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Post by Robin on Jul 19, 2004 12:03:04 GMT -5
I havent been here in a few days so I didnt get to see your posts, but I am chase's mom, Chase with the terrible behaviors. I was so shocked when I was reading your posts, it sounds like Chase and Chandler came from the same mold!!! Chase is 12 now and we have finally (it scares me to say it) found a medication that has helped ALOT after several hospitalizations and lots of specialists. We live in Michigan and right now Chase sees a dr ther in the childrens pysch dept who has helped tremendously. Chase also has ADHD btw. He has been on soooo many medications and I know each one works a different way with each child as our kids are all so different but maybe our expirence can help? They finally took Chase off of all his medications and started over. And before I go any farther I wanted to tell you they refuse to put Chase on Straterra even though we begged because they said they have seen way too much evidence that children with DS have terrible effects from the strattera, so maybe that is one of the culprits in his behaviors? Chase is now taking Abilify and that is it although tomorrow we are going back to talk about adding some aderral now that he is stabilized on the abilify because he is soooooo hyper antsy right now. If we get any bad behaviors he will be coming right back off of the aderral but we have to try for his sake. The abilify is new, he has been on it about four months or so and it has helped TREMENDOUSLY with his aggression, his anger, and to a degree with the ADHD. He is still very impulsive though which is another reason we are hoping re-adding the aderral will help. Please feel free to email me anytime if there is anything I can help with or you simply want to vent. Chase can be so extremely overwelming! hugs to you both, Robin
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Post by Ashlea on Jul 20, 2004 20:40:20 GMT -5
Just when I thought it could get worse.... Chandler was kicked out of Summer Zoo Camp today which just started yesterday. The education director said they "just don't have the resources to deal with him". They did provide him with a one on one volunteer (teenager). They said he runs away from the group, kicked an animal yesterday, threw a box of crayon at another child, and physically tackled another little boy and it took 4 adults to get him to let go. Luckily the YMCA has agreed to let him come the rest of the week there.
I am so incredibly sad for him. The zoo called me at work today and told me about his behavior, of course I'm sitting at my desk with tears pouring down my face. I just can not understand what could make him act so mean. It's almost like he's in a trance. When he got home, I asked him about hurting the other little boy and his response was"oh he's okay". I got the same response when I asked him about hurting my mom's yorkie. I've taken him off of the Strattera. We have an appt with our pediatrician tomorrow morning. Not really sure what good that will do, but he wants to check him and make sure nothing physically is wrong since he isn't eating well either.
I called again today back to the Sparks Clinic where they have the behavioral management team that evaluates and they "have received all my paperwork and are still processing it" whatever that means. It will probably be another 3-4 weeks before we get an appointment with them.
Last night about 10 p.m., Chandler came into our bedroom and said "look what I did to Chandler". He had 2 really bad bite marks on his forearm. Anyway, my husband and I are tag teaming right now so it does give me a little bit of a break. And yes Gonzalo is wonderful. Not sure if you all know, but we've only been married for 3 months. He is not Chandler's biological father, but is his Dad none the less. Thanks for all the support and for letting me vent. We will keep you updated. Please keep us in your prayers.
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Post by Emilysmom on Jul 20, 2004 21:00:29 GMT -5
Gonzalo and Ashlea, I have a 16 year old son who was diagnosed with ADHD when he was 6. I was VERY resistant to agree to medications, but finally decided to at least try it. The difference in my little guy was amazing!!! The aggressiveness disappeared, the SCARY stuff disappeared......no more impulsiveness....and the neighbors suddenly decided it was ok for Justin to come over to play!! It was an awesome change! He has been on Concerta for quite a few years with VERY good results. Different meds work for different kids, but maybe your doc would be willing to give Concerta a try? The behavior plan is also a great idea. Good luck!!! Susan#nosmileys
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Post by momofrussell on Jul 21, 2004 23:36:19 GMT -5
Oh Ashlea.. I don't know what to say.. but I offer you HUGS and prayers that you get to some resolution soon for Chandler and you. I know how sad you must feel. I would definately make sure NOTHING else is going on with him other than the meds and some adverse reaction....
When was the last time he had some blood tests done and any other tests? Make sure they cover everything...
Sorry you are having a rough time! Sounds like you have a wondeful husband and father to Chandler... and that he helps out and gives you a break... it is definately needed.
Keep us posted!
a.
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Post by Cathy on Jul 23, 2004 17:59:26 GMT -5
Just sending a few hugs to you all! Chandler is very lucky to have some wonderful caring parents. Good luclk and let us know how things go!
Cathy
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Post by Claire on Jul 24, 2004 21:25:43 GMT -5
Hugs to you. Adam had some aggressive behavior too when he started school. We saw a behavior specialist and we worked out lots of stuff. He is doing a lot better too. With Adam it was a commun ication problem. He could not communicate at all then. Hope you get some help.
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