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Post by wrblack on Aug 6, 2004 16:32:08 GMT -5
Thread started by JustaFriend on Questions and Comments board, and replied to by CC there--just helping out by starting a new thread here-- <<But my friend is not Christian, and doesn't believe that having a child with DS was a special privilege that God gave her (which is the focus of some of the other boards she's tried).>> Well, as a non-practicing agnostic, I can relate to that. You and your friend might enjoy reading article found at this link, www.theage.com.au/articles/2003/09/27/1064083207759.html (if you can get there without all the trouble I just had), which says, among other things, <<Not that either of us believes in an afterlife. That’s our problem, Conor and I, we’re devout atheists. At this moment of reckoning in our life, when people turn to their faith for support, we couldn’t even draw comfort that Caoimhe was the baby that God had sent us or that this was our Fate; there was no spiritual buffer. No, we had been starkly confronted by a random act of the universe, Caoimhe McCooey was the one in seven hundredth baby born with Down Syndrome, and suddenly our lives had changed forever. >> Someone on the old Down-syn list not too long ago was talking about how the Ds community spends too much time being positive and glosses over somewhat the day to day problems. I think there's probably something to that. But hell, even I don't want to hear myself whine and cry all the time. On the other hand, give it some time. Having a child, with or without an extra 21st chromosome, is both a privledge and a trial. I'd hope your friend would give Uno Mas a try and find it to her liking. Cheers, Bob p.s. What's a devout atheist? How do you do that? |
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Post by momofrussell on Aug 6, 2004 17:01:23 GMT -5
I went to the original post and response by CC so I could catch up before posting. I think Unomas is a GREAT forum for all walks of religion. With Unomas being an open board, we are more apt to get all sorts of different posts, beliefs, differences, ect... which what makes it such a great place. I would think the friend in need would find great comfort here. I go to a couple private forums by invite only, which I love too, but you will get a different group that way, then in a public forum. It's just the way it is. So this place might just do the trick. I can't speak for anyone else, but here is how I feel on religion and posting. I, myself, believe in God. And with that, I know why I have Russell. But I also am realistic in knowing some don't, some do, some have different religions all together, and some sit on the fence. I always know that my shoes I walk in are different than those of my nieghbor (internet and IRL). I try to put myself in their shoes so I can feel how the shoe fits. It makes it easier to be more objective that way. I can't say I always agree on all opinions, but that has nothing to do with their beliefs or non-beliefs in God. And, I can appreciate the difference of opinions. This board is to HELP all... and no matter what we all believe in religion wise, we DO have a common bond, which is Down's Syndrome, and that is why we are here! Bob, I do have to agree also that some times we (not here persay, but in general) make DS glossy at times. Although I accepted Russell and his DX alot easier than some... I STILL struggle with some day to day issues that some don't struggle with. But like you, I don't try to whine and complain too... but knowing I CAN here and elsewhere is what I do need.  A vent once in a while does the body good! Well, I say, Bring on the friend!!! I hope others here will feel the same and welcome this person for who they are and what they need.. instead of who they aren't. Oh... and Bob, I had to chuckle at your question about the devout athiest... only because you non-practicing agnogstic comment A. |
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Post by TriciaF on Aug 7, 2004 15:15:04 GMT -5
Bob,
LOL You crack me up! I saw your ps ? about a devout atheist and was laughing out loud cause at the beginning of your post I was going......What's a non-practicing agnostic? I thought to myself....well I won't ask....then I saw your post script and changed my mind. ;D ;D ;D
~Tricia
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Post by Debbie on Aug 8, 2004 15:19:23 GMT -5
I am not sure to whom I am posting exactly, but, I agree with the above opinion's. Bob, I guess you just have to leave it up to your friend, (it is your friend, right?) to make the decision whether she wants to try Unomas. I do think she may gain some support here if not education as well. There are other web sites that she can visit too. I do think she might see that she is not alone in her struggles by trying it out. I do know that Unomas has been very successful in reaching out to not only parents but sibling's and grandparent's. Everyone has the right to what they want to believe even though another person might want disagree. I am a Christian myself. I believe in God and yet I was angry at Him for my Down syndromeness. I got through it after a long struggle. I am glad He is a strong person because I was very angry!  I am at a different place now and I am thankful for His understanding and accepting love. ;D |
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Post by momofrussell on Aug 8, 2004 16:41:22 GMT -5
Hey Tricia.. seems you and I had the same "chuckle" LOL!
A.
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Post by wrblack on Aug 9, 2004 10:04:43 GMT -5
Hi, Debbie, Even when you get it wrong you get it right. No, it's not my friend. I was just responding to another post that started out on the How to Use this board board. Thought I'd help out by starting a new thread here and in stead made a small mess. Should have just waited 20 minutes. But I always look forward to seeing posts from you. I'm really glad you're hear and participating. You are, in my not so humble opinion, one articulate and insightful lady. You posted something a few days ago, I think in connection to your recent convention trip, that reminded me of Jason Kingsley and Mitchell Levitz talking about they wished they could either speed up a bit or the rest of the world would slow down just a bit. But I hope you and Jason and Mitchell also have times where you appreciate the fact that you sometimes, as Thoreau put it, hear a different drummer--hope you at those times enjoy the music and the beat. Regards, Bob I am not sure to whom I am posting exactly, but, I agree with the above opinion's. Bob, I guess you just have to leave it up to your friend, (it is your friend, right?) to make the decision whether she wants to try Unomas. I do think she may gain some support here if not education as well. There are other web sites that she can visit too. I do think she might see that she is not alone in her struggles by trying it out. I do know that Unomas has been very successful in reaching out to not only parents but sibling's and grandparent's. Everyone has the right to what they want to believe even though another person might want disagree. I am a Christian myself. I believe in God and yet I was angry at Him for my Down syndromeness. I got through it after a long struggle. I am glad He is a strong person because I was very angry! I am at a different place now and I am thankful for His understanding and accepting love. ;D |
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A vent once in a while does the body good! 
I am at a different place now and I am thankful for His