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Post by lexybug on Nov 17, 2005 21:31:10 GMT -5
We got to bring Lexy home today. ;D It is so nice to be home. Don''t get me wrong, we are nervous wrecks!! There is so much to look for and make sure of. She has to have chemo every tuesday. That is pretty much until May and then she hopefully starts going once a month. Perfect timing b/c that's when baby #2 is due!! Her chemo lasts 2 1/2 years. The Drs said 50% of children go in remission in one week!! Can you believe that. Ideally though she will be in remisssion in one month. That is the goal.
We gave her a much needed bath tonight and decided to cut her hair really short. They recommened this b/c when she loses it, it won't be so hard on all of us. Lexy will be thrilled to death w/out hair!! She hates when I do anything with it. Thank you so much for your prayers, I know I don't write much on here but I'm going to need everyones support. I know from reading on here, I'll get everything I need. Thanks again. Elizabeth
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Post by Valerie on Nov 17, 2005 21:33:59 GMT -5
I'm so glad she's home! Wow, chemo for 2 1/2 yrs. But that remission in a month sounds great! ;D I bet it was hard for you to cut her hair, but like you said, she's probably loving it!
Prayers going out for Lexy for a quick remission!!!
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Post by Ericsmomma on Nov 17, 2005 21:54:53 GMT -5
Elizabeth and Jason,
So glad to see your little baby doll is home! Prayers for a complete healing and a speedy recovery. Give her oodles of hugs and kisses from us all.
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Post by Tammy on Nov 17, 2005 21:56:40 GMT -5
Good to hear Lexie is home again. WOW 2+ yrs of Chemo... It will be a long hard road for you, but heres hoping you get that remission next month!!
That will make it all worthwhile.
And I am sure Lexie IS loving her new Hair do!!
Over here we have a charity Called "Canteen" which raises funds for support of children and teenagers with Cancer. They sell really groovy Bandannas for those undergoing Chemo to wear on their heads. They also hold an annual Bandanna day where the sell these bandannas to the public to wear for a day and raise money.
Dont know if you have the same thing there, but if you are concerned about Lexies hair loss, maybe you could get some suggestions for groovy headwear that she might like to wear.
Just a thought.
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Post by jennydep on Nov 17, 2005 21:58:50 GMT -5
I'm so glad Lexy is home. Trust me you'll be able to breathe again soon! It's scary right now, but it will get better. Editing to add: go to www.heavenlyhats.com. You can have hats sent to Lexy from this wonderful young man. Mickey got a box with 6 or 7 hats last winter. They are great! And I forgot to tell you that Mickey was in remission at day 7 so it can and does happen! We were hoping for remission by day 28 too! Kids with Ds respond to the chemo meds better than typical kids. They are more sensitive to the meds which means they seem to work better for our kids! Jenny www.deputyfamily.net |
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Post by Emilysmom on Nov 17, 2005 22:01:23 GMT -5
Elizabeth~
I'm so glad to hear Lexy is home now!!! I will pray hard that she is one of the 50% who go into remission quickly and that she'll handle the meds well. Your family will definitely be in my thoughts and prayers throughout this difficult time. Please know we are here for you ANYtime you have the time to update us.
Susan
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Post by CC on Nov 17, 2005 22:16:46 GMT -5
YAHOOOOOSooo glad to come here tonight and read that LEXY is home ;D ;D ;D BLESSINGS will continue till the day you post up all is well and then some  I can't even imagine having to deal with this, HUGS to you girl  CC ~ |
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Post by momofrussell on Nov 17, 2005 22:19:40 GMT -5
GREAT NEWS! Glad that Lexy is home!!!! You got other parents you can get support from if you need it? That have been where you guys are? I have a mom I know that may be able to lend some support if you need it... just say the word! We are here for you!!!! Kiss little Lexy for all of us!  Hugs to you!!! A. |
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Post by shellk on Nov 18, 2005 8:43:06 GMT -5
Elizabeth,
That is GREAT that she is home, 50% remission within a month is really good news. Let's hope she gets there as fast as Micky (jenny's boy). I know that Kourtney would also love a really short hair do, she also hates it to be touched, washed, brushed...etc..
Still sending positive thoughts and prayers,
Michele
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Post by Alice on Nov 18, 2005 8:50:53 GMT -5
Elizabeth,
Thank you so much for the update!
I am so proud of your positive attitude! Keep it up!
I will send more prayers on your ways!
Hugs to you and kisses to Lexy,
Alice and family
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Post by ValerieC on Nov 18, 2005 9:01:22 GMT -5
Elizabeth,
Thanks for keeping us updated. What a wonderful way to handle this by looking at the positive!
Valerie C
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Post by laurasnowbird on Nov 18, 2005 9:57:41 GMT -5
Oh my goodness, Elizabeth, I missed your initial post, been a little preoccupied lately.  I'm so glad to hear that Lexy has the curable kind of leukemia. I have such a good feeling about this - things are going to be just fine. I'm sure that this is really scary for you, and especially stressful with a new baby on the way, I know how freaked out I got the one time that Ethan had petechiae, and his turned out to be a false alarm. Please post as often as you feel able (without further stressing yourself) and let us know how Lexy is doing. We are ALWAYS here to listen. HUGS, Laura |
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Post by Connie on Nov 18, 2005 11:35:20 GMT -5
Elizabeth,
Glad to hear she is home. I will keep praying that things go smoothly for you guys....I just can't imagine what you must be going through with all the worry and those PREGNANCY hormones.
Prayers
Connie
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Post by andrewsmom on Nov 18, 2005 20:01:07 GMT -5
{{{{{HUGS}}}}}}}}}}}}} I'm so happy she's home. I've been thinking about you and your family. Please keep us posted.
-Trisha
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Post by MB on Nov 19, 2005 11:57:33 GMT -5
So happy to hear the good news and I so admire your positive attitude. Your posts push me to be a better person.
mb
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&&Mommy to Griffin (96), Gray (97) Collin (00) enhanced and Lauren (02) the little princess.