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Post by shellk on Aug 31, 2005 19:22:37 GMT -5
WOW !! Reading Laura's reply had made me think that maybe I need to get a sleep study done for Kourtney. She is a mouth breather at night, and restless sleeper. She had one done when she was 2, and seemed okay, But I think I might asked for another one.
And CATHY----- Those are PRICELESS pics of Katie
And as for the TACO--- Kourtney sleeps more like an eagle, puppy, fish out of water..heehee
Michele
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Post by Jodi on Aug 31, 2005 19:59:08 GMT -5
Thanks everyone for your thoughts!
I've just posted in A's thread about the fact that Ryan has had a T&A and tubes put in about 4 years ago - so I think we need to get in to have another study done. He does sleep in the taco position a lot, and is a thrasher - constantly moving in bed (real fun when he joins us in the middle of the night - he has super flexi legs and can kick in all the right places at just the right time!).
LOVED the pictures of Katie - OMG - too cute!!!!
Jodi
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Post by hannahph on Aug 31, 2005 20:39:49 GMT -5
Cathy, I do not think it's cruel to use a ace bandage to position a baby's legs but my Hannah is almost seven and would fight me like a wild cat! I would have loved to see that though, had to look pretty funny! I can't see the pics for some reason, Will try again later.
Trisha, Hannah had T&A done and has helped a great deal with her apnea, I am not sure if it has completely alleviated it.
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Post by Valerie on Aug 31, 2005 20:52:17 GMT -5
Well, the only sign of sleep apnea listed that Nicholas has is the restless sleeping. He sleeps on his back for naps, and starts out that way at night, but then he is all over the place. He usually ends up kinda like A described, on his stomach with hands tucked in and hiney in the air. I just assumed it was because he was cold from losing his covers with all the thrashing around! He used to do the taco position, but I had actually forgotten about it and didn't know what you guys meant until I saw the pics of Katie. Which are ADORABLE, by the way! ;D I don't remember him doing that since he had his surgery in January, and after surgery his oxygen level went from 85% to 100%, so maybe there is something to the lack of oxygen thing!
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Post by Kristen on Aug 31, 2005 20:58:56 GMT -5
I never heard of it called taco. Carter sleeps sometimes wiht his legs crossed indian style laying over them. Is that it? He changes positions a lot and right now seems to like laying on his belly with one hand under his cheek. He has never had an oxygen reading under 100% after he was discharged form the NICU except when he had a bad croup attack and who can blame him then? He doesn't snore and he usualy keeps his mouth closed, which I think is strange because I am a total night mouth breather and so is Dave (who can blow off a barn door snoring) and Syd. Carter is 3.
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Post by Debbie on Aug 31, 2005 22:08:52 GMT -5
Sometimes I have have been told I sleep in some strange positions too. A few times when I woke up during the night I was sitting facing the wall! Other times well, let just say I woke up in some real strange positions! One time when I woke up I was on my stomach with my feet up in the air! My toes were facing each other, going into each other. I was wondering why I was in pain. Weird!
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Post by momofrussell on Aug 31, 2005 22:34:31 GMT -5
Yes Kristen.. that would be Taco position... either the legs indian style or straight out even! You mentioned sats... Russell was never 100% when he went home from NICU nor after his eye surgeries.. he ran around 92-94 and they said it was ok to take him home. But he has had plenty other surgeries and they never mentioned it again... HMMMMMMM.
A.
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Post by steffipoo on Sept 2, 2005 12:37:13 GMT -5
Hi!!!! Olivia just got back from her sleep study yesterday and she did 0okay. They did however need to put 5 liters of O2 on her for the last 3 hours as her O2 was at 85%.When she had the 5 liters she was at 97%. We go for her pulmonary follow-up on the 28th. She does get breathing treatments 4 times a day of cromolyn sodium and albuterol.
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Post by alisonzmom on Sept 2, 2005 15:04:37 GMT -5
Alison is all over the crib at night!!! I've found her with both legs dangling out between the rails, one arm & one leg out, legs straight up resting on the head/foot of the crib, on her side, one her back, and in the tummy tuck! The one position that creeps me out everytime is what I call the "cadaver pose", she's on her back, legs out straight with her arms crossed at the wrists over her chest!!!! Gets to me every time!!!
Alison was having a problem with snoring but since having her adnoids out in July, I haven't heard her snoring at all. They also replaced the tubes in her ears at the same time. DR said her adnoids were HUGE, but surprisingly her tonsils were not enlarged so they were not removed. I hope she won't have to go back for tonsils to be removed.
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Post by belovedlife2 on Sept 2, 2005 15:26:20 GMT -5
It's funny because one of the reasons I had taken Peanut to the Pulminologist was to have a sleep study done (here in PGH that's apparntly where you go). WHen I told them my main concern was sleep position, like oyu said, Taco or with their necks cranked all the way back....they said that that is not a good enough reason for a full polysomnogram, Instead they did the nuemogram Which basically looks for drops o2 sats and bradycardia. Thank God she had none, but she did have a couple of episodes of apnea....that they called a normal study. She had twop central apnea s that were in my mind knida long....but anyway I pushed a little harder and we are scheduled for a full sleep study in early nov. If you are at all unsure don't be afraid to tell the doc's as you and i know our kids better then anyone else. My big thing, as you may have guessed already is parent activist. You know best, so push...even when the md tells you to go fly a kite. Good luck, Its nice to know we are all experianceing the same things... Robyn
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Post by steffipoo on Sept 3, 2005 10:28:53 GMT -5
Robyn that is the BEST advice especially for new parents cause as u already know EVERYTHING seems so overwhelming when u have a new baby with the diagnosis of ds. I was told for 5 months that Olivia was FINE even though if any other kid was breathing like she did I feel they would've investigated immediately. Some docs made me feel paranoid like I was just crazy and others made me feel like HEY I'm the doc.... Finally after 4 moths of antibiotics and me feeling CRAZY Livs PT at about 6 months told me.. NO YOU CALL THEM NOW!!!! FROM HERE(her center based program) tell them ur bringing her in NOW and something different needs to be done cause something is NOT RIGHT. She gave me the courage and also the assurance I wasn't CRAZY they were. Once I opened up this mama bears mouth I ROARED. Well actually I roared cause when I went str8 from ei to docs after I called from there Liv STOPPED breathing in the car and turned blue on me on the freeway SCARY. Picture me pulled over on the busy l.a. freeway FREAKING out trying to get the child to breathe. BOY OH BOY did THAT make this mama get CONFIDENT and tell em all they do somethig NOW. Thats when they FINALLy put her first pulse ox on to discover she was in the 70% ALL the time maybe an occasional 80.Thats when I got out the medical books studied like mad talked to peds who's kids had kids with ds and man BAM!!! THEY ALL listen to me ALL the time.o one takes my concerns lightly. and never will cause I won't let em.
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Post by theresaolohan on Jan 29, 2006 2:29:20 GMT -5
hi Daniel sleeps on his tummy, or on his side, but he is a very noisy sleeper he sleeps with his mouth open and his tounge protudes, so when he wakes in the morning he has to was his teeth and rinse his mouth becuase it gets all dry and uncomfortabel. Daniel will be seven in march, he really is comming very well his speech is improving and so is his cordination and he is the funniest little guy ever i enjoy reading all the messages and find that you in America experience a lot of the problems that we have here in Ireland with regard to services but on the whole our Services are a lot weeker and with access to the internernet now parents can obtain a lot of information to help them with problems of Speech and cordionation bye now theresa olohan
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