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Post by jeannie on Jun 8, 2004 14:54:04 GMT -5
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Post by amyzimoski on Jun 8, 2004 16:59:57 GMT -5
I think that website is someone's attempt at getting rich and feeding off of people who are desperite for an answer to something that can not be cured. That website actually made me mad! Websites like that are one thing that our genetisist told us to beware of and to stay away from.
God Bless!
Amy
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Post by PaigesMom on Jun 8, 2004 17:18:44 GMT -5
Well, I'll say this....there is another company called International Nutrition, who makes something called Nutrivene - D.
One of the big components is Piracatam, which is "supposed" to improve cognitive functioning and boost the immune system. People have "reported" that this product "took away" their childs DS features, etc. etc. etc.
International Nutrition DOES NOT even support these findings.
I'd be very wary of any product claiming what this one does. I believe there are other products (homeopathic) that given singally for certain reasons can certainly help, but not a miracle drug like this one.
Interested to hear what others think or if they have used glyconutritionals and what their results were.
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Post by updowns on Jun 8, 2004 17:34:39 GMT -5
Had a look at the website and to me it smacks of quackery.
Stella
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Post by shellk on Jun 8, 2004 19:36:26 GMT -5
I just really believe that if ANY of this held any truth . It definetly would have made the evening news and like 60 minutes, 48 hours......SOMETHING....and the pics are blurry..I'd look the other way fromthat one...And I had Kourtney on Nutivene-D for the first 7-8 onths of her life and it really maade no difference....I just use plain ole' Flintstone's Fred and Barney have yet to let me down....LOL Interesting to know that there are sites out there like that thanks for the info. Michele
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Post by christie on Jun 8, 2004 19:56:52 GMT -5
Seems like just another rip off to me BUT thats just my opinion CC
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Post by Emilysmom on Jun 8, 2004 20:07:01 GMT -5
Interesting timing!! Just a few weeks ago, a lady at my church gave me a booklet to read and told me she wanted to talk with me after I read the booklet. The whole book was about the little girl whose picture is at the bottom of this website (on the home page). I was somewhat interested in it, because I had talked to a woman a little over a year ago at a Ds conference who was using glyconutritionals with her daughter with Ds. So, I read the booklet with interest. What bugged me was that I took the book back to the lady at church and she raved on and on and on about how "pictures do NOT lie"......she was referring to the "fact" that the little girl seemed to have fewer "Down syndrome" facial features after taking the glyconutritionals. I do not like the idea that anyone would think there is something WRONG with Emily's face, and would want any nutritional supplement to "FIX" it!!! IF this product (or others) can improve her overall health, that might be a different story. We have used Nutrivene in the past, and we did see good results.......and yet, when we stopped using it we didn't really notice anything negative either. When Emily was in preschool, we used Nutrivene consistently and we were pleased by the fact that she had very few colds, upper respiratory infections, etc and her hair was shinier than it had ever been before......or has been since! It seemed like we were giving her every opportunity to learn because she didn't have to waste time with illnesses. I may never know how much this helped her......I do feel strongly that it did NOT hurt her at all. One thing we did not expect was that the nutritional supplements would CURE her.......I'd beware of anything if the ads even hint of that!! Susan
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Post by meghans_mom on Jun 8, 2004 20:31:43 GMT -5
This is from Dr Len Leshin's website... it's a pretty good read, I think. This stuff is sold by AMWAY, from what I can tell (if it's the same product Dr L is talking about)... www.ds-health.com/ambr.htm
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Post by rickismom on Jun 9, 2004 2:23:44 GMT -5
Well, yes pictures don't lie, but PEOPLE do! Actually, some pics of Ricki show her in a much less favorable light than others. Last week I married off one of my older sons (why else have I not written a thing here for a whole week?), and I specifically instructed the photographer to wait until she stops her big (too big) smile, before snapping pics of her. I am waiting with bated breath to see how the pics came out... [Last wedding, 5 years ago, she looked TERRIBLE in all the pics, as she was smiling TOO big! (Now I know why thy say an "Idiotic" smile......) (I'm ducking, throw all the tomatos real quick!)] Look, if this stuff REALLY worked, they would sell theirt idea to a big drug companny REAL quick, for MILLIONS! Forget it! Its a "duckeY" ("quack,quack") site!
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Post by christie on Jun 9, 2004 22:18:25 GMT -5
Hmmmm, well guys I do disagree, pictures can certainly lie, if done for advertising purposes. Man oh Man they can do all kinds of things in photography to make one look better then they may in person. Sooo sorry but I just had to add you can't always go by a photo either
CC
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Post by SuziF on Jun 10, 2004 14:15:04 GMT -5
Larie, From what I can see the web site posted isn't Amway. Amway as a company hasn't existed for about 5 years. At that point it was renamed Quixtar as an attempt to get rid of all the bad vibes the old name had associated with it & try to make itself an internet shopping company. Years ago we looked into the compant for a brief time & we still get some updates.Most of their vitamin products are marketed thru something they call BetterLifeInstitute under the brand name Nutrilite.I've never seen any of their literature make any DS claims.(Actually if they did I'd love to pounce & call them on it as I still have their corporate numbers)
Suzi
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Post by Jenifer on Jun 12, 2004 0:22:01 GMT -5
I have one word for all of you...Photoshop. You can fix and manipulate any photo and make a toad look like a prince with programs like Photoshop. If it sounds too good to be true, it probably is.
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