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Post by shellk on Jul 6, 2004 13:48:59 GMT -5
So sorry to hear that Noah is not doing better  I will definetly keep him in my prayers, I am glad to hear that your other little ones are going to be fine..Hope your mother has a happy Birthday Michele |
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Post by Deannalee on Jul 6, 2004 20:15:50 GMT -5
I just wanted to let you know I will be praying for you and Noah. My little Justin has been a notorious frequent flyer to the hospital. He has been plagued with respiratory problems since his birth 11 weeks early.
He had just had surgery after his sats dropped to 8%. He had been obstructing fir months and they finally listened to me after that near death episode. He is still on O2 after his surgery. He just got sick for me last night with temp, irritability, increased respirations and heart rates in the 200's. Thank God for Zoloft!!! I have been on that since his twin died last year. I know what you mean about the coping. I want to die sometimes because the stress and worry for his health, being a single mom, and financial loss when he is in the hospital. Add to that a dtr with ADHD and a son with severe behavior problems.
If you ever want to vent, you can email me personally. It sounds like Noah and Justin are so very similar with their medical problems. I will gladly be an ear. God Bless you.
Deanna
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Post by alisonzmom on Jul 6, 2004 23:29:13 GMT -5
You are all in our prayers..... I just truely wish there was more I could do to help you out! As others have said, Ask for help... I know that can be hard to do. When Alison was born and then spent the next 3 weeks in the hospital after surgery when she was 2 days old, I had to ask friends and neighbors to help out with my two older daughters who were home for 2 weeks of school vacation. I was truely amazed by the response of neighbors, some of whom I knew only well enough to say hello to as we'd bump into each other shoveling snow or mowing grass!!! They were truely a blessing!!! The help I got definitely helped me to cope with all that was going on at that time.
Please know that venting your fears and frustrations here is as important as when you're sharing all those triumphs that as sure to come!!! Vent away!!
Barb
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Post by momofrussell on Jul 7, 2004 18:17:37 GMT -5
BIG HUGS again!!! I sure hope Noah makes a turnaround REALLY SOON!!!!
Prayers for Noah and you... I am it was just a bad cough for the other too... I hope you get some answers from the docs... !!!
Hugs!
A.
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Post by PaigesMom on Jul 7, 2004 19:44:15 GMT -5
I am so sorry to hear about Noah...prayers coming this way.
I cant add much more than the others have already said. Hopefully with your family around it can take off some of the pressure.
I know what it is like to have 2 very sick children - could not imagine 3.
Best of luck and keep us informed.
Debbie
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Post by SuziF on Jul 8, 2004 9:27:34 GMT -5
Just stopped by to see if there's any news yet. Hope you get some answers today. Prayers for Noah!
Suzi
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Post by steffipoo on Jul 9, 2004 16:28:32 GMT -5
OMG I am getting goosebumps. GIRL... I am soo sorry you are having to go thru such a crazy insane unbelieveably rollercoaster time. I know this is one more thing to add but have you applied for respite? Might be just what you need for the next year. Why is Noah desatting so low? Hun it must be overwhelming and frightening. My girl Olivia spent from 8 and a half months till almost 14 months in the hospital. Her older brother is a year and 2 months older.It was hell . I felt soo bad for him and then for her and my goodness I was a mess. AND 12 years of Catholic school guilt over who I should be with and yikers. My mind was constantly going I never slept. RESPITE will help with the other kids so you can spend some time with them and someone you know and love can spend their time with Noah at the hospital while you recoup. We currently get 21 hours of respite a month. Which means I have 21 hours to spend with Kyle(livs older bro) while my sister( who's my repite worker and gets paid 8.95 an hour thru our regional center) will watch and play with Liv. EVEN to sit and watch a movie with my boy is a joy cause we need to be together without Liv(who's very much a limel;ight stealer and time stealer) and then I can concentrate on Kyle. I even have my sis watch em both one sat so me n jeff can go away to a movie or to the beach.GOOD LUCK HANG IN THERE!!!Steff
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Post by steffipoo on Jul 9, 2004 16:33:44 GMT -5
One more thing if you apply for respite make sure you let them know you are having a major HARDSHIP. EXPLAIN EVERYTHING>... they may ask for a docs letter get one from the doc while you are at the hospital. When we had livs afterschool program my hubbys liver doc wrote a letter to whomever it may concern stating that my hubby was waiting for a liver transplant etc and the associated medical problems that go along with that. I sent that to the regional center when we reapplied for Livs afterschool program which they had cut to only 15 hours a month and VOILA she got 60 hours a month. They can be very understanding in difficult situations let em help you while you need it you can thank em when your sanity returns.  |
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Post by TriciaF on Jul 19, 2004 1:10:05 GMT -5
Hi there,
Just wondering and hoping that you and Noah are doing OK. Sending prayers.
~Tricia
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Post by mumofnoah on Jul 19, 2004 21:11:39 GMT -5
Firstly I wanted to say that I think I am repeating myself but I'll say this all again anyway.
My family came to visit and it was absolutely wonderful. The night they arrived though we received a phone call to say that Noah had been put into ICU. He had desated to 35 and not come out of it himself. He ended up on Bubble CPAP. After loads of prayer he miraculously came out of ICU 2 days later only on a wif of O2 when he is asleep. He is now growing at the rate of knots, not putting on any weight but growing taller. He is rolling over and the dietician has said that they want to put him on solids because his bottles are not satisfying him. This is all great news but his medical condition has not changed and although the dr is absolutely amazed at Noah's recovery he is still quite negative about his future.
At exactly the same time as Noah went into ICU, my dad (who lives in a different state) had a stroke. So this weekend just gone, I flew to see him (taking Elijah our 15 month old with me). He has lost all control of his right side and is depressed, sad, devastated, angry, in shock, frustrated etc. I am in shock as well. I'm just not sure how much more I can handle.
Another good thing that has happend is that a government department here in AUstralia, the Department of Childrens Services, has overridden the waiting list that I had Hannah and Elijah on. They are now enrolled at a local Day Care Centre just one day a week on fridays. Also I will be getting respite for Noah every friday morning for a few hours. I don't know if I will know what to do with myself, but I'm really pleased.
Please know that I am so thankful for all your support, prayers, and life stories. Sometimes I feel quite alone in all of this but you have all been such a refuge for me. Thank you from the bottom of my heart.
Rebecca (Noah's Mum)
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Post by Tammy on Jul 19, 2004 21:19:49 GMT -5
Rebecca...
I am thinking of you and your family.
Please know that we are here for you.
Where in Aus are you?? I am in Western Australia... waaaay up north, and very isolated!
If you need anything, or if there is anything I can help with, just ask...
Email me anytime or use Yahoo...my ID is Emikat.geo...
Huggles to Ya and family...
Tammy.
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Post by shellk on Jul 20, 2004 10:02:32 GMT -5
Rebecca,
Sending prayers to you and yours still hoping that things will pick up for you..Good luck honey and sorry to hear about your dad.
Michele
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I will definetly keep him in my prayers, I am glad to hear that your other little ones are going to be fine..Hope your mother has a happy Birthday
