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Post by Danielle on Jun 16, 2004 13:12:50 GMT -5
Sammy,
Hang in there -- I have no experience with feeding tubes so I'm not much help -- but I know several parents here have and I'm sure they have advice, and can relate to your frustration and help guide you through this.
Danielle
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Post by Chris on Jun 16, 2004 15:08:56 GMT -5
My daughter was on an ng tube for three months. It was one of the most stressful things I have ever been through! Between my daughter pulling her tube out and the kangaroo pump not working......  It was the longest three months of my life! Let me know if you need anything. Chris |
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Post by ashliesmomheidi on Jun 16, 2004 20:54:20 GMT -5
My daughter had an NG tube from birth to around 6-7 mos old, We also had the Kangaroo pump, If you want to talk you can email me at roghid@cox.net
Hugs Heidi
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Post by MaggiesMom on Jun 16, 2004 23:39:44 GMT -5
feeding@yahoogroups.com is a good group to help with feeding problems.
Maggie was NG fed for 5 weeks after birth. We still have lots of feeding issues, but she is eating well and maintaing a good weight.
Take care.
Robin M - maggie's mom
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Post by Evans Dad on Jun 17, 2004 17:20:44 GMT -5
Ahh feeding tubes --
Our son Evan had an NG tube from Birth until just before his 1 year birthday. We understand the frustration, we worked hard with Evan finally one day like everything else it clicked. Our doctors had been discussion a G-tube so one weekend while at home he again pulled his tube out and we decided to leave it out, it sure is funny how well they eat when they are hungry.
If you have any questions or need any supplies let me know, we were fortunate to have (own) the kangaroo pump and some other stuff. Email me at swanny297@yahoo.com
Clint
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Post by gwen on Jun 17, 2004 20:02:19 GMT -5
My son has a g tube. I'm pretty good with med stuff, but I was surprised at how it upset that MY son needed a g tube. Now, I think of it as a body piercing. More than just an ear but not as yucky as tongue.
My friends older daughter HAD a g tube (now eats OK but slowly) the younger son once had to take bad tasting medicine. He was not yet talking so he clamped his mouth shut and lifted his shirt and pointed to the same spot where his sister's tube was. As if to say, "That stuff is not going into my mouth, just give me a g tube like my sister."
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Post by gwen on Jun 17, 2004 20:08:45 GMT -5
I did'nt like the kangaroo very much.
I like the Ross Flexiflo Companion. It uses a bellows pumping action instead of the drip. It's more dependable and has less pointless alarms. I works at night, in the car, on a wheelchair, or on me like a fanny pack while I carry my son.
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It was the longest three months of my life! Let me know if you need anything.