though. My feet are sometimes red when I take my socks and shoes off. The veins are sticking out. I don't take anything for it but I try to move around and exercise. I don't always do that of course but it does help to exercise. The circulation can move around better. When it does get painful I take an Ibuprofen or two and that helps. In the summer time, when the air conditioners are on high, I have to wear a light sweater because my arms get so chilled. By the summer time though I am taking my walks and that does help alot. I have poor circulation and so I have to watch my caffeine although that is hard too. Caffeine restricts the circulation flow I have read. I hope some of this helps you some.
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