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Post by Jodi on Aug 31, 2005 11:05:07 GMT -5
Hello - ... just got back from a trip to DC and NY with Josh - we had a blast!!!
So, I woke up last night and checked on Ryan. He was in his usual jack-knife position, and it got me thinking.
Ryan tends to go to sleep lying on his side, but usually ends up sleeping folded in half. I know a lot of people with DS do this, and I was wondering if it continues into adult life. Also, has anyone heard of any problems associated with this sleeping position?
If you respond, would you mind listing your childs age? Ryan is 7.
Thanks!
Jodi
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Post by ambersgrandma11 on Aug 31, 2005 12:41:34 GMT -5
Amber 6, sleeps on her side, with her leg bent up, there was a adult man Chester ds, age 63 at the nursing home I would go to see as a volenteer with my church, I would visit him and he would sleep the same way as Amber does, and sucking his thumb, he was a real sweetheart, Chester passd away 2 years ago. He had a real loving family.
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Post by Jessie on Aug 31, 2005 13:21:51 GMT -5
Hi Jodi - was wondering where you've been lately!!
Jason, 12, doesn't sleep in just one position. I guess most of the time it would be on his back, sucking wind with an open mouth! Lots of times in the fetal position on his side, but rarely on his stomach.
By "folded in half", do you mean the fetal position or are his legs straight out in front of him??
Jessie
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Post by momofrussell on Aug 31, 2005 13:39:57 GMT -5
Well.. sleeping positions and Russell... where do I begin... LOLOL!
Russell sleeps like Amber does... on his side, one leg bent. He also sleeps on his tummy sometimes, hands under him and hiney in the air.. he also will sit up while sleeping and turn over to sleep. I can find legs and arms high on the wall and I can find Russell in "taco" position. Which is what I think you are referring to. He does it ALL!!! LOL Russell is 7 now and I don't see an end in sight! I think this is just what is comfy to him.
A.
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Post by ashleysmom on Aug 31, 2005 15:10:50 GMT -5
Ashley is 2 1/2. we put her to bed on her back, she falls asleep that way.. Some time during the night she sits up while sleeping than falls forward all crunched up.. We always know when she does the sit up thing because she sit's up and moans in her sleep. VERY strange. BTW she still sleeps in a crib.
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Post by laurasnowbird on Aug 31, 2005 15:10:53 GMT -5
When Ethan was only six weeks old, he was in the ICU with RSV pneumonia. The doctor who ran the ICU is also the director of a sleep clinic, and he was the one who first mentioned to me that kids with DS often have sleep apnea. He told me several things to be on the lookout for, and one of those things was sleeping in the taco position. Ethan's diagnosis was still so new that I hadn't even heard of a correlation between DS and sleep apnea, so I was very grateful for the information.
I would check into having a sleep study done to rule out any apnea issues.
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Post by hannahph on Aug 31, 2005 15:11:28 GMT -5
Hannah does this too! She did this everynight before she had her surgery for tonsils and adnoids. She had sleep apnea and I believe she rolled around the bed and sat up in her sleep and then just fell over into the "jack- knife" position. I think she was not getting enough oxygen and would thrash around because of it. She still does it but not as much. Have your kids ever been evaluated for sleep apnea? I worry about her hip joints, especially since one hip makes a horrible popping noise and feels like it is going out of joint. I had two orthepedic evaluations and they both feel it is just loose ligaments but I can't help but feel like this sleep position does not help this!
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Post by Cathy on Aug 31, 2005 15:40:05 GMT -5
Well.. sleeping positions and Russell... He also sleeps on his tummy sometimes, hands under him and hiney in the air. A. LOL A-- you described Katie to a tee. Here a few of her other positions: These are pics of Katie sleeping when she was younger, but they are still her favorites til this day. Katie is 4 and a half. Hugs, Cathy
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Post by Jodi on Aug 31, 2005 16:04:57 GMT -5
Never heard of the "taco" position before! LMAO! But I guess that's what it is. We had a sleep study done and that was followed by a tonsilectomy/adenoidectomy/ear tubes. Ryan was 3. Haven't had another sleep study done yet. So some of you think this may be related to sleep apnea - interesting... I will have to check this out.
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Post by Cathy on Aug 31, 2005 16:41:47 GMT -5
Hannahph,
This may sound really cruel, but when Katie was a baby we were told to use an ace bandage and tie her thighs together to help keep her hip joint aligned.
She used to look like a frog when she layed on her back. It really helped a lot. You might want to try it...but please do not tie it to tight !! LOL
The first pic I posted of katie is the "modified taco" she was using Elmo for support (actually she was playing with Elmo and fell asleep like that)!
Hugs,
Cathy
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Post by momofrussell on Aug 31, 2005 16:46:31 GMT -5
"modified taco"
PIMP LOLROFLMAO!!!!!!
A.
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Post by laurasnowbird on Aug 31, 2005 16:53:44 GMT -5
From a website about sleep apnea:
"Not all kids with sleep apnea snore. Even when they do, sleep apnea is often overlooked. Instead, the child may be diagnosed with a behavioral disorder -- most commonly ADHD.
What is it? Snoring can be the sign of obstructive sleep apnea syndrome (OSAS), where there is prolonged partial blocking, or intermittent blocking, of breathing during sleep. The obstruction is usually caused by large tonsils or adenoids, which may be temporarily enlarged by infection or allergies.
Children with sleep apnea do not get sound sleep. They may also get suboptimal oxygen to the brain at night. Obstructive sleep apnea can have a serious negative impact on a child's intellect and behavior.
OSAS can cause growth problems. It has also been linked to ADHD, poor school performance, learning difficulties, bedwetting, high blood pressures, heart disease, and even death.
OSAS is different from primary snoring (PS), the name given to snoring that doesn’t cause sleep disruption or breathing problems. Primary snoring is more common than OSAS.
Who gets it? OSAS occurs in about 2 percent of children. The peak age is 2 to 5 years old, but it can occur at any age.
In older children and adults, it is more common among the obese. It is also common in those with sickle cell disease, Down syndrome, birth injuries, or any other condition that might narrow the upper airway.
What are the symptoms? Classically, those with sleep apnea snore quite loudly for a bit, then are silent, then snort briefly, move about, and resume snoring. If snoring is accompanied by nighttime breathing difficulty and pauses in breathing, then it may well be sleep apnea.
However, many children with OSAS do not follow this classic pattern. OSAS and PS cannot be reliably distinguished from each other based on the symptoms alone.
Other common symptoms of sleep apnea include mouth breathing, restless sleep, difficulty paying attention during the day, decreased academic performance, oppositional behavior, and restlessness."
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Post by andrewsmom on Aug 31, 2005 18:28:21 GMT -5
LOL! I love the "taco position". Andrew does this often and also will sleep in very strange positions. He too sits up in the middle of the night and falls forward.
As for the sleep apnea... maybe that's something I need to look at closer. Andrew snores louder then a jumbo jet. And let me ask....am I reading this right that removal of T&A solves this?? -Trisha
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Post by Cathy on Aug 31, 2005 18:49:41 GMT -5
Trisha,
To "Solve" may be a stetch, but I will tell you, it surely helped Katie. Her sleeping improved 10 fold after having hte T&A as did the frequency of her URI's.
But I would definitely check it out.
Hugs,
Cathy
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Post by steffipoo on Aug 31, 2005 19:21:35 GMT -5
;D Ya know what? Liv doesn't sleep in the taco position anymore but thats how she slept forever. When she was 8 and a half months she had surgery for an airway obstruction and it took about a year for her airway to get back to normal. She slept "a la taco position) folded flat over with her head turned to the side resting on her legs till almost 2 yrs of age. I do however find her sitting up at night like cute Katie.. As a matter of fact her last sleep study was abnormal pretty abnormal and we go tonight to childrens for her first overnight sleep study. In the past she has had the nap polysomnography.2nite we get to sleep there.YIPPEE!!!!!!
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