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Post by vicki on Jun 14, 2005 16:21:06 GMT -5
We went to see the GI surgeon for Kyles checkup today and i told him Kyle was in the hospital last week for pnemonia. He doesnt think that the surgery Nissen didnt work he thinks he has more going on than just that. SO we are having a swallow study done with an ot there and different textures and different liquids thick and thin.
I hope this test tells us what is happening.
vicki
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Post by chrfath on Jun 14, 2005 16:37:08 GMT -5
Good luck finding answers. That has to be a hard thing to figure out.
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Post by momofrussell on Jun 14, 2005 17:47:28 GMT -5
Yes, Good Luck Vicki!!! Please keep us posted!!!!
A.
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Post by ValerieC on Jun 14, 2005 17:47:56 GMT -5
It has to be hard watching test after test still not knowing what is actually going on. I hope you find out some answers quickly.
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Post by sharen on Jun 14, 2005 19:42:00 GMT -5
Vicki, That is what they did with Jordan, and found that he was asperating thin liquids, that is when they put him on thick-it honey texture. The Speech Patholgists was in with us and she seemed to think that Jordan's esophagus was so burnt from the reflux that he had no feeling swallowing and thought it would heal in about a year. Well she was right because he had the nissen done June 2004 and as of the first week in June he has been off of Thick-it and everything is going well NO ASPERATING thank the lord. Im very sure they will find out everything with the video swallow and Kyle will be just fine. Please keep us posted Hugs to Kyle
Sharen
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Post by marisa on Jun 14, 2005 20:41:34 GMT -5
Good luck with the testing. When is he going to be tested? Please keep us posted.
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Post by vicki on Jun 15, 2005 10:31:26 GMT -5
Kyles test is next wed. The doc yesterday did say that they might have to put a g tube in to get him fatten up just for a short time. But i am hoping to fatten himup by my self. I did change from infant cereal to the thick it. He did gain some when we used that.
Vicki
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Post by vicki on Jun 23, 2005 11:16:07 GMT -5
Kyle had his swallow study. They said he swallows fine and for the 5 minutes he was being xrayed he didnt aspirate. Not sure what we are going to do next.
vicki
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Post by ValerieC on Jun 24, 2005 8:08:15 GMT -5
Keep us posted. I thought about Kyle all week. It's almost nice to know he is not aspirating, but at the same time, I'm sure it would have been nice for a diagnosis.
Anyway, keep us posted...
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Post by Emilysmom on Jun 24, 2005 9:03:26 GMT -5
Thanks for keeping us posted Vicki. I hope and pray they will find out what to do soon!
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Susan, Proud mom of Michael (32), Justin (25) Emily (22ds), and Jordan (20).
